I second what other users have mentioned about looking into hyper mobility spectrum disorder/ehlers danlos but also, I am in the same boat with joint pain (and hypermobility) and normal blood work and my dr is still doing quite a bit, you shouldn’t be written off simply because of normal tests. A number of rheumatological conditions (I’m not familiar with others sorry) can be seronegative, meaning no evidence in the blood. I would push to see (another) rheumatologist if you can (especially if you’re also experiencing stiffness, swelling, joint redness, etc), mine has had me redo my blood work after about 5 months and has prescribed me prescription NSAIDs in the time it’s taken us to narrow down on potential causes (and hopefully then we’ll have better treatment options) so don’t take a round or two of blood work as definitive!!
No, not at all. A Lyme test is specialized and must be specifically order by your doctor. Your symptoms sound exactly like mine were. Years of horrific joint pain, thousands of milligrams of over-the-counter pain medications....well, you know the story. I never had a "Bulls-Eye" rash, never saw a Deer Tick in my life and indeed, had no reason to have Lyme even cross my mind. Until I woke up in ICU. Turns out I fainted in a business meeting with clients. My husband was by my bedside, all kinds of tubes running out of me, blah, blah, blah..... The doctor's were mystified. I was on massive doses of IV Morphine and still in agony. Finally, a wonderful little Infectious Disease doctor was called in. Within days, the blood tests he ordered showed massive levels of Lyme in my system. I was gob-smacked, and the fact that most doctor's never even think about it is incredible. You absolutely need a blood test for Lyme and other similar bacterium. Please get this done asap as the sooner you know, the sooner it can be treated or ruled out.
谢谢建议！查过尿酸等都是正常的。孩子比较喜欢吃糖，这方面确实没有克制。
谢谢建议！这个确实是个新思路，我去研究一下。
我家孩子也没有血液异常指标，所以被医生排除了强直性脊柱炎。看来这个血液测试也不一定总是准的，我可以让孩子吃点消炎药试试。谢谢分享！祝你生活幸福！
请问一下，医生怎么确诊的？
这些都是治标不治本，autoimmune , 慢性病，不明原因疼痛，癌症，很多都是由心理冰山冲突引起，大脑为了屏蔽痛苦的感受会直接影响免疫系统造成多种生理症状，症状是真的不是想象，但症状到一定程度就必须要医药干预，但最重要的是要找到心理的根源。
谢谢建议！过敏科确实可以问一下，我也怀疑可能是免疫系统的问题。
谢谢分享，转发给孩子了。
医生看血液报告说不是的，但是根据其他人的分享，这个血液报告也不一定准
公共的。
我看不出来孩子有焦虑抑郁情绪，孩子自己也没说有，但是潜意识里的东西，自己也不一定认识得到。前面有网友介绍TMS, 我也打算学习一下
不瘦，有肉
Multiple sclerosis?
感觉那个方向不是很靠谱，不如改变孩子饮食更管用。
Yeah this too.
auto immune? 首先必须把过敏原都戒掉。糖，玉米，黄豆，ｍｉｌｋ， ｇｌｕｔｏｎ统统戒掉然后再看看是不是好一些。
Your symptoms sound exactly like mine were. Years of horrific joint pain, thousands of milligrams of over-the-counter pain medications....well, you know the story. I never had a "Bulls-Eye" rash, never saw a Deer Tick in my life and indeed, had no reason to have Lyme even cross my mind. Until I woke up in ICU. Turns out I fainted in a business meeting with clients. My husband was by my bedside, all kinds of tubes running out of me, blah, blah, blah.....
The doctor's were mystified. I was on massive doses of IV Morphine and still in agony. Finally, a wonderful little Infectious Disease doctor was called in. Within days, the blood tests he ordered showed massive levels of Lyme in my system. I was gob-smacked, and the fact that most doctor's never even think about it is incredible.
You absolutely need a blood test for Lyme and other similar bacterium. Please get this done asap as the sooner you know, the sooner it can be treated or ruled out.
红斑狼疮？应该看免疫科。。
谢谢你的辛苦回复！我不记得孩子什么时候开始喊关节痛的，有些年了。我对风湿热了解不多，会继续学习一下。
好像症状对不上，不过谢谢你的建议！
对的，要排除一下这个lyme病
谢谢你的建议！查过的，是阴性。xray没有照过，下次会咨询医生。
的确没有想过，下次会咨询医生。谢谢建议！
饮食是个老大难，太多东西过敏了，我会继续提醒孩子的。谢谢你的建议！
谢谢建议！我们没有试过，可以去问一下。主要想先找到原因。
都是对哪些食物过敏呢？
好的，已经跟孩子说了。疑难杂症确实要靠自己，还有运气，得能找到碰巧有这些经验的医生。
我觉得这个思路肯定有帮助，孩子已经避免了所有血液能检测到的过敏源，ige水平还是超标。这个可能也是原因
非常感谢你的分享！我很认真的读了你的回复和建议，并一一记在心上。我会适时咨询医生，争取早点找出病因。也祝你身体健康！一切顺利！
倒是没有穿得少。不过谢谢你的思路，对其他看帖的人也是个提醒。
谢谢建议！有几个网友都提到了，我才知道还有这个可能
好的，记住了！
除了常见过敏的孩子都过敏，甚至水果和部分蔬菜也过敏。食物还好一点，可以不吃，但是环境过敏确实有点防不胜防
对，感恩！
没关系，祝好！
只有关节痛，类风湿免疫科看过了，查不出原因。但网友说血液检测不一定准
嗯，继续严管严控
谢谢建议！看过的，两边比较的确国内医生查的项目更多更全。
全身关节的话大概率还是风湿疾病，可以考虑换一个风湿病专家，风湿病的种类很多
请问血液指标查不出来，后来是如何确诊的？
不幸的是很多这些病都是manage symptoms 没有太好的cure 期望他/她的symptoms只是轻微的 不严重影响生活
还有可能是心理因素。心理问题会外化成躯体反应。
或许是多方面因素，心理生理都有
请你不要瞎说 谢谢
对，类风湿免疫科还会继续看
谢谢，我去了解一下！
好的，谢谢建议！
谢谢分享！下次去要求拍片子看看
谢谢建议！我以前也觉得有肠漏症这个可能，但是孩子说没有科学依据，不愿意去了解。希望科学界能有多一些的研究。
有一定比例的人群有内风湿或者强直性脊柱炎，是没有带病指标的，尤其是女性。而且病情进展极其缓慢，发炎轻微，核磁共振也捕捉不到任何炎症。但是关节每天都在发炎，用哪哪疼。另外骨质疏松也会导致全身痛。我的医生说像我这种情况，美国也最近10年才开始认为我们这种没指标的也能确诊这类免疫疾病。
全身肯定不是痛风