楼主，我这几天刚停掉D o x y cycline。因为咳嗽，还有手指受伤，家庭医生开了十天的药。100mg。开始第二天就早晨呕吐。中间几天吐了几次，我以为是自己身体不好。也头疼，后来几天原先的胃病也复发了。第八天去看urgent care，医生让停掉。说这个药明显对胃不好，容易拉肚子。他吃一粒，就会肚子疼。 所以，吃这个药要谨慎。 不过，同意其他层主说的，两害相权取其轻。如果可以，多看几家医生，看有没有替代药物。 补充一点，我因为吃这个药胃疼，药剂师也说让吃probiotics。 发现前面几个层主说得大剂量Doxycycline才能治疗，理解楼主的纠结。 希望楼主家孩子尽快治好。
有很多人问，我就都写在这里吧。LLMD就是lyme literature Medicine doctors 检测比较灵敏的有VIBRANT WELLNESS, TLAB, IGENEX,还有就是LIVE BLOOD DARK FIELD，就是指尖血直接放在显微镜下面看，有经验的医生能看到各种不同的pathogens. I have to write in English to articulate it better, so use google translator for Chinese reading. Lyme virus growth cycle is 14 days, some coinfections grow new ones each 24 hours, this is why CDC guide line is 14 days of doxycycline for fresh bite, some doctors think need two to 3 rounds of 14 days to keep them in check. The key is to start as early as you can and finish the full dosage. If you feel this is bad, you will feel you are in hell once it becomes chronical, because the cdc not only does not recognize the chronical Lyme decease, there is no funding or study for new medicine for this, so all the drugs are used are based on animal medicine study, and by repurpose the old drugs, most drugs are for TB(肺结核)， high dose and many with black box warnings. Only few LLMD accept insurance . There are two very active LLMDs, one has a website, he always update the newest studies from other doctors. Marty Ross, he already stopped seeing patience, only do doctor consultation: https://www.treatlyme.net/ The other nation wide known doctor is Dr. Richard Horowitz , he is known for his high dose dapsone protocal. https://www.lymedisease.org/high-dose-dapsone-chronic-lyme/ Especially for busting the biofilms with many long term patience, but this is not everyone can tolerate, half of the patience need drop out, we dropped out after one day dose, it is very scary. The other effective method is insulin potentiated IV, use insulin to lower blood sugar level to open the cells to get the medicines in to kill. Very expensive, also has limitations. Many LLMD does not treat kids under 10 years old or weight under 100 lbs, so your chances to find a good doctor is very limited. There are also homeopathy or CBT (Lyme stop) as alternative treatments, especially for kids, using no drugs, it is long and only effective 85%, maybe lower. If for herbs, the best herbalist is Steven Buhner, he has books for Lyme and coinfection, it is very informative to read , for you to understand what it is and the challenges, all herb success rate reported is 75% or lower, and you will need stick to it, not cheap either. By the way ,he passed away last year, has someone kindly migrant his website and saved all his online QA answers, you will need dig to find out the link. I will post once I have it, can not find it anymore. What else? If you are in northeast region, there is a new strain of Babesia detected Babesia O. , it take a very long time to kill. https://igenex.com/tick-talk/babesia-what-you-need-to-know/ The last is what to take while you are on antibiotics . 1. Probiotics , to prevent c-diff you will need Saccharomyces boulardii broad spectrum probiotics: MegaSpore is a good one, or VISBIOME---this one need to be refrigerated, so you either get from any local store or use the fasted shipping, they do put in a icebag, but you know the heat. 2. Liver protection liposomal glutathione is often recommended, also milk thistle. for young child, you may want to choose the liquid version with no alcohols in it.
I totally can understand your struggle, it is really hard choices, no need to blame yourself for anything, block all the negatives and just get more knowledge on this and make your best knowledge decision for the best of your kid. Nobody else will care your kid more than you do. So wish all the best. ａｄｄ ： it is bacterio, not virus. https://www.treatlyme.net/guide/antibiotics-for-acute-tick-bites follow this instead of CDC, you will be better off. These are all actively treating Lyme doctors guildlines: https://www.ilads.org/patient-care/ilads-treatment-guidelines/
赶紧约儿医，最好有那种电话答疑的话，他们会直接推荐专科医生。儿医肯定常见这种问题，不会拖，家长也催促一下让医生早点见。一起约第二个第三个医生，然后统合一下意见。现在走正常程序约医生都要一个月以外了。 父母第一次见这种情况，很容易忽略，千万不要自责。都是第一次做父母。 我家15岁的儿子被poison ivy 蹭了五六个斑点，我也只是以为蚊虫咬的，虽然后来几天红点越来越大，也没觉得需要看医生。结果他去朋友家sleepover 之后，整个小腿后面皮肤红黑流黄水有巴掌大。然后就urgent care walk in, 儿科医生急诊，儿科医院急诊会诊，皮肤科专科医生，搞了两个星期，试了各种药，后来说身体对各种药有了过激反应，最后一周停药,然后才慢慢好起来。尽力吧以后没遗憾。 养儿子，心大一点比紧紧张张的好。不过，现在要尽力了
Yes, it is bacterio, not virus. https://www.treatlyme.net/guide/antibiotics-for-acute-tick-bites follow this instead of CDC, you will be better off. These are all actively treating Lyme doctors guildlines: https://www.ilads.org/patient-care/ilads-treatment-guidelines/
有很多人问，我就都写在这里吧。LLMD就是lyme literature Medicine doctors 检测比较灵敏的有VIBRANT WELLNESS, TLAB, IGENEX,还有就是LIVE BLOOD DARK FIELD，就是指尖血直接放在显微镜下面看，有经验的医生能看到各种不同的pathogens. I have to write in English to articulate it better, so use google translator for Chinese reading. Lyme virus growth cycle is 14 days, some coinfections grow new ones each 24 hours, this is why CDC guide line is 14 days of doxycycline for fresh bite, some doctors think need two to 3 rounds of 14 days to keep them in check. The key is to start as early as you can and finish the full dosage. If you feel this is bad, you will feel you are in hell once it becomes chronical, because the cdc not only does not recognize the chronical Lyme decease, there is no funding or study for new medicine for this, so all the drugs are used are based on animal medicine study, and by repurpose the old drugs, most drugs are for TB(肺结核)， high dose and many with black box warnings. Only few LLMD accept insurance . There are two very active LLMDs, one has a website, he always update the newest studies from other doctors. Marty Ross, he already stopped seeing patience, only do doctor consultation: https://www.treatlyme.net/ The other nation wide known doctor is Dr. Richard Horowitz , he is known for his high dose dapsone protocal. https://www.lymedisease.org/high-dose-dapsone-chronic-lyme/ Especially for busting the biofilms with many long term patience, but this is not everyone can tolerate, half of the patience need drop out, we dropped out after one day dose, it is very scary. The other effective method is insulin potentiated IV, use insulin to lower blood sugar level to open the cells to get the medicines in to kill. Very expensive, also has limitations. Many LLMD does not treat kids under 10 years old or weight under 100 lbs, so your chances to find a good doctor is very limited. There are also homeopathy or CBT (Lyme stop) as alternative treatments, especially for kids, using no drugs, it is long and only effective 85%, maybe lower. If for herbs, the best herbalist is Steven Buhner, he has books for Lyme and coinfection, it is very informative to read , for you to understand what it is and the challenges, all herb success rate reported is 75% or lower, and you will need stick to it, not cheap either. By the way ,he passed away last year, has someone kindly migrant his website and saved all his online QA answers, you will need dig to find out the link. I will post once I have it, can not find it anymore. What else? If you are in northeast region, there is a new strain of Babesia detected Babesia O. , it take a very long time to kill. https://igenex.com/tick-talk/babesia-what-you-need-to-know/ The last is what to take while you are on antibiotics . 1. Probiotics , to prevent c-diff you will need Saccharomyces boulardii broad spectrum probiotics: MegaSpore is a good one, or VISBIOME---this one need to be refrigerated, so you either get from any local store or use the fasted shipping, they do put in a icebag, but you know the heat. 2. Liver protection liposomal glutathione is often recommended, also milk thistle. for young child, you may want to choose the liquid version with no alcohols in it.
I totally can understand your struggle, it is really hard choices, no need to blame yourself for anything, block all the negatives and just get more knowledge on this and make your best knowledge decision for the best of your kid. Nobody else will care your kid more than you do. So wish all the best. ａｄｄ ： it is bacterio, not virus. https://www.treatlyme.net/guide/antibiotics-for-acute-tick-bites follow this instead of CDC, you will be better off. These are all actively treating Lyme doctors guildlines: https://www.ilads.org/patient-care/ilads-treatment-guidelines/
peekston 发表于 2023-07-23 10:16
I copy the page here: https://www.ilads.org/patient-care/ilads-treatment-guidelines/ Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease Daniel J. Cameron, MD MPH; Lorraine B. Johnson, JD; Elizabeth L. Maloney, MD The 2014 ILADS Treatment Guidelines address three clinical questions – the usefulness of antibiotic prophylaxis for known tick bites, the effectiveness of erythema migrans treatment, and the role of antibiotic re-treatment in patients with persistent manifestations of Lyme disease. Evidence Assessment Grading of Recommendations Assessment, Development and Evaluation-based (GRADE) analyses found the evidence regarding these scenarios was of very low quality due to limitations in trial designs, imprecise findings, outcome inconsistencies and non-generalizability of trial findings. Additionally, reported outcomes were artificially high in some cases while in others significant treatment successes were minimized. It is impossible to state a meaningful success rate for the prevention of Lyme disease by a single 200 mg dose of doxycycline because this regimen is based on a single human trial that utilized an inadequate observation period and an unvalidated surrogate end point. In animal studies, the efficacy of single dose doxycycline was <50%. Success rates for treatment of an EM rash were unacceptably low, ranging from 52.2 to 84.4% for regimens that used 20 or fewer days of azithromycin, cefuroxime, doxycycline or amoxicillin/phenoxymethylpenicillin (rates were based on patient-centered outcome definitions and conservative longitudinal data methodology). In a well-designed trial of antibiotic retreatment in patients with severe fatigue, 64% in the treatment arm obtained a clinically significant and sustained benefit from additional antibiotic therapy. Treatment Guidelines The optimal treatment regimen for the management of known tick bites, EM rashes and persistent disease has not yet been determined. Accordingly, it is too early to standardize restrictive protocols. However, ILADS does make recommendations for each of these clinical situations ILADS recommends against the use of a single 200 mg dose of doxycycline for the prevention of Lyme disease. Not only is it unlikely to be highly efficacious, in the human trial failed therapy led to a seronegative disease state. Based on animal studies, ILADS recommends that known blacklegged tick bites be treated with 20 days of doxycycline (barring any contraindications). Given the low success rates in trials treating EM rashes for 20 or fewer days, ILADS recommends that patients receive 4-6 weeks of doxycycline, amoxicillin or cefuroxime. A minimum of 21 days of azithromycin is also acceptable, especially in Europe. All patients should be reassessed at the end of their initial therapy and, when necessary, antibiotic therapy should be extended. ILADS recommends that patients with persistent symptoms and signs of Lyme disease be evaluated for other potential causes before instituting additional antibiotic therapy. ILADS recommends antibiotic retreatment when a chronic Lyme infection is judged to be a possible cause of the ongoing manifestations and the patient has an impaired quality of life. Clinical Judgment and Shared Decision-Making Given the number of clinical variables that must be managed and the heterogeneity within the patient population, clinical judgment is crucial to the provision of patient-centered care. Based on the GRADE model, ILADS recommends that patient goals and values regarding treatment options be identified and strongly considered during a shared decision-making process. Reconciling Divergent Guidelines Conflicting guidelines most often result when evidence is weak; when developers differ in their underlying values, approach to evidence reviews, synthesis or interpretation; and/or when developers have varying assumptions about intervention benefits and harms. The differences by clinical situation between the ILADS and IDSA treatment recommendations are reconciled in Supplementary Appendix I. Download ILADS’ 2014 Evidence-Based Treatment Guidelines Additional Learning Opportunities for Medical Providers ILADS Lyme Disease Fundamentals Course is a full-day seminar that provides an in-depth examination of the basic science, trial and clinical experience evidence pertaining to the diagnosis and treatment of patients infected with Lyme and other tick-borne diseases. This course is a prerequisite to participating in the ILADS Physician Training Program. Our sister organization, the International Lyme and Associated Diseases Education Foundation (ILADEF) offers a unique training program to foster excellence in care for Lyme disease patients. The mentorship program, lasting one to two weeks, places physician participants in the offices of ILADS experts where they learn how to evaluate and treat patients for Lyme and other tick-borne diseases. The program is available to clinicians holding either an MD, DO, ND or PA degree and who have completed and successfully passed the Lyme Disease Fundamentals course.
doxycycline 短期用不会坏牙齿。你孩子有BULLS EYE又不发烧，说明小孩没有抵抗力，验血不会看到，但是病毒已经在体内了，这个会慢慢发展成CHRONIC LYME DESEASE，赶紧给药，而且要给够计量和时间。 这些副作用比真正长期的病痛比起来微乎其微。你可以私信我，我们也是在抗病中。小孩休学了两年才开始慢慢好转，都不知道啥时候咬的。疗程过后建议再去检测，PA有很多可以看血片的医生，那个比血检还准确。
抱抱妹妹，美国对这个LYME DESEASE太潦草了。 还是要坚持跟LLMD，有些会用抗生素和HERB一起的，但是都是很大计量和很长时间才能好，路漫漫。还有用IV的可以计量小一些。要注意随时补充益生菌。
中国也有的，有些植被高覆盖的地方很普遍，只是也很少宣传而已。世界上现在没有一个地方没有。
是啊，先吃着再说呗，这个就是牙齿黄，真无所谓，开完药因为没症状又纠结2周，latent的现在能有什么症状啊，看的肝儿颤，这什么妈，天天自己纠结，孩子放任不管。不过侥幸也可以理解，也许吃了那么多阿莫西林也会管用，这个只能等娃长大以后再说了。
多阿莫西林不对症LYME病毒，可能对症起红疹的其它啥细菌。
看到前面有人说小孩子只吃了阿莫西林，没吃doxycycline，但是那是比较及时的，又回去看了一下楼主帖子，虫子拔出来竟然不立即看医生，2周后有疹子才去看医生，还是按hive来，给的小剂量amoxicillin，估计阿莫西林没作用了，所以人家专科医生才给开了相对大剂量的doxycycline，然后楼主又纠结两周没给娃吃，现在还是不想给娃吃，现在早过了窗口期估计娃凶多吉少，不过还是祝福楼主家娃吧。
就是这么回事，自己不懂，权威又相悖，基本只能靠赌了…
肯定比这个老“医生”靠谱。
大人和小孩不一样吧
现在问题已经很明朗了 多西环素的那点副作用和lyme三四期比微不足道 lz还在纠结啥 越拖越糟 细菌在体内是不停的复制 越来越多 最后攻击神经 脊髓 大脑 等等
早期验不出来 等能验出来可能就过最佳治疗期了
哦 明白了 那我觉得肯定先吃药了 吃着第一期28天 到时候肯定也能化验出来了吧。没有病的话直接停药。吃这一期对娃也不会有太大坏处吧。a
Lyme disease早期抗生素治疗及时一般只有短期症状，但是大概有10-20%的人会有长期症状，严重得可以非常严重。尽管如此，他们lyme disease血检结果却往往是negative，所以他们的症状到底是不是因为Lyme disease的长期感染（被称为chronic Lyme disease), 这个医学界存在一定的争议。以CDC，IDSA为代表，主流医学界持观望态度，不认可存在长期感染，认为有可能是其他原因造成免疫系统功能失调，CDC的guideline就是以此为前提，作为医生，不管相不相信存在长期感染，肯定是follow guild line省事。另外一部分医生，被称为Lyme literate MD, 不但认为存在长期感染可能, 而且会针对用药，因为against CDC guideline，所以不收保险。
楼主要是相信CDC，那吃完阿莫西林，治疗也就算完了，80-90%的可能以后不会有事，找其他follow guildline的医生，也不能再做什么。如果不希望落入那非常倒霉的10-20%，就只有选择相信老医生的，就算找其他的LLMD，大概率也是给开多西环素。
楼主实在不行好好研究一下数据吧，我说的10-20%是随便搜的，你可以仔细看一下那个概率你愿不愿意赌。
而且我查网上阿莫西林是治Lyme 啊，楼主还要去问，很负责，现在也不随便给娃用药，在研究，我觉得比90%都做得好了。
这是人话吗？
诊所有义务提供中文翻译
莱姆病，小孩被咬了没有症状，比如发烧，出疹等症状，就是观察。出症状了开抗生素，有规范的用药指南，不给开多西环素。因为怕影响骨骼和牙齿发育。但是很显然你这个阿莫西林剂量不够，多西环素医生给开的计量比常规大，你可以问他原因。有的医生有自己的想法。
祝福你吧！是挺可怕的，因为这个原因，现在不怎么喜欢户外了。因为我儿子也得过，当时他去牛眼红疹时，从中西部搬来东北部的我们压根不清楚发生了什么，什么也没做。后来他发烧头疼膝盖红肿我们才带他去看了医生，吃了药。现在他反正比较容易感冒啥的。不清楚是不是这个原因。唉，为人父母太难了，很多第一次。
这个我就不懂了 去查一下对你有什么downside吗
downside就是需要在论坛里找到楼主这样的妈，发个帖互相称赞抱团取暖
疹子只是早期症状 不吃药可能也会消失 消失了不代表细菌没了 细菌可能还在体内复制 最后攻击神经脊髓大脑 就不可逆了
早期验血还看不出来 已经牛眼了 也不需要验了 所以是宁可错杀 不能放过 因为放过的代价太惨痛了 风险太大了 其实到二期膝盖疼痛应该还是可以挽救一下的 在后面真的就很难根除了 当年我被咬第一次去看被当过敏 回家越想越不对 也在华人发过贴 然后各种谷歌 还订阅了lyme协会邮件 最终自我判断就是lyme 然后第三周开始吃多西环素21天 我觉得应该是根除了 过了六七年没发现有什么相关症状
讲得很实在 每一句都在点上 也解惑了我对化验的疑惑 感激不尽
狗不是每个月吃heartworm and tick要吗？还要查tick吗？
请问你一个dose剂量是多少？可以换成mg么？感激！
我的专科医并不跟我讨论利弊，他开的处方就是对的，我问他副作用除了牙齿变色还有其他没有?人回答我要吃probiotics；准备取药的时候，药剂师问我老医生有没有说side effect的事，我说他想用probootics，药剂师直接说，这俩不搭嘎的，因此我认为老医生有欺瞒的嫌疑。当然，也可以解释为是善意的。
他跟我云里雾里五倍速说专业术语的时候，我虽然没记住，但是听懂了他的流程和用药的方法，于是请他重复药品名和拼写,病毒名和拼写，老爷子愣一下说，哇，你居然听懂了！
请问益生菌用哪种比较好？ 再请问下，LLMD是什么？ 我有朋友介绍有医生给开herb治疗lyme，请问哪种herb比较好？真可以治疗免疫系统的virus么？ 感激
不发烧是没有抵抗力的表现？可以具体解释一下么？ 我也觉得我家小孩的突发疹子是一种预兆，预示某一天会突发其他疾病，想到这儿我就睡不着觉，无以复加的难过啊。
悬浊液的英文是什么呢？可以请教么 谢谢先
lz你到底在顾虑啥
不用纠结悬浊液 就是小娃吃的液体药 lz你好让人着急 抓重点啊
你是真懂还是在胡说？牛眼和lyme不是必然关系好不好，很多人的lyme根本没有牛眼，很多人有了牛眼也没得lyme
我也没说有必然联系 关键不是等能验到就晚了么 跟你就这么说吧 我当时的疹子最大已经大到 20cm 还好几个疹子看了很多资料 还问了国内医生 可能有些记忆有偏差 不过不影响结论 如果你要等到非要验出来 愿意但这个风险就等呗 那就是你的选择 你的人生
没有后悔，这个帖子里，有很多人在跟我一起着急，有很多人帮我想办法，分享经验，还有人帮我辩解，我内心特别感动，我也慢慢捋清了思路。 我也挺恨自己的，没主意，又怕东怕西，能够引起你的关注awareness也是不错的，越多人越好，为人父母，我是希望所有的孩子都好，永远没有伤害。
非常感谢你，请问您的孩子，现在有没有身体出现其他症状？ 我娃没有hive，我其实已经从红疹看出未来的走向了，我跟UC的医生说，这红疹看起来明天就会边缘和中心分开了，要变成bull's eye了，她坚持说是hive，我说这是lyme 吧？问了至少三次，三次被否定，医生看起来是个年轻的妈妈，感觉是她内心不肯相信这么小的孩子得了这么严重的病。
重点是什么呢？周末去看急诊么？急诊都是CDC guideline的，结果跟之前给娃治疗的手段都是一样的，只能等周一去看专科，听听不同专科医生的意见，我也希望我财富自由，有一群专家等候我的派遣，现实是，发现tick了，我打了整整一天电话都联系不上儿医，连UC当天都关门，，只好换不常去的UC，医生又误诊，这个本来是美国医疗体系的问题，我只能我尽我最大的能力。
现在重点不就是要不要给娃吃doxy么？重点就是doxy的副作用和可能的lyme两害取其轻么？这么多人给你这么多经验和意见，我觉得你更愿意相信那些吃了些阿莫西林就好的例子。我们也不是医生，也没见过你家娃到底什么情况。老医生的意见你觉得不妥，在网上寻求和你差不多的情况，来寻求心理安慰么？如果阿莫西林就那么好用，大人为啥不第一时间光吃阿莫西林而是多西环素？不可否认多西环素的副作用。问题还是回到了，你愿意担哪种风险。
美国医疗体系内的你觉得不妥，找了个体系外的也觉得不妥。我真的也希望你家娃吃了阿莫西林好了。我只能跟你说要是我的娃，我应该就给多西环素了。ps我家娃还有俩月五岁，和你家娃差不多大。
这么多人，有小孩子的经验可取么？小孩子和大人不一样的。每个人对病毒的反应也是不一样的，病毒发作的时机也是不同的,谢谢你的关心。我只是想告诉你，不管我们心里多么着急，我真的什么都做不了。医生不上班。
哎 你到现在还没搞清楚 是细菌 不是病毒 不然什么抗生素都没用 希望你再次看过专科之后能做个不后悔的决定吧 祝你好运
谢谢！🙏🙏
虽然我可能会做出不同选择 不过我懂你的心情 别太揪心 就算娃现在是lyme 还不算晚 以前住波士顿中招的人很多 我知道有膝盖出问题才发觉是莱姆 才治疗 应该也都好了
“药剂师直接说，这俩不搭嘎的，” 这药剂师才不靠谱吧。平常人都知道吃抗生素会导致菌群失衡所以要补益生菌。非常有关系。 LZ你是对老医生的偏见和不信任先入为主，在药剂师和他有分歧的时候盲目信任药剂师。药剂师又不是医生怎么知道医生的权衡。有副作用但为了治后果难以承受的病也得吃啊。估计医生已经跟你说了副作用，你没听懂，再问的时候医生就不重复了直接告诉你采取的措施。听不明白却说医生欺瞒。医生欺瞒你有好处拿么。
重点是马上取药吃药啊LZ！周末药房开门。 LZ有医生的诊断开药，偏不相信，一定要去看能够给出支持自己判断的医生。无语🙄 为你家孩子难过。。。
药房开门，LZ你还有啥借口
lz肯独立思考一下药物副作用不愿意盲目听医生的，你有什么好难过的？ 要是吃毒药吃出了问题，不论你还是开药的医生，肯定一点不会难过。
两害相权取其轻的道理不懂吗。是药三分毒，难道你从不吃药？ 帖子里很多人说了如果是自己的孩子会吃药。 不过会这样决定的人也不会一步步错误耽误到现在。 被咬了不看医生，有牛眼还继续吃低剂量抗生素。。。都是LZ独立思考决定的结果啊。一个人的决定判断一般是比较consistent的
就是娃的阿莫西林。因为发现的早也没出现症状，反正我们是宁愿吃药也不想冒莱姆病的风险。你这个已经过这么久了该吃就吃。又不是长期大剂量怕什么。个人意见啊。
有很多人问，我就都写在这里吧。LLMD就是lyme literature Medicine doctors 检测比较灵敏的有VIBRANT WELLNESS, TLAB, IGENEX,还有就是LIVE BLOOD DARK FIELD，就是指尖血直接放在显微镜下面看，有经验的医生能看到各种不同的pathogens. I have to write in English to articulate it better, so use google translator for Chinese reading. Lyme virus growth cycle is 14 days, some coinfections grow new ones each 24 hours, this is why CDC guide line is 14 days of doxycycline for fresh bite, some doctors think need two to 3 rounds of 14 days to keep them in check. The key is to start as early as you can and finish the full dosage. If you feel this is bad, you will feel you are in hell once it becomes chronical, because the cdc not only does not recognize the chronical Lyme decease, there is no funding or study for new medicine for this, so all the drugs are used are based on animal medicine study, and by repurpose the old drugs, most drugs are for TB(肺结核)， high dose and many with black box warnings. Only few LLMD accept insurance . There are two very active LLMDs, one has a website, he always update the newest studies from other doctors. Marty Ross, he already stopped seeing patience, only do doctor consultation: https://www.treatlyme.net/ The other nation wide known doctor is Dr. Richard Horowitz , he is known for his high dose dapsone protocal. https://www.lymedisease.org/high-dose-dapsone-chronic-lyme/ Especially for busting the biofilms with many long term patience, but this is not everyone can tolerate, half of the patience need drop out, we dropped out after one day dose, it is very scary. The other effective method is insulin potentiated IV, use insulin to lower blood sugar level to open the cells to get the medicines in to kill. Very expensive, also has limitations. Many LLMD does not treat kids under 10 years old or weight under 100 lbs, so your chances to find a good doctor is very limited. There are also homeopathy or CBT (Lyme stop) as alternative treatments, especially for kids, using no drugs, it is long and only effective 85%, maybe lower. If for herbs, the best herbalist is Steven Buhner, he has books for Lyme and coinfection, it is very informative to read , for you to understand what it is and the challenges, all herb success rate reported is 75% or lower, and you will need stick to it, not cheap either. By the way ,he passed away last year, has someone kindly migrant his website and saved all his online QA answers, you will need dig to find out the link. I will post once I have it, can not find it anymore. What else? If you are in northeast region, there is a new strain of Babesia detected Babesia O. , it take a very long time to kill. https://igenex.com/tick-talk/babesia-what-you-need-to-know/ The last is what to take while you are on antibiotics . 1. Probiotics , to prevent c-diff you will need Saccharomyces boulardii broad spectrum probiotics: MegaSpore is a good one, or VISBIOME---this one need to be refrigerated, so you either get from any local store or use the fasted shipping, they do put in a icebag, but you know the heat. 2. Liver protection liposomal glutathione is often recommended, also milk thistle. for young child, you may want to choose the liquid version with no alcohols in it.
I totally can understand your struggle, it is really hard choices, no need to blame yourself for anything, block all the negatives and just get more knowledge on this and make your best knowledge decision for the best of your kid. Nobody else will care your kid more than you do. So wish all the best.
ａｄｄ ： it is bacterio, not virus. https://www.treatlyme.net/guide/antibiotics-for-acute-tick-bites follow this instead of CDC, you will be better off. These are all actively treating Lyme doctors guildlines: https://www.ilads.org/patient-care/ilads-treatment-guidelines/
你楼上说得对，楼主独立思考，别人就不要跟着着急了，自己的心理健康要紧
孩子有这样的妈，这次没事下次也会出事的，你又不认识他们，帮不到的，都是命运
那啥限制了想象力啊！
要么极大计量把问题解决，要么就是赌一把，比较小剂量赌它足够杀死所有衣原体。你赌吧。换我，绝对赌大剂量。杀不干净，可以潜伏N年复发。
Yes, it is bacterio, not virus. https://www.treatlyme.net/guide/antibiotics-for-acute-tick-bites follow this instead of CDC, you will be better off. These are all actively treating Lyme doctors guildlines: https://www.ilads.org/patient-care/ilads-treatment-guidelines/
这楼里大量100%信任cdc的人，祝你们一生平安
I copy the page here: https://www.ilads.org/patient-care/ilads-treatment-guidelines/
Evidence Assessments and Guideline Recommendations in Lyme Disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease Daniel J. Cameron, MD MPH; Lorraine B. Johnson, JD; Elizabeth L. Maloney, MD
The 2014 ILADS Treatment Guidelines address three clinical questions – the usefulness of antibiotic prophylaxis for known tick bites, the effectiveness of erythema migrans treatment, and the role of antibiotic re-treatment in patients with persistent manifestations of Lyme disease. Evidence Assessment Grading of Recommendations Assessment, Development and Evaluation-based (GRADE) analyses found the evidence regarding these scenarios was of very low quality due to limitations in trial designs, imprecise findings, outcome inconsistencies and non-generalizability of trial findings. Additionally, reported outcomes were artificially high in some cases while in others significant treatment successes were minimized. It is impossible to state a meaningful success rate for the prevention of Lyme disease by a single 200 mg dose of doxycycline because this regimen is based on a single human trial that utilized an inadequate observation period and an unvalidated surrogate end point. In animal studies, the efficacy of single dose doxycycline was <50%. Success rates for treatment of an EM rash were unacceptably low, ranging from 52.2 to 84.4% for regimens that used 20 or fewer days of azithromycin, cefuroxime, doxycycline or amoxicillin/phenoxymethylpenicillin (rates were based on patient-centered outcome definitions and conservative longitudinal data methodology). In a well-designed trial of antibiotic retreatment in patients with severe fatigue, 64% in the treatment arm obtained a clinically significant and sustained benefit from additional antibiotic therapy. Treatment Guidelines The optimal treatment regimen for the management of known tick bites, EM rashes and persistent disease has not yet been determined. Accordingly, it is too early to standardize restrictive protocols. However, ILADS does make recommendations for each of these clinical situations ILADS recommends against the use of a single 200 mg dose of doxycycline for the prevention of Lyme disease. Not only is it unlikely to be highly efficacious, in the human trial failed therapy led to a seronegative disease state. Based on animal studies, ILADS recommends that known blacklegged tick bites be treated with 20 days of doxycycline (barring any contraindications). Given the low success rates in trials treating EM rashes for 20 or fewer days, ILADS recommends that patients receive 4-6 weeks of doxycycline, amoxicillin or cefuroxime. A minimum of 21 days of azithromycin is also acceptable, especially in Europe. All patients should be reassessed at the end of their initial therapy and, when necessary, antibiotic therapy should be extended. ILADS recommends that patients with persistent symptoms and signs of Lyme disease be evaluated for other potential causes before instituting additional antibiotic therapy. ILADS recommends antibiotic retreatment when a chronic Lyme infection is judged to be a possible cause of the ongoing manifestations and the patient has an impaired quality of life. Clinical Judgment and Shared Decision-Making Given the number of clinical variables that must be managed and the heterogeneity within the patient population, clinical judgment is crucial to the provision of patient-centered care. Based on the GRADE model, ILADS recommends that patient goals and values regarding treatment options be identified and strongly considered during a shared decision-making process. Reconciling Divergent Guidelines Conflicting guidelines most often result when evidence is weak; when developers differ in their underlying values, approach to evidence reviews, synthesis or interpretation; and/or when developers have varying assumptions about intervention benefits and harms. The differences by clinical situation between the ILADS and IDSA treatment recommendations are reconciled in Supplementary Appendix I. Download ILADS’ 2014 Evidence-Based Treatment Guidelines
Additional Learning Opportunities for Medical Providers ILADS Lyme Disease Fundamentals Course is a full-day seminar that provides an in-depth examination of the basic science, trial and clinical experience evidence pertaining to the diagnosis and treatment of patients infected with Lyme and other tick-borne diseases. This course is a prerequisite to participating in the ILADS Physician Training Program. Our sister organization, the International Lyme and Associated Diseases Education Foundation (ILADEF) offers a unique training program to foster excellence in care for Lyme disease patients. The mentorship program, lasting one to two weeks, places physician participants in the offices of ILADS experts where they learn how to evaluate and treat patients for Lyme and other tick-borne diseases. The program is available to clinicians holding either an MD, DO, ND or PA degree and who have completed and successfully passed the Lyme Disease Fundamentals course.
LZ如果想借鉴其他孩子吃阿莫西林治好了的例子，一定要看看那些例子里有没有被耽误治疗耽误了很久，是不是跟你家情况可比。否则借鉴没意义
不是不走保险，而是某些疗法保险不cover。
我娃5月时有天被我看到耳朵上有只tick，去了urgent care，医生拔下来后说看起来还没有吸血，但因为我们也不能确定到底在耳朵上多久了，还是开了一颗四环素预防。 然后很巧的第二天我娃就发烧了，去了儿医那儿说明情况，儿医说时间离得太近了应该和tick没关系，但为了保险起见还是开了十四天阿莫西林。 从那时到现在so far没看到出现什么症状，准备什么时候再去验个血确认一下。
说实话我觉得人回答吃益生菌没有大问题 你不是问人家还有啥副作用吗 人家直接跳过了肠道菌群失衡这个副作用 给你副作用的解决办法 因为这个副作用是可以解决的 而不像牙齿变色那个 他也没有办法预防 所以逻辑上说他这么回答并非答非所问
我小时候老生病 吃了很多四环素 那时候四环素还没有被禁用 现在也好好的 牙齿稍稍有一点深 但是基本看不出来
吃了药还是有可能得。 我认识的人就有按月用药，结果体检一测还是Lyme +, 后面又马上测了一个c6， 结果也超标了。可能是有一些虫子有抗药性。 虽然她的狗完全没症状，还是吃了28天的doxy. 不过治疗方案看了两个医生有冲突，她想开6周的，结果医生一只肯开4周。 看了医生2， 那个医生的意思是既然吃都吃了，就吃完28天吧，他的意思是查个尿，没问题的话根本不用吃药