回复 1楼thinkant的帖子 不懂，但是可以在这个网站查 https://rarediseases.org/rare-diseases/beckwith-wiedemann-syndrome/ 网页末尾有探索性治疗相关信息 Investigational Therapies A Beckwith-Wiedemann Registry was established to coordinate research efforts into Beckwith-Wiedemann syndrome. For more information on the Registry, contact: Jennifer M. Kalish, MD, PhD Attending Physician Division of Human Genetics The Children’s Hospital of Philadelphia 3501 Civic Center Boulevard Colket Translational Research Building, Rm 3028 Philadelphia, PA 19104 Phone: 215-590-1278 Fax: 215-590-3298 E-mail: [email protected] Website: https://www.research.chop.edu/bws-registry Information on current clinical trials is posted on the Internet at www.clinicaltrials.gov. All studies receiving U.S. government funding, and some supported by private industry, are posted on this government web site. For information about clinical trials being conducted at the NIH Clinical Center in Bethesda, MD, contact the NIH Patient Recruitment Office: Toll-free: (800) 411-1222 TTY: (866) 411-1010 Email: [email protected] Some current clinical trials also are posted on the following page on the NORD website: https://rarediseases.org/for-patients-and-families/information-resources/news-patient-recruitment/ For information about clinical trials sponsored by private sources, in the main, contact: www.centerwatch.com For more information about clinical trials conducted in Europe, contact: https://www.clinicaltrialsregister.eu/
不懂，但是可以在这个网站查 https://rarediseases.org/rare-diseases/beckwith-wiedemann-syndrome/ 网页末尾有探索性治疗相关信息 Investigational Therapies A Beckwith-Wiedemann Registry was established to coordinate research efforts into Beckwith-Wiedemann syndrome. For more information on the Registry, contact: Jennifer M. Kalish, MD, PhD Attending Physician Division of Human Genetics The Children’s Hospital of Philadelphia 3501 Civic Center Boulevard Colket Translational Research Building, Rm 3028 Philadelphia, PA 19104 Phone: 215-590-1278 Fax: 215-590-3298 E-mail: [email protected] Website: https://www.research.chop.edu/bws-registry Information on current clinical trials is posted on the Internet at www.clinicaltrials.gov. All studies receiving U.S. government funding, and some supported by private industry, are posted on this government web site. For information about clinical trials being conducted at the NIH Clinical Center in Bethesda, MD, contact the NIH Patient Recruitment Office: Toll-free: (800) 411-1222 TTY: (866) 411-1010 Email: [email protected] Some current clinical trials also are posted on the following page on the NORD website: https://rarediseases.org/for-patients-and-families/information-resources/news-patient-recruitment/ For information about clinical trials sponsored by private sources, in the main, contact: www.centerwatch.com For more information about clinical trials conducted in Europe, contact: https://www.clinicaltrialsregister.eu/
多谢了！找到一些很有用的信息。
链接打不开？
http://rs.yiigle.com/CN421158202111/1343073.htm
可以打开！谢谢fish！