You can get all record from hospital Medical record department. If you want someone to help look at the CT, you need to ask for a copy of the imaging on the disc.
回复 1楼mima1的帖子 在美国， 相信医生说明你是弱智。 而如果不信医生， 医院能弄死你。 医院挣钱第一， 而华人地位决定了， 肯定用来挣钱。 自己琢磨这来吧。 估计你也能看得懂， 给你些信息。 Homepage – SCH Care On April 9, 2013, following Jianhua’s primary care physician’s direction on his unexpected weight gain after a fever, his parents took their 7-month-old son to the Seattle Children''s Hospitals'' (SCH) emergency department (ED). The ED doctors kept Jianhua for overnight observation after an ultrasound confirmed his liver was normal; sadly, they neglected to take care of his nutrition. Around 3:00am on the 10th, his blood work showed acute liver failure (ALF), but the ED did nothing but wait; near 6:00am, a critically low glucose, hypoglycemia, happened. Overnight hypoglycemia indicates a fatty acid oxidation deficiency (FAOD). The ED rushed Jianhua to the pediatric intensive care unit (PICU); however, both the ED and the PICU failed to follow the procedure to order the required labs for this crisis. By the morning of the 12th, another critical hypoglycemia, 33 mg/dL (SCH normal range > 60 mg/dL) happened again because they missed his glucose monitoring. This time, they did take samples for the required labs - blood for acylcarnitine profiles and urine for organic acids; doctors can use them to differentiate which fatty acid oxidation enzyme causes the hypoglycemia. Wickedly, when the PICU director was in charge, they replaced the blood specimen for the lab with one obtained 5 hours after the crisis to hide Jianhua''s metabolic condition, and then continued giving him a fatty formula to poison him over weekend. The PICU did nothing as Jianhua’s blood ammonia increased to 90 mcmol/L (SCH normal range < 33 mcmol/L) by 8:00pm on Friday. They also stopped requesting newborn screening (NBS) data, which are acylcarnitine profiles using dried blood spots from a newborn''s heel after overnight stress, to hide the diagnosis. While the PICU director was in charge of Jianhua’s care, he never spoke a single word to the parents. The liver specialists took over Jianhua’s care from the PICU after his parents, against the PICU director''s direction, let the nurse replace Jianhua’s formula with glucose when they observed his blood ammonia increasing to toxic levels. The doctors denied FAOD and said a liver biopsy would reveal the etiology, or cause, of his injuries. But when they saw the severity of his steatosis, which is fat infiltration in the liver, caused by his acute starvation and FAOD, the biochemistry lab immediately cancelled the urine organic acids lab ordered days before. The doctors did not follow the normal procedure to deliver a pathology report on the 18th, the biopsy surgery date; instead, they used a new pathologist to create another report, claiming that Jianhua had scant steatosis and established injuries instead of new ones. They did not treat his recoverable acute injuries; instead, they tried two diets, one formula only, and the other with carbohydrate. A high carbohydrate, low fat diet is the standard diet for FAOD patients, but they prescribed the formula-only diet after they observed that it would gradually increase poisonous blood ammonia level. They put Jianhua on the liver transplant waiting list, discharged him, and told his parents that he would come back for a liver transplant in a month. But that didn’t happen. After the discharge, his parents added carbohydrates to Jianhua’s diet and his labs improved. However, he was losing weight (which was normal for victims of acute starvation, but his parents did not know that) so the SCH liver specialists took advantage of the opportunity and convinced his parents to use the prescribed formula only, without additional carbohydrates. Slowly, Jianhua was getting weaker and weaker. The parents realized his deteriorating health must be related to fat metabolism when they had to rush him back to the SCH ED after increasing the proportion of fat in his diet. In April 2014, the parents showed a SCH metabolic specialist the highly elevated C16, 2.46 mcmol/L (SCH normal range <0.24 mcmol/L) in Jianhua’s NBS, which indicates a defect in his enzymes for transporting fatty acid into the mitochondria. This specialist also confirmed that Jianhua had abnormal elevation in an early urine organic acids lab, which indicates a defect in fat oxidation enzymes; but he denied FAOD and directed the parents to stop feeding Jianhua low fat diets. The family realized that SCH had no mercy on their son’s life and decided to leave. During the SCH liver transplant team’s care, they were continuously monitoring his blood ammonia levels. No other hospitals measured it. Homepage – Medical Kidnapping In October 2014, the Washington State Child Protective Services (CPS) received a report from a SCH doctor alleging that Jianhua’s parents had abused or neglected their child. In her first house visit, the social worker prohibited Jianhua’s parents from taking their son to seek medical opinions outside of Washington State. The parents asked if CPS could investigate SCH’s crimes. She told them the CPS would only take cases filed by institutes, such as hospitals and schools. To investigate a hospital, they would have to hire a lawyer by themselves. The parents contacted almost all medical malpractice firms in Washington, but no one would take the case without a FAOD diagnosis - they said the investigation would be prohibitively expensive and people wouldn’t sympathize with Jianhua since he doesn’t have visible injuries. The CPS found SCH’s allegation unfounded; thus, the SCH’s second kidnapping attempt failed. The first medical kidnapping was putting Jianhua on the liver transplant waiting list to keep him under SCH’s control – this succeeded. If SCH’s second kidnapping had succeeded, then a foster family would follow the SCH doctors’ directions, giving Jianhua a “normal diet”, which would contain too much fat for Jianhua and poison him. Many children are murdered by the American healthcare system through the CPS in the name of protection. The doctors file claims against the victims’ parents, the CPS takes the children away and sends them to foster care, their parents cannot sue the hospitals for losing parental rights, and the innocent children will likely die mysteriously. These evil crimes start from the doctors: instead of using their expertise to care, they poison, murder, and medically kidnap patients, including infants, who cannot even speak a single word. A 40 years study shows that the evidence base for association of disability with abuse and neglect is weak; however, the percentage of foster children with significant health needs is more than 2x that of children in the general population according to Pediatrics. Without doctors’ false allegations, there would not be so many children with health issues torn from their parents. At any given time, there are around 424,000 children under foster care in US; about half live in nonrelative foster care. 14% of the children in foster care will languish there for three or more years; and their death rate is 6.9 times that of those in parental care. The federal and state governments deliberately ignore these crimes; they will prosecute anyone causing hospitals monetary loss, even to death, i.e. former SCH nurse, Kimberly Hiatt. Some investigators were even murdered. In 2010, former Georgia senator Nancy Schaefer was assassinated; before her death she published the report “The Corrupt Business of Child Protective Services”. Former firefighter and federal investigator, Bill Bowen, who worked closely with Schaefer, was murdered as well. The trailer of his documentary film “Innocence Destroyed” was released on YouTube a year before. The American media will not report these crimes. They are waiting, just like the hospitals. If the victim dies, they will jump out to defame the victim’s family. They will cover up the murders, like Nancy Schaefer’s death. In the span of nearly ten years, no media has been willing to report Jianhua and his family’s suffering. Instead, people with special interests in healthcare use media propaganda to paint the CPS as a scapegoat for medical kidnapping and the foster families as those profiting from the victims. The truth is that every medical kidnapping starts in a hospital and the hospital is ultimately profiting the most, collecting Medicaid or insurance money from every crime they commit. Whenever a mistake is made or negligence occurs in a hospital, a nurse or doctor typically notices it first, as in Jianhua’s case. After the SCH doctors learned of their mistake, none of the SCH medical directors attempted to treat Jianhua; instead, they directed crimes, poisonings, kidnappings and murders to evade liability.
Homepage – Nationwide coverups On April 30, 2013, 12 days after his surgical pathology lab, GeneDX, a genetic testing company, reported Jianhua’s signature variant, ACAD9:c.988A>C, which was novel in the USA, to the NCBI ClinVar of National Institute of Health (NIH) as benign. SCH used the publicly available database ClinVar to make a diagnosis for Jianhua impossible. Through Best Doctors, doctors of UCSF Benioff Children’s GI department, Massachusetts General Hospital’s pathology department, and Ann & Robert H. Lurie Children’s Hospital of Chicago’s metabolic department, reviewed Jianhua’s medical record and NBS. They could not determine an etiology for his liver injuries and even claimed that his NBS was normal even though his C16 is about 10 times normal maximums. Doctors from the Children’s Hospital of Pittsburgh of UPMC refused to do an ACAD9 enzyme activity test and denied that Jianhua had FAOD on behalf of the pediatrics and genetics department, claiming that Jianhua’s NBS is abnormal and they only test patients with normal NBS values. Cincinnati Children''s Hospital Medical Center Molecular Genetics lab only reported the ACAD9:c.988A>C variant although they found many more. Case Western Reserve University CIDEM lab deliberately used a wrong reference in the enzyme activity test to hide Jianhua’s CPT2 deficiency. The ACAD9 and CPT2 genes control the production of 2 of the 19 known fat metabolism enzymes. The doctors were using one FAOD to deny the other, using their knowledge and control over diagnoses to cheat Jianhua’s family. Baylor College of Medicine Medical Genetics lab even emphasized an auto-immune variant in Jianhua’s whole exome sequencing. This variant could easily be used as an excuse if Jianhua were to unfortunately die after a liver transplant—deaths from organ rejections are well known, after all. All trust the family had in the US healthcare system vanished. Some courageous doctors in CCHMC did extensive screening tests, and the results show that Jianhua’s immune system is normal and that he has FAOD; however, their work could not lead to an FAOD diagnosis because of the overwhelming fraudulent evidence mentioned above. Even the CCHMC pathologist left after she simply asked for Jianhua’s NBS.
Our claims Without the diagnoses, or attorney’s help, the family contacted SCH in 2015 for compensation, offering SCH the right to explain what caused the injuries in exchange. SCH hired Sedgwick Claims Management Services to do an investigation. Sedgwick denied SCH’s responsibility for the injuries, the family’s claims, and the family’s request for the 3rd party investigation materials, stating that the materials belong to SCH, who paid them. Jianhua suffers permanent injuries to his liver, pancreas, heart, and brain from the negligence and poisoning, and he receives no compensation because of the cover-ups. He follows a special diet; he has frequent skin peeling on his hands and feet, eye infections and styes often, headaches every day, sickness very often, and he experiences metabolic decompensation once in a while. These have an impact not only on his life, but also on the lives of his family members. The whole family worked to improve his physical and mental health, which took so much effort that his mother had a miscarriage in 2014, and life was so difficult that his grandma returned to China a year later. He was so weak that Washington’s lack of sunshine threatened his life, making him sick throughout the winter and spring. In 2019, Jianhua and his family relocated to California. Now, the family is finally ready to ask, again, that the federal and Washington, Ohio, Pennsylvania, and Texas state governments jointly investigate the negligence, poisoning, attempted murder, medical kidnapping and nationwide coverup. They ask for an investigation to address all aspects of Jianhua’s case, particularly the questions below: 1. Test and report Jianhua’s CPT2 and ACAD9 enzyme activities at 37°C and 41°C and compare them to that of a normal person. 2. How did Jianhua’s organs get injured, especially his liver, pancreas, heart, and brain? How will these injuries affect his diet, extremities, activities, and life quality and expectancy? 3. The SCH liver transplant team prescribed a poisonous diet for him, hid his diagnosis, and planned a liver transplantation in 30 days. Please investigate and punish this crime. 4. The SCH PICU replaced the blood specimen in Jianhua’s acylcarnitine profile, stopped the request for his NBS, and then continued giving him a fatty formula to poison him. Please investigate and punish this and other similar crimes that happened in the SCH PICU. 5. The SCH surgical pathology lab must release all forms of medical materials, including planning, personnel, the use of his two liver tissues, access records, notes, etc., instead of just a manipulated, late report. Please investigate and punish this organized crime. 6. The SCH biochemistry lab used a made-up MCT to misinterpret a urine organic acid (UOA) lab and cancelled another one’s results right after they saw the biopsy. Please investigate and punish this crime. 7. Doctors of the Children’s Hospital of Pittsburg denied an FAOD possibility on behalf of the department, and refused to do the ACAD9 enzyme test. They claimed that the test was unnecessary even though they knew Jianhua’s NBS values were abnormal. Please investigate and punish this intentional cover-up. 8. Case Western Reserve University lab used a wrong reference to deny Jianhua’s CPT2 deficiency. They refused to change their conclusion even after correcting the error. Please investigate this intentional cover-up. 9. Both Baylor College of Medicine and CCHMC sequenced Jianhua’s ACAD9 and CPT2 genes. They did not report the well-known CPT2:c.1102G>A variant, but only reported the patient signature ACAD9:c.988A>C variant while hiding many other variants. How can clinical labs abuse the NIH ClinVar database, using it not to help diagnose him, but to mark his variant as “benign” when it matches his symptoms? Please investigate and punish these systematical crimes. 10. The family signed with SCH liver experts for a pediatric acute liver failure (PALF) study using Jianhua’s biological and genetic materials. Please release the outcome of the research based on his specimens, did they use his biological material for the GeneDX genetic test? 11. Release Sedgwick investigation materials to the public, especially the questions they asked and how the professionals answered the questions. The public will judge if hiding the evidence of hospitals’ killing infant patients has become a profitable business in the United States. After the investigation, the family asks that the federal and state governments grant the family a statute of limitations (the deadline for filing a lawsuit) long enough to file against any entities that committed crimes, helped the coverups, or failed their responsibilities. Withholding diagnoses and covering things up are crimes, you cannot use crimes to conceal crimes to abuse the statute of limitations. Furthermore, many doctors’ insurance companies do not cover injuries that doctors cause intentionally. Such insurance rules are fundamentally evil, sacrificing the victims to protect the criminals, and unfortunately are a cornerstone of American healthcare. The family asks for doctors’ insurance companies to stop using these loopholes to deny victims their rightful compensation. The government has failed American families badly. The US child mortality rate is 76 percent greater for infants and 57 percent greater for children ages 1-19 than that of other wealthy nations despite greater per capita spending. Over a fifty-year study period, over 600,000 deaths could have been avoided – the rate has now increased to about 20,000 preventable deaths per year, half of which are infants. If the government won’t investigate thoroughly, we don’t see the necessity of a government like that. Nancy Schaefer, Bill Bowen, and many innocent lives would have died in vain; it is a crime against humanity, a success for the criminals, and the criminals will carry on.
回复 1楼mima1的帖子 在美国， 相信医生说明你是弱智。 而如果不信医生， 医院能弄死你。 医院挣钱第一， 而华人地位决定了， 肯定用来挣钱。 自己琢磨这来吧。 估计你也能看得懂， 给你些信息。 Homepage – SCH Care On April 9, 2013, following Jianhua’s primary care physician’s direction on his unexpected weight gain after a fever, his parents took their 7-month-old son to the Seattle Children''s Hospitals'' (SCH) emergency department (ED). The ED doctors kept Jianhua for overnight observation after an ultrasound confirmed his liver was normal; sadly, they neglected to take care of his nutrition. Around 3:00am on the 10th, his blood work showed acute liver failure (ALF), but the ED did nothing but wait; near 6:00am, a critically low glucose, hypoglycemia, happened. Overnight hypoglycemia indicates a fatty acid oxidation deficiency (FAOD). The ED rushed Jianhua to the pediatric intensive care unit (PICU); however, both the ED and the PICU failed to follow the procedure to order the required labs for this crisis. By the morning of the 12th, another critical hypoglycemia, 33 mg/dL (SCH normal range > 60 mg/dL) happened again because they missed his glucose monitoring. This time, they did take samples for the required labs - blood for acylcarnitine profiles and urine for organic acids; doctors can use them to differentiate which fatty acid oxidation enzyme causes the hypoglycemia. Wickedly, when the PICU director was in charge, they replaced the blood specimen for the lab with one obtained 5 hours after the crisis to hide Jianhua''s metabolic condition, and then continued giving him a fatty formula to poison him over weekend. The PICU did nothing as Jianhua’s blood ammonia increased to 90 mcmol/L (SCH normal range < 33 mcmol/L) by 8:00pm on Friday. They also stopped requesting newborn screening (NBS) data, which are acylcarnitine profiles using dried blood spots from a newborn''s heel after overnight stress, to hide the diagnosis. While the PICU director was in charge of Jianhua’s care, he never spoke a single word to the parents. The liver specialists took over Jianhua’s care from the PICU after his parents, against the PICU director''s direction, let the nurse replace Jianhua’s formula with glucose when they observed his blood ammonia increasing to toxic levels. The doctors denied FAOD and said a liver biopsy would reveal the etiology, or cause, of his injuries. But when they saw the severity of his steatosis, which is fat infiltration in the liver, caused by his acute starvation and FAOD, the biochemistry lab immediately cancelled the urine organic acids lab ordered days before. The doctors did not follow the normal procedure to deliver a pathology report on the 18th, the biopsy surgery date; instead, they used a new pathologist to create another report, claiming that Jianhua had scant steatosis and established injuries instead of new ones. They did not treat his recoverable acute injuries; instead, they tried two diets, one formula only, and the other with carbohydrate. A high carbohydrate, low fat diet is the standard diet for FAOD patients, but they prescribed the formula-only diet after they observed that it would gradually increase poisonous blood ammonia level. They put Jianhua on the liver transplant waiting list, discharged him, and told his parents that he would come back for a liver transplant in a month. But that didn’t happen. After the discharge, his parents added carbohydrates to Jianhua’s diet and his labs improved. However, he was losing weight (which was normal for victims of acute starvation, but his parents did not know that) so the SCH liver specialists took advantage of the opportunity and convinced his parents to use the prescribed formula only, without additional carbohydrates. Slowly, Jianhua was getting weaker and weaker. The parents realized his deteriorating health must be related to fat metabolism when they had to rush him back to the SCH ED after increasing the proportion of fat in his diet. In April 2014, the parents showed a SCH metabolic specialist the highly elevated C16, 2.46 mcmol/L (SCH normal range <0.24 mcmol/L) in Jianhua’s NBS, which indicates a defect in his enzymes for transporting fatty acid into the mitochondria. This specialist also confirmed that Jianhua had abnormal elevation in an early urine organic acids lab, which indicates a defect in fat oxidation enzymes; but he denied FAOD and directed the parents to stop feeding Jianhua low fat diets. The family realized that SCH had no mercy on their son’s life and decided to leave. During the SCH liver transplant team’s care, they were continuously monitoring his blood ammonia levels. No other hospitals measured it. Homepage – Medical Kidnapping In October 2014, the Washington State Child Protective Services (CPS) received a report from a SCH doctor alleging that Jianhua’s parents had abused or neglected their child. In her first house visit, the social worker prohibited Jianhua’s parents from taking their son to seek medical opinions outside of Washington State. The parents asked if CPS could investigate SCH’s crimes. She told them the CPS would only take cases filed by institutes, such as hospitals and schools. To investigate a hospital, they would have to hire a lawyer by themselves. The parents contacted almost all medical malpractice firms in Washington, but no one would take the case without a FAOD diagnosis - they said the investigation would be prohibitively expensive and people wouldn’t sympathize with Jianhua since he doesn’t have visible injuries. The CPS found SCH’s allegation unfounded; thus, the SCH’s second kidnapping attempt failed. The first medical kidnapping was putting Jianhua on the liver transplant waiting list to keep him under SCH’s control – this succeeded. If SCH’s second kidnapping had succeeded, then a foster family would follow the SCH doctors’ directions, giving Jianhua a “normal diet”, which would contain too much fat for Jianhua and poison him. Many children are murdered by the American healthcare system through the CPS in the name of protection. The doctors file claims against the victims’ parents, the CPS takes the children away and sends them to foster care, their parents cannot sue the hospitals for losing parental rights, and the innocent children will likely die mysteriously. These evil crimes start from the doctors: instead of using their expertise to care, they poison, murder, and medically kidnap patients, including infants, who cannot even speak a single word. A 40 years study shows that the evidence base for association of disability with abuse and neglect is weak; however, the percentage of foster children with significant health needs is more than 2x that of children in the general population according to Pediatrics. Without doctors’ false allegations, there would not be so many children with health issues torn from their parents. At any given time, there are around 424,000 children under foster care in US; about half live in nonrelative foster care. 14% of the children in foster care will languish there for three or more years; and their death rate is 6.9 times that of those in parental care. The federal and state governments deliberately ignore these crimes; they will prosecute anyone causing hospitals monetary loss, even to death, i.e. former SCH nurse, Kimberly Hiatt. Some investigators were even murdered. In 2010, former Georgia senator Nancy Schaefer was assassinated; before her death she published the report “The Corrupt Business of Child Protective Services”. Former firefighter and federal investigator, Bill Bowen, who worked closely with Schaefer, was murdered as well. The trailer of his documentary film “Innocence Destroyed” was released on YouTube a year before. The American media will not report these crimes. They are waiting, just like the hospitals. If the victim dies, they will jump out to defame the victim’s family. They will cover up the murders, like Nancy Schaefer’s death. In the span of nearly ten years, no media has been willing to report Jianhua and his family’s suffering. Instead, people with special interests in healthcare use media propaganda to paint the CPS as a scapegoat for medical kidnapping and the foster families as those profiting from the victims. The truth is that every medical kidnapping starts in a hospital and the hospital is ultimately profiting the most, collecting Medicaid or insurance money from every crime they commit. Whenever a mistake is made or negligence occurs in a hospital, a nurse or doctor typically notices it first, as in Jianhua’s case. After the SCH doctors learned of their mistake, none of the SCH medical directors attempted to treat Jianhua; instead, they directed crimes, poisonings, kidnappings and murders to evade liability.
Homepage – Nationwide coverups On April 30, 2013, 12 days after his surgical pathology lab, GeneDX, a genetic testing company, reported Jianhua’s signature variant, ACAD9:c.988A>C, which was novel in the USA, to the NCBI ClinVar of National Institute of Health (NIH) as benign. SCH used the publicly available database ClinVar to make a diagnosis for Jianhua impossible. Through Best Doctors, doctors of UCSF Benioff Children’s GI department, Massachusetts General Hospital’s pathology department, and Ann & Robert H. Lurie Children’s Hospital of Chicago’s metabolic department, reviewed Jianhua’s medical record and NBS. They could not determine an etiology for his liver injuries and even claimed that his NBS was normal even though his C16 is about 10 times normal maximums. Doctors from the Children’s Hospital of Pittsburgh of UPMC refused to do an ACAD9 enzyme activity test and denied that Jianhua had FAOD on behalf of the pediatrics and genetics department, claiming that Jianhua’s NBS is abnormal and they only test patients with normal NBS values. Cincinnati Children''s Hospital Medical Center Molecular Genetics lab only reported the ACAD9:c.988A>C variant although they found many more. Case Western Reserve University CIDEM lab deliberately used a wrong reference in the enzyme activity test to hide Jianhua’s CPT2 deficiency. The ACAD9 and CPT2 genes control the production of 2 of the 19 known fat metabolism enzymes. The doctors were using one FAOD to deny the other, using their knowledge and control over diagnoses to cheat Jianhua’s family. Baylor College of Medicine Medical Genetics lab even emphasized an auto-immune variant in Jianhua’s whole exome sequencing. This variant could easily be used as an excuse if Jianhua were to unfortunately die after a liver transplant—deaths from organ rejections are well known, after all. All trust the family had in the US healthcare system vanished. Some courageous doctors in CCHMC did extensive screening tests, and the results show that Jianhua’s immune system is normal and that he has FAOD; however, their work could not lead to an FAOD diagnosis because of the overwhelming fraudulent evidence mentioned above. Even the CCHMC pathologist left after she simply asked for Jianhua’s NBS.
Our claims Without the diagnoses, or attorney’s help, the family contacted SCH in 2015 for compensation, offering SCH the right to explain what caused the injuries in exchange. SCH hired Sedgwick Claims Management Services to do an investigation. Sedgwick denied SCH’s responsibility for the injuries, the family’s claims, and the family’s request for the 3rd party investigation materials, stating that the materials belong to SCH, who paid them. Jianhua suffers permanent injuries to his liver, pancreas, heart, and brain from the negligence and poisoning, and he receives no compensation because of the cover-ups. He follows a special diet; he has frequent skin peeling on his hands and feet, eye infections and styes often, headaches every day, sickness very often, and he experiences metabolic decompensation once in a while. These have an impact not only on his life, but also on the lives of his family members. The whole family worked to improve his physical and mental health, which took so much effort that his mother had a miscarriage in 2014, and life was so difficult that his grandma returned to China a year later. He was so weak that Washington’s lack of sunshine threatened his life, making him sick throughout the winter and spring. In 2019, Jianhua and his family relocated to California. Now, the family is finally ready to ask, again, that the federal and Washington, Ohio, Pennsylvania, and Texas state governments jointly investigate the negligence, poisoning, attempted murder, medical kidnapping and nationwide coverup. They ask for an investigation to address all aspects of Jianhua’s case, particularly the questions below: 1. Test and report Jianhua’s CPT2 and ACAD9 enzyme activities at 37°C and 41°C and compare them to that of a normal person. 2. How did Jianhua’s organs get injured, especially his liver, pancreas, heart, and brain? How will these injuries affect his diet, extremities, activities, and life quality and expectancy? 3. The SCH liver transplant team prescribed a poisonous diet for him, hid his diagnosis, and planned a liver transplantation in 30 days. Please investigate and punish this crime. 4. The SCH PICU replaced the blood specimen in Jianhua’s acylcarnitine profile, stopped the request for his NBS, and then continued giving him a fatty formula to poison him. Please investigate and punish this and other similar crimes that happened in the SCH PICU. 5. The SCH surgical pathology lab must release all forms of medical materials, including planning, personnel, the use of his two liver tissues, access records, notes, etc., instead of just a manipulated, late report. Please investigate and punish this organized crime. 6. The SCH biochemistry lab used a made-up MCT to misinterpret a urine organic acid (UOA) lab and cancelled another one’s results right after they saw the biopsy. Please investigate and punish this crime. 7. Doctors of the Children’s Hospital of Pittsburg denied an FAOD possibility on behalf of the department, and refused to do the ACAD9 enzyme test. They claimed that the test was unnecessary even though they knew Jianhua’s NBS values were abnormal. Please investigate and punish this intentional cover-up. 8. Case Western Reserve University lab used a wrong reference to deny Jianhua’s CPT2 deficiency. They refused to change their conclusion even after correcting the error. Please investigate this intentional cover-up. 9. Both Baylor College of Medicine and CCHMC sequenced Jianhua’s ACAD9 and CPT2 genes. They did not report the well-known CPT2:c.1102G>A variant, but only reported the patient signature ACAD9:c.988A>C variant while hiding many other variants. How can clinical labs abuse the NIH ClinVar database, using it not to help diagnose him, but to mark his variant as “benign” when it matches his symptoms? Please investigate and punish these systematical crimes. 10. The family signed with SCH liver experts for a pediatric acute liver failure (PALF) study using Jianhua’s biological and genetic materials. Please release the outcome of the research based on his specimens, did they use his biological material for the GeneDX genetic test? 11. Release Sedgwick investigation materials to the public, especially the questions they asked and how the professionals answered the questions. The public will judge if hiding the evidence of hospitals’ killing infant patients has become a profitable business in the United States. After the investigation, the family asks that the federal and state governments grant the family a statute of limitations (the deadline for filing a lawsuit) long enough to file against any entities that committed crimes, helped the coverups, or failed their responsibilities. Withholding diagnoses and covering things up are crimes, you cannot use crimes to conceal crimes to abuse the statute of limitations. Furthermore, many doctors’ insurance companies do not cover injuries that doctors cause intentionally. Such insurance rules are fundamentally evil, sacrificing the victims to protect the criminals, and unfortunately are a cornerstone of American healthcare. The family asks for doctors’ insurance companies to stop using these loopholes to deny victims their rightful compensation. The government has failed American families badly. The US child mortality rate is 76 percent greater for infants and 57 percent greater for children ages 1-19 than that of other wealthy nations despite greater per capita spending. Over a fifty-year study period, over 600,000 deaths could have been avoided – the rate has now increased to about 20,000 preventable deaths per year, half of which are infants. If the government won’t investigate thoroughly, we don’t see the necessity of a government like that. Nancy Schaefer, Bill Bowen, and many innocent lives would have died in vain; it is a crime against humanity, a success for the criminals, and the criminals will carry on. Nilaozi 发表于 2022-02-26 00:21
回复 1楼mima1的帖子 我不是医生，但是在这方面工作过。说一点我知道的。Take it with a grain of salt. 如果是硬膜下出血或者脑外伤的话，有研究说住院后72小时内，尤其24小时内，的情况好坏对长期outcome影响比较大。看你说是脑室出血么？不知道对于脑室出血是否也适用。看lz父亲第一周好像还不错的。 有些医生是觉得保守治疗起效慢，他们还得老操心，没有动手术一下解决，即时效果 好省时省事。另外也可能是考虑到我上面第一点说的，考虑长期康复效果，所以马上就动手术了。所以lzmm不要自责。 ICP的sensor有些在EVD上，看你说EVD都拔出来了，所以那时的 ICP负值不是真正的颅内压。哪怕没拔出来，开关EVD对ICP读值也会有瞬时影响。之后ICP恢复正常么？整体大概什么数值？有些ICP是单独的sensor不在EVD上，瞬时扰动也是有的，绝大部分时间在正常工作读值就好。 是在level I trauma center 么？除了ICP，有上其他颅内的sensors么？读数都还好么？GOS好不好？ 你说在用抗凝血药，所以edema是颅内不断出血造成的？而不是感染造成的积液？或者都有？这可能也是为啥医生老想取管子，长时间插着是容易感染，估计也是给着抗生素的。 头疼我猜是因为颅内压高，也有可能是出血导致的颅内血管痉挛引起的。说来说去还是要控制edema。 抱抱lzmm。
**前两天开始每小时withdraw 5cc/hr，今天开始withdraw 10cc/hr，是不是大概率要做vp shunt了？因为每小时抽取，造成ICP时不时成负数…这不是很疼么？希望有mm可以解答，有这样治疗的么？看着爸受苦，真的是心总是揪揪着..还有刚换管子那天，一个医生过来，啥也不说就把EVD system拿下来，低到快接近地面了，我因为在床的另一边，不知道发生了啥，就看到我爸忽然挥舞双手，开始喊，我这才看到ICP一下子从6降到-9…我当时完全在注意我爸，这医生也没说为啥这么做就走掉了，我当时气得直哭。这么做对病情有利么？后来护士解释是帮助清除淤血…是这样么？
我就是纠结于为什么他刚开始的一周还可以打电话，现在却成了这个样子…这个是不是哪里出错了？
update：非常感谢下面几个热心的姐妹们，我纠结得要死，纠结了好久的问题，一下子就解决了两个！对于我的第二个问题，可能因为我目前了解的情况非常有限。我今天下午就去医院要资料，然后再来update，这里再次感谢大家！
情况是这样的，老爸1/30 中午突发脑出血，我们第一时间拨打了911，送去医院，当时就安排了头部CT和降压药，到晚上8点的时候做的脑外引流管手术。 我对美国的医疗还是很有信心的，可是到现在第4周了，发展却是这样的：
第一周，爸还可以自己打电话，发微信，头疼的厉害 第二周，打不了电话了，虚弱，但可以喂他饭，头疼的厉害 （第三周第一天）脑外引流管掐死24小时，结果人开始昏睡，失败，脑外引流管还堵死了，重新换管 第三周，饭也吃不了，人开始糊涂了，头还是疼，上了鼻饲管 第四周，医生跟我商量要在肚子上开一个胃造口，人还是昏睡 下周，他们还要试一次移除引流管
这四周来每天都是折磨，每天都抱着希望今天会好起来，结果却是非但没有好起来，反而更加严重。。我每天都疯狂地在网上找资料，发现国内在出血量不多的情况下，是推荐保守治疗的。这又让我陷入了深深的自责中，是不是第一天就不应该做手术？。。我自己也是医护人员，但我不在医院工作，也不接触重症病患，总想着应该相信医生他们。。所以只问过医生情况，也没问他们要具体资料例如CT copy之类的。但是照这个趋势，万一以后我爸有个三长两短，我没法原谅我自己啊。。
我知道版上有很多很厉害的医护姐妹们，所以想也许这里能得到些帮助。。 我的问题是： 1、我是不是可以问医生要CT copy，或者问问到底第一天的出血量是多少？医生会不会认为我们家属不相信他们，反而会对我爸更不上心？ 2、像我爸这个发展情况是不是正常的？（我之前一直安慰自己他可能是脑子里开始有水肿，但是网上说2-3周水肿就应该开始往下消了。） 3、鼻饲管到现在用了一周，目前来看我爸不能自己吃饭至少还得要一周。我知道胃造口的好处多，但是我爸他是糖尿病和年轻时有过胃出血的经历，加上目前在用几种抗血凝药，上次换管就流得满头的血。这种情况下，是不是要胃造口？
可能有些语无伦次，但是真心希望这里的姐妹能给我一些建议，我每一条都会认真听取的。非常感谢你们，跪谢！
🔥 最新回帖
Bless bless
你这话才可怕 你的话成立前提是
医院可以随时根据ICU盈利把人弄进来送出去
你这要吓死楼主
好像就是要本人办理的，不能代办。出了院的，不仅是本人签字，还要本人出现才拿得到。美其名曰隐私问题。就不知道这种本人昏迷的情况是怎样了，
🛋️ 沙发板凳
你可以要求看所有的病历，一般大医院都会给，要自己申请， 不要有怕得罪人的思维，这也是你的合法权益。希望你父亲早点好起来。
医生的说法是我爸的颅内还有瘀血，如果不等它消掉一些，无论是他自身脑脊液循环还是vp shunt效果都不好..这个倒也能说服我，就是不知道是不是事实。
是的，这些都是因素之一。具体还是要看病人的情况，有无继续出血，和原来的淤血有无慢慢消掉。看引流出来的量，如果效果不好，只能先拔掉。监测和用药也挺关键的。bless～～
LZ, 这个需要脑外引流管的是硬膜下血肿吗？脑出血分不同种类的，这个是硬膜下出血这种吗？
mm问一下，如果先拔掉，那他脑脊液无法循环，颅内压升高不是更不好么？据医生说是在lateral ventricle和3nd ventricle中间有blockage。
现在就是深深的无力感，好像下一步很难进行，但是再继续观察下去，各种complications 又是很大的威胁…
好的好的！谢谢mm！！
这个还不知道，我今天下午去要资料看看！
只能相信 bless 露珠爸爸尽快好起来
医生没必要也不可能骗你，像你爸爸这种情况，肯定经常做CT，有没有淤血和脑室大小，CT报告上面都有的。
出血量不在于多少而在于位置，不是关键部位不会下EVD 的。你自己也说了，一关闸就不行，那就是必须下引流了。不下人早就不行了。
谢谢mm，我也觉得应该相信医生，但是从我爸的情况看，他越来越糟糕，我就开始自责和怀疑，是不是从一开始就应该按国内的方法保守治疗？
谢谢lovery，也就是说不存在我想象的（刚开始不严重，可以不用EVD的保守治疗）的可能？如果是这样，那我就释怀了很多…谢谢你
BLESS 楼主的父亲尽快恢复
应该不是积水和堵塞，因为每个小时都在withdraw 10ml 脑脊液。是的，每次问医生，就跟我说very bad bleeding。
会不会是其他的并发症？这个太可怕了，可以想象你经历的痛苦，这种无力感真的是没经历过的无法体会。抱抱你…
是的，非常非常痛苦和无力，所以对你感同身受，希望你爸爸能快点好起来
Your father in China ?
美国每个医院都有个病历部门，所有的记录你都可以要求复印一份。
Big bless!
在美国， 相信医生说明你是弱智。 而如果不信医生， 医院能弄死你。 医院挣钱第一， 而华人地位决定了， 肯定用来挣钱。 自己琢磨这来吧。 估计你也能看得懂， 给你些信息。
Homepage – SCH Care
On April 9, 2013, following Jianhua’s primary care physician’s direction on his unexpected weight gain after a fever, his parents took their 7-month-old son to the Seattle Children''s Hospitals'' (SCH) emergency department (ED). The ED doctors kept Jianhua for overnight observation after an ultrasound confirmed his liver was normal; sadly, they neglected to take care of his nutrition. Around 3:00am on the 10th, his blood work showed acute liver failure (ALF), but the ED did nothing but wait; near 6:00am, a critically low glucose, hypoglycemia, happened. Overnight hypoglycemia indicates a fatty acid oxidation deficiency (FAOD). The ED rushed Jianhua to the pediatric intensive care unit (PICU); however, both the ED and the PICU failed to follow the procedure to order the required labs for this crisis. By the morning of the 12th, another critical hypoglycemia, 33 mg/dL (SCH normal range > 60 mg/dL) happened again because they missed his glucose monitoring. This time, they did take samples for the required labs - blood for acylcarnitine profiles and urine for organic acids; doctors can use them to differentiate which fatty acid oxidation enzyme causes the hypoglycemia. Wickedly, when the PICU director was in charge, they replaced the blood specimen for the lab with one obtained 5 hours after the crisis to hide Jianhua''s metabolic condition, and then continued giving him a fatty formula to poison him over weekend. The PICU did nothing as Jianhua’s blood ammonia increased to 90 mcmol/L (SCH normal range < 33 mcmol/L) by 8:00pm on Friday. They also stopped requesting newborn screening (NBS) data, which are acylcarnitine profiles using dried blood spots from a newborn''s heel after overnight stress, to hide the diagnosis. While the PICU director was in charge of Jianhua’s care, he never spoke a single word to the parents. The liver specialists took over Jianhua’s care from the PICU after his parents, against the PICU director''s direction, let the nurse replace Jianhua’s formula with glucose when they observed his blood ammonia increasing to toxic levels. The doctors denied FAOD and said a liver biopsy would reveal the etiology, or cause, of his injuries. But when they saw the severity of his steatosis, which is fat infiltration in the liver, caused by his acute starvation and FAOD, the biochemistry lab immediately cancelled the urine organic acids lab ordered days before. The doctors did not follow the normal procedure to deliver a pathology report on the 18th, the biopsy surgery date; instead, they used a new pathologist to create another report, claiming that Jianhua had scant steatosis and established injuries instead of new ones. They did not treat his recoverable acute injuries; instead, they tried two diets, one formula only, and the other with carbohydrate. A high carbohydrate, low fat diet is the standard diet for FAOD patients, but they prescribed the formula-only diet after they observed that it would gradually increase poisonous blood ammonia level. They put Jianhua on the liver transplant waiting list, discharged him, and told his parents that he would come back for a liver transplant in a month. But that didn’t happen. After the discharge, his parents added carbohydrates to Jianhua’s diet and his labs improved. However, he was losing weight (which was normal for victims of acute starvation, but his parents did not know that) so the SCH liver specialists took advantage of the opportunity and convinced his parents to use the prescribed formula only, without additional carbohydrates. Slowly, Jianhua was getting weaker and weaker. The parents realized his deteriorating health must be related to fat metabolism when they had to rush him back to the SCH ED after increasing the proportion of fat in his diet. In April 2014, the parents showed a SCH metabolic specialist the highly elevated C16, 2.46 mcmol/L (SCH normal range <0.24 mcmol/L) in Jianhua’s NBS, which indicates a defect in his enzymes for transporting fatty acid into the mitochondria. This specialist also confirmed that Jianhua had abnormal elevation in an early urine organic acids lab, which indicates a defect in fat oxidation enzymes; but he denied FAOD and directed the parents to stop feeding Jianhua low fat diets. The family realized that SCH had no mercy on their son’s life and decided to leave. During the SCH liver transplant team’s care, they were continuously monitoring his blood ammonia levels. No other hospitals measured it.
Homepage – Medical Kidnapping
In October 2014, the Washington State Child Protective Services (CPS) received a report from a SCH doctor alleging that Jianhua’s parents had abused or neglected their child. In her first house visit, the social worker prohibited Jianhua’s parents from taking their son to seek medical opinions outside of Washington State. The parents asked if CPS could investigate SCH’s crimes. She told them the CPS would only take cases filed by institutes, such as hospitals and schools. To investigate a hospital, they would have to hire a lawyer by themselves. The parents contacted almost all medical malpractice firms in Washington, but no one would take the case without a FAOD diagnosis - they said the investigation would be prohibitively expensive and people wouldn’t sympathize with Jianhua since he doesn’t have visible injuries. The CPS found SCH’s allegation unfounded; thus, the SCH’s second kidnapping attempt failed. The first medical kidnapping was putting Jianhua on the liver transplant waiting list to keep him under SCH’s control – this succeeded. If SCH’s second kidnapping had succeeded, then a foster family would follow the SCH doctors’ directions, giving Jianhua a “normal diet”, which would contain too much fat for Jianhua and poison him. Many children are murdered by the American healthcare system through the CPS in the name of protection. The doctors file claims against the victims’ parents, the CPS takes the children away and sends them to foster care, their parents cannot sue the hospitals for losing parental rights, and the innocent children will likely die mysteriously. These evil crimes start from the doctors: instead of using their expertise to care, they poison, murder, and medically kidnap patients, including infants, who cannot even speak a single word. A 40 years study shows that the evidence base for association of disability with abuse and neglect is weak; however, the percentage of foster children with significant health needs is more than 2x that of children in the general population according to Pediatrics. Without doctors’ false allegations, there would not be so many children with health issues torn from their parents. At any given time, there are around 424,000 children under foster care in US; about half live in nonrelative foster care. 14% of the children in foster care will languish there for three or more years; and their death rate is 6.9 times that of those in parental care. The federal and state governments deliberately ignore these crimes; they will prosecute anyone causing hospitals monetary loss, even to death, i.e. former SCH nurse, Kimberly Hiatt. Some investigators were even murdered. In 2010, former Georgia senator Nancy Schaefer was assassinated; before her death she published the report “The Corrupt Business of Child Protective Services”. Former firefighter and federal investigator, Bill Bowen, who worked closely with Schaefer, was murdered as well. The trailer of his documentary film “Innocence Destroyed” was released on YouTube a year before. The American media will not report these crimes. They are waiting, just like the hospitals. If the victim dies, they will jump out to defame the victim’s family. They will cover up the murders, like Nancy Schaefer’s death. In the span of nearly ten years, no media has been willing to report Jianhua and his family’s suffering. Instead, people with special interests in healthcare use media propaganda to paint the CPS as a scapegoat for medical kidnapping and the foster families as those profiting from the victims. The truth is that every medical kidnapping starts in a hospital and the hospital is ultimately profiting the most, collecting Medicaid or insurance money from every crime they commit. Whenever a mistake is made or negligence occurs in a hospital, a nurse or doctor typically notices it first, as in Jianhua’s case. After the SCH doctors learned of their mistake, none of the SCH medical directors attempted to treat Jianhua; instead, they directed crimes, poisonings, kidnappings and murders to evade liability.
Homepage – Nationwide coverups
On April 30, 2013, 12 days after his surgical pathology lab, GeneDX, a genetic testing company, reported Jianhua’s signature variant, ACAD9:c.988A>C, which was novel in the USA, to the NCBI ClinVar of National Institute of Health (NIH) as benign. SCH used the publicly available database ClinVar to make a diagnosis for Jianhua impossible. Through Best Doctors, doctors of UCSF Benioff Children’s GI department, Massachusetts General Hospital’s pathology department, and Ann & Robert H. Lurie Children’s Hospital of Chicago’s metabolic department, reviewed Jianhua’s medical record and NBS. They could not determine an etiology for his liver injuries and even claimed that his NBS was normal even though his C16 is about 10 times normal maximums. Doctors from the Children’s Hospital of Pittsburgh of UPMC refused to do an ACAD9 enzyme activity test and denied that Jianhua had FAOD on behalf of the pediatrics and genetics department, claiming that Jianhua’s NBS is abnormal and they only test patients with normal NBS values. Cincinnati Children''s Hospital Medical Center Molecular Genetics lab only reported the ACAD9:c.988A>C variant although they found many more. Case Western Reserve University CIDEM lab deliberately used a wrong reference in the enzyme activity test to hide Jianhua’s CPT2 deficiency. The ACAD9 and CPT2 genes control the production of 2 of the 19 known fat metabolism enzymes. The doctors were using one FAOD to deny the other, using their knowledge and control over diagnoses to cheat Jianhua’s family. Baylor College of Medicine Medical Genetics lab even emphasized an auto-immune variant in Jianhua’s whole exome sequencing. This variant could easily be used as an excuse if Jianhua were to unfortunately die after a liver transplant—deaths from organ rejections are well known, after all. All trust the family had in the US healthcare system vanished. Some courageous doctors in CCHMC did extensive screening tests, and the results show that Jianhua’s immune system is normal and that he has FAOD; however, their work could not lead to an FAOD diagnosis because of the overwhelming fraudulent evidence mentioned above. Even the CCHMC pathologist left after she simply asked for Jianhua’s NBS.
Our claims
Without the diagnoses, or attorney’s help, the family contacted SCH in 2015 for compensation, offering SCH the right to explain what caused the injuries in exchange. SCH hired Sedgwick Claims Management Services to do an investigation. Sedgwick denied SCH’s responsibility for the injuries, the family’s claims, and the family’s request for the 3rd party investigation materials, stating that the materials belong to SCH, who paid them. Jianhua suffers permanent injuries to his liver, pancreas, heart, and brain from the negligence and poisoning, and he receives no compensation because of the cover-ups. He follows a special diet; he has frequent skin peeling on his hands and feet, eye infections and styes often, headaches every day, sickness very often, and he experiences metabolic decompensation once in a while. These have an impact not only on his life, but also on the lives of his family members. The whole family worked to improve his physical and mental health, which took so much effort that his mother had a miscarriage in 2014, and life was so difficult that his grandma returned to China a year later. He was so weak that Washington’s lack of sunshine threatened his life, making him sick throughout the winter and spring. In 2019, Jianhua and his family relocated to California. Now, the family is finally ready to ask, again, that the federal and Washington, Ohio, Pennsylvania, and Texas state governments jointly investigate the negligence, poisoning, attempted murder, medical kidnapping and nationwide coverup. They ask for an investigation to address all aspects of Jianhua’s case, particularly the questions below: 1. Test and report Jianhua’s CPT2 and ACAD9 enzyme activities at 37°C and 41°C and compare them to that of a normal person. 2. How did Jianhua’s organs get injured, especially his liver, pancreas, heart, and brain? How will these injuries affect his diet, extremities, activities, and life quality and expectancy? 3. The SCH liver transplant team prescribed a poisonous diet for him, hid his diagnosis, and planned a liver transplantation in 30 days. Please investigate and punish this crime. 4. The SCH PICU replaced the blood specimen in Jianhua’s acylcarnitine profile, stopped the request for his NBS, and then continued giving him a fatty formula to poison him. Please investigate and punish this and other similar crimes that happened in the SCH PICU. 5. The SCH surgical pathology lab must release all forms of medical materials, including planning, personnel, the use of his two liver tissues, access records, notes, etc., instead of just a manipulated, late report. Please investigate and punish this organized crime. 6. The SCH biochemistry lab used a made-up MCT to misinterpret a urine organic acid (UOA) lab and cancelled another one’s results right after they saw the biopsy. Please investigate and punish this crime. 7. Doctors of the Children’s Hospital of Pittsburg denied an FAOD possibility on behalf of the department, and refused to do the ACAD9 enzyme test. They claimed that the test was unnecessary even though they knew Jianhua’s NBS values were abnormal. Please investigate and punish this intentional cover-up. 8. Case Western Reserve University lab used a wrong reference to deny Jianhua’s CPT2 deficiency. They refused to change their conclusion even after correcting the error. Please investigate this intentional cover-up. 9. Both Baylor College of Medicine and CCHMC sequenced Jianhua’s ACAD9 and CPT2 genes. They did not report the well-known CPT2:c.1102G>A variant, but only reported the patient signature ACAD9:c.988A>C variant while hiding many other variants. How can clinical labs abuse the NIH ClinVar database, using it not to help diagnose him, but to mark his variant as “benign” when it matches his symptoms? Please investigate and punish these systematical crimes. 10. The family signed with SCH liver experts for a pediatric acute liver failure (PALF) study using Jianhua’s biological and genetic materials. Please release the outcome of the research based on his specimens, did they use his biological material for the GeneDX genetic test? 11. Release Sedgwick investigation materials to the public, especially the questions they asked and how the professionals answered the questions. The public will judge if hiding the evidence of hospitals’ killing infant patients has become a profitable business in the United States. After the investigation, the family asks that the federal and state governments grant the family a statute of limitations (the deadline for filing a lawsuit) long enough to file against any entities that committed crimes, helped the coverups, or failed their responsibilities. Withholding diagnoses and covering things up are crimes, you cannot use crimes to conceal crimes to abuse the statute of limitations. Furthermore, many doctors’ insurance companies do not cover injuries that doctors cause intentionally. Such insurance rules are fundamentally evil, sacrificing the victims to protect the criminals, and unfortunately are a cornerstone of American healthcare. The family asks for doctors’ insurance companies to stop using these loopholes to deny victims their rightful compensation. The government has failed American families badly. The US child mortality rate is 76 percent greater for infants and 57 percent greater for children ages 1-19 than that of other wealthy nations despite greater per capita spending. Over a fifty-year study period, over 600,000 deaths could have been avoided – the rate has now increased to about 20,000 preventable deaths per year, half of which are infants. If the government won’t investigate thoroughly, we don’t see the necessity of a government like that. Nancy Schaefer, Bill Bowen, and many innocent lives would have died in vain; it is a crime against humanity, a success for the criminals, and the criminals will carry on.
更何况人家还会拖死你。。 其实只要怀疑， 最好的办法是能出去就走。。。 美国医院真是杀人的地方。
应该是很不正常。因该是你爸已经是提款机了，它们不会放过你爸。
我个人认为胃管应该做。其他的少做。维持看能不能缓过来。
假装啥也不懂，稳定下来，让保险公司施压出院。
跟保险公司说你没钱，需要出院，怕付不起。不要说觉得不安全。保险公司跟医院一起杀人害命。
我爸几年前倒是得过带状疱疹在腰部，但这次应该跟带状疱疹没关系，他全身并没有任何疹子，现在4周了，脑部也没有炎症，脑出血那天是突然发生剧烈头痛，之前也没有任何别的问题… 您表舅有什么带状疱疹的症状吗？
所以这本来就是个很难的选择。你给的例子这个病情比较复杂，在当时的情况下，除非专业人士，否则家属只能选择相信医生。
这边second opinion也没什么用，医生都是帮着医生的。同行之间相互庇护。
我表舅就是头痛呼吸困难脑出血，住了一个星期医院才检查出是头部带状疱疹,头发遮着不明显，身上没有疹子，不然一早就发现了。
看得少根本不是借口 病人一个月了 难道不思考
我不是医生，但是在这方面工作过。说一点我知道的。Take it with a grain of salt. 如果是硬膜下出血或者脑外伤的话，有研究说住院后72小时内，尤其24小时内，的情况好坏对长期outcome影响比较大。看你说是脑室出血么？不知道对于脑室出血是否也适用。看lz父亲第一周好像还不错的。 有些医生是觉得保守治疗起效慢，他们还得老操心，没有动手术一下解决，即时效果 好省时省事。另外也可能是考虑到我上面第一点说的，考虑长期康复效果，所以马上就动手术了。所以lzmm不要自责。 ICP的sensor有些在EVD上，看你说EVD都拔出来了，所以那时的 ICP负值不是真正的颅内压。哪怕没拔出来，开关EVD对ICP读值也会有瞬时影响。之后ICP恢复正常么？整体大概什么数值？有些ICP是单独的sensor不在EVD上，瞬时扰动也是有的，绝大部分时间在正常工作读值就好。 是在level I trauma center 么？除了ICP，有上其他颅内的sensors么？读数都还好么？GOS好不好？ 你说在用抗凝血药，所以edema是颅内不断出血造成的？而不是感染造成的积液？或者都有？这可能也是为啥医生老想取管子，长时间插着是容易感染，估计也是给着抗生素的。 头疼我猜是因为颅内压高，也有可能是出血导致的颅内血管痉挛引起的。说来说去还是要控制edema。 抱抱lzmm。
HSV 脑出血不需要放引流管
你这才是不懂装懂，ICU 就是第一天保险公司给钱多，后面每天给的钱越来越少。所以是病人好的越快，医院赚到的越多。
每小时10cc 量不少了，是该考虑换shunt 了。
看你自己后面说的，每小时引流10cc, 不下EVD 人撑不过一天就得去世。这种情况没有其他选择。