facebook上有些adhd父母的互助群,里面有不少很有用的信息。今天看到一篇ADHD的人自己写的觉得有用的tip,觉得很多都跟我对付我家娃的经验很重合,分享在这里。 == My name is Brian and I was diagnosed with ADHD in 1997. Since then I’ve completed school, attended University, served in the military and now work in the mental health field. All of the above wasn’t as easy for me as others perhaps but possible for anyone. I’ve been medicated and not medicated (mainly not) Now I’m looking at the next generation and I thought I would share my top 10 coping strategies. This is probably more focused towards teens. This is the group I consider most important but they aren’t in order of importance. Some were told to me some I worked out, some just happened by accident. 1. Time is everything - An ADHD brain finds it very difficult to subjectively judge the passing of time, especially when focused on a task. Devices like a phone or a clock on a computer are ok. But if you’re on another screen or your phone is in your pocket, you forget to check it. ADHD being close to an autism spectrum disorder, tactile reminders are great. Enter the wristwatch. I can feel it on my wrist and through habit development I check it all the time when I’m working or out and about. When it comes to deadlines or timings nothing will get you fired quicker than being late. As a parent if a child is doing something and they need to leave the house or bath etc. 15, 10 and 5 minute warnings go a LONG way. 2. Stay old school. Devices and screens are great tools however as above they lack a certain something when it comes to checking things. So chores or schedules etc. where possible make visual chart on paper or when noting something down in a diary etc. stick to paper and pen. There’s something about the visual and tactile elements working together that helps the information stick when compared to a device. For kids chores an actual physical chart of the weeks chores with times and colours etc. We will forget we need to take the bins out on Wednesday. We cant hold a schedule in our heads like that. And its a predictor of consequence and reward a huge factor in how our brains work. 3. Notebook Probably my number one. Similar to above. Have a list of tasks to do today? In the notebook. Say you’re going to do something? In the notebook. Noting things down, again combines the tactile and the visual and transferring that to a calendar provides the repetition for remembering the information. Also refer to point 10. 4. Read and re read. ADHD has been shown to be mainly an executive function disorder. The main part is “Working Memory” (please google what it is) ADHD people don’t have working memory or its very weak. It’s very difficult for use to hold a thought which makes comprehension very difficult. (Things like mental arithmetic are near impossible) When reading, read 2 -3 sentences then read them again (or more times). Slower yes but significantly more accurate. 5. Fidget focusing is hard. For most schoolwork or office tasks you’re going to be sitting still. For an ADHD brain this is torture. MOVE! If you can walk around the house and read schoolwork, do it. If you’re at work and have to take a call or make a call, take a walk (if you can). In situations where you must be in one spot. Use a fidget. I use a bike chain fidget or the most interesting feeling hair tie I can find. (In the military, on parade, standing perfectly still I used to wiggle my toes). 6. Routines. Due to the working memory issue and general distractions, routine, structure and habit development is key. Rather than adhering to times (eg shower at 7am) . I adhere to the steps Try and break tasks down into routines when it’s important not to forget. I used to forget to take my meds all the time. So now I have a routine around it and it’s done the same way each day (obviously items I need are always in the same spot. E.g. Shower, dry, MEDS, WRISTWATCH, kitchen, kettle on, coffee made, leave it on the bench, and get dressed. The 2 important ones are meds and wristwatch. But the markers after the key behaviour are just as important as the ones before it. If I see someone with a coffee or I feel like I want a coffee is a “backup reminder” and I can use my back up watch and back up meds that live in my work bag ( rarely used) This can be done with anything. It’s more about developing habits. We don’t have working memory, so the idea is to get it into our longer term memory and doing it so many times that we can’t get it wrong, so even when were absent minded we still to the right thing. (E.g. do you remember putting your seatbelt on in the car today or yesterday?) Most daily important tasks need to become the seatbelt. 7. Communicate. We are quick to get emotional. Non-physical emotions are hard for us to project (e.g. we’re angry we throw things and scream, we don’t pout.) This means others don’t pick up on how were feeling, until it's this extreme outward display. So tell people how you feel. Get used to the pattern of “When X happens, I feel Y”. The pattern keeps things calm and really helps you get your point across. Telling people what’s going on in your head and helps them understand and hopefully will build positive meaningful relationships. And people won’t be offended when your feelings seem out of sync with the situation. 8. Educate yourself Understand and learn how an ADHD brain works. Being able to tell people what’s going on in your head will help greatly in them understanding you. Even something simple like “ ADHD brains are quick to emotion, on a scale of 1-10 we tend to experience emotions at 8, 9, 10, its very hard for us to keep it between 1-7" Most people want to understand and are lovely about it. They just cant pick up on it. So tell them ( We don't do hints) To use an analogy. Non ADHD people are Leopards, they live on land, and they’re very good at climbing trees. You are a shark very good at swimming, the leopards can’t understand why you can’t climb trees. Your goal is to teach the leopards how to swim. 9. 1 thing at a time. Another feature of an ADHD brain is we aren’t good at future projecting (e.g. understanding that it takes 30 small steps to get to a goal, we dont even see the steps) which makes self-motivation hard. So often when we have a big job like cleaning a messy bedroom it’s too big and overwhelming to understand where to start. Train your brain and thought process to look at jobs as tiny sections. So don’t clean a room, you can’t do it all at once can you? What you can do is pick up the laundry, or dust a desk. (And remember this when writing your notebook). That comes into activities too, video games are attractive to us because they offer instantaneous feedback for an action we take in game. Consequences or reward. Remember this when your looking at hobbies you might like. (eg I love Brazilian Jiu Jitsu, instant consequences or reward) 10. Strengths and Confidence. People find it difficult to understand you. The stats are not in your favour. ADHD have a higher rate of schooling drop out, Marriage difficulties and inconsistent employment. You will face rejection. Learn to have a thick skin and be mentally bulletproof. NOT DISTANT from people, believe in yourself is what I’m saying. Learn to focus on your strengths and accomplishments. One of the benefits of the notebook is at the end of the day you can check it and see your accomplishments, which inherently self-esteem boosting. If someone you notice isn’t maybe good for your confidence or self-esteem let them go. You are different and that’s ok! You will find friends that don’t mind and they tend to be great people. As a parent, the number one thing is teaching them confidence. If they don't have high confidence and self esteem, the world will chew them up. At no point do I say I "suffer from ADHD" suffering is a choice not a state of being. Also telling someone they "suffer" is A ) potential limiting B ) against point 10. Edit: Apologies for spelling and grammar. I'm usually pretty good. But ofcourse I blasted this out in one go and didn't check it. Sorry Edit: Suffering point. Sorry again. **** Update***** Many apologies I can’t make it shareable in this group Was not expecting that kind of response. Just to be super clear I’m in no way perfect I still struggle sometimes and that’s ok. babyduck 发表于 2021-10-18 12:58
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mark
抱抱你,也抱抱楼主。。。家有ADD的孩子确实是对家长极大的挑战,太难了。 家长降低期望值是必须的,必须要让自己脱离华人家长互相攀比的环境,这样对自己对孩子都好。我现在觉得华人扎堆的地方有毒,不管孩子是不是ADHD,我都觉得那股骨子里的攀比会在不知不觉中就把你吃掉了,先吃了你,然后再吃你孩子。
看了你的评论,我就放心了,谢谢
好像儿医都先给做evaluation,然后决定给不给refer?
谢谢
🛋️ 沙发板凳
没有说想要她成为我想要的样子,有ADHD的孩子学习能力和社交上就是会有些difficulties, 这几天看了好多案列成年ADHD会遇到比别人多的困难, 所以才担心她一直被这些困扰。
三年级了
我知道的一些adhd 并不影响正常生活 很多慢慢grow out 了
哎,这么多问题,父母为啥还让娃进 gifted?
好心疼这个娃。
学校screening自己考进去的啊,并没有刷题补课逼着进去,而且之前这些问题不明显,最近新学校新老师新环境才慢慢凸显出来的。
做父母的不要太过焦虑,ADHD可以通过很多其他地方补偿比如行为习惯等等来适应,不一定需要吃药。另外一个就是这样的人自己做business的比较多,entrepreneur里29%的人是有ADHD的,某种程度也是一种gift。
没错。不幸的是,华人上很多高知父母不明白这个道理。自己被父母祸害,现在再接着祸害自己的孩子。
我家小朋友的老师有ADHD, 四十左右吧,她自己告诉班上同学的,每天需要吃药。今年还升职去中学了。别太担心。
谢谢MM
总看到有父母说美国小学功课太简单给孩子跳级。殊不知,美国的小学教育本来就不侧重书本知识,跳级可能给孩子带来的精神社交方面的错失,恐怕要付出一生的代价。
老美朋友的孩子 小學確診 他的學業平平 但社交能力差 就隨他去 上初中開始 同校的哥哥也嫌棄 不搭理 高中時父母覺得他很孤獨可憐 連功課也不盯了 他能來往交談的人 只剩家人和長輩 後來父母對他的教育理念不同 就分了 爸爸希望 他高中既然不想念書就該去打工 早點面對 媽媽覺得他可憐 要多保護他 到了高中畢業 連車也不會開 現在是跟媽媽生活 20歲在超市打工 沒有興趣 也沒有其他技能 愁啊
美国这儿不是成绩好,就让跳的,学校会综合评价
分享一个伯克利孩子的妈妈写的
https://mp.weixin.qq.com/s/3XHyFYJ2YyydeYSIcTti7A [ 链接:mp.weixin.qq.com/s/3XHyFYJ2YyydeYSIcTti7A ]
这个叫twice exceptional. 很多资源的。
https://www.2enewsletter.com/topic_resources_schools-programs.html
https://www.davidsongifted.org/gifted-blog/finding-a-school-that-fits/
写得很好。
听说很多孩子会outgrow的。当然肯定是个长期过程,并不容易。
可以分享下具体是什么样的治疗么?你的孩子多大?就搜functional neurologist么?
我们6岁做的治疗,类似这样的地方 https://play-steps.com/ https://www.familyvisioncare.org/vt https://norcalbrain.com/adhd/
多谢!
以为是我发的。同幸亏没听妈妈苦口婆心劝我学医😂
看专科医生和心理咨询师,需要长期治疗
家里娃一样,安静坐那儿,用老师的话说,body在,mind走了,越到后面越跟不上,目前12年级,够呛能毕业,目前一学期读两门课都是4,50分,老母亲愁白了头。以前没用药是因为药物副作用是失眠,depression, 她从小就失眠然后情绪低落,不敢雪上加霜。目前12年级了开始用药,30mg Dexedrine 只管两小时,不敢往上加。这药还心跳加速。不知道怎么办,不能理解问题。
高中最好吃药维持成绩,看医生吧,不然大学学习生活和精神上会更辛苦
这种算disability了。学校应该有相应政策帮助
家长不容易,孩子也太不容易了,该吃药还是吃药吧
知道很多家长倾向于不给孩子吃药。但是这个还是以医生的意见为主吧。
如果医生觉得吃药有帮助,还是试一下吧。
都这样了,如果吃药有效果就还是得吃药啊。
就是吃了失眠啊,凌晨三点睡不着,然后depression 啊,这药对心脏有影响,定期去医生那里检查心脏。
睡不着可以给children’s melatonin。我的儿医和发育医生都说没问题的。
2e很多,倒不一定降低期望,就是家长非常操心要花很多精力
褪黑素小时候就已经不管用了,医生开的安眠药
我家娃也是adhd,1年级时确诊的,一直没吃药, 因为学习成绩还可以,所以觉得还没到那个需要程度,娃平时运动很多,现在11年级了,开学后开始吃药,20mg amphetamine,目前自我感觉有改善。楼主可以试试给娃多安排体育活动,运动量大的那种,看看效果。
这病实际上有多大坏处?为啥有的家长回帖是gifted,似乎是因祸得福,但有的回帖又是成绩不好,好像影响很大。
有的孩子某方面有特长,大部分这病的孩子过的不好,干啥啥不行,我家的教俩小时教会了,不到半小时会全忘掉,学一天会啥也记不住。孩子大人都崩溃。药量大容易成瘾,副作用大,常常觉得我这一辈子完蛋了
版上现在mean的人真多,居高临下说这样judge父母的话真心令人讨厌。你家里没有这样的孩子怎么能体会人家的心情?何况父母也是担心孩子这个问题将来会影响他自己的发展和生活,并不只是因为孩子不好会让他们丢脸。我是大学里教书的,ADHD的学生很多,大多数确实是会影响performance,吃着药还是成绩忽高忽低,有时候上课明显看着就状态不对。有些学生非常非常聪明,作为老师我也会惜才,会给这样的孩子很多额外的帮助,修改实验报告啊,让他们在课余时间重复做坏的实验。最后可能还是因为这个ADHD的状况,报告还是没交上来,最后拿了很差的成绩或者直接挂科。作为老师我都觉得很惋惜,更不用说是花了很多心血培养自家的孩子。这种失落感和无力感我觉得很能理解。偏偏现在华人网上越来越多的键盘侠跑来发帖,感觉发什么帖子都有人莫名其妙得拍。
在普通班说明也是正常的孩子啊。
谢谢MM, 非常有用,之前一个心理医生说过functional disorder, 但貌似这方面的专家不好找。
说到我心里去了,谢谢MM
抱抱
记得老师常说“xx就是不用功,其实挺聪明的......"
谢谢MM支持,作为家长就是心疼孩子,家长也是一路陪下来很辛苦。
嗯,安慰家长的。
是,记得她初中时为了学习做一天,密密麻麻记笔记一大本,然后崩溃哭着说 我一点儿都记不住啊,不能读书,初中我给她念 题,读书只能读两句话。不能理解任何带文字的数学题。现在17岁了交流有问题不能理解,没有共情能力。孩子家长都崩溃,啥事都指责我。
然后家长回家骂“为什么不用功?!”
其实这些孩子需要特殊的accommodation,如今有诊断了,意味着学校会给更多的accommodation和帮助了。 楼主不必气馁。 前一阵子看到一个比喻:如果养的花长得不太好,是怪花不好呢,还是改变环境(光照,水量,土壤)呢?accommodation就是改变坏境。有些花养起来确实更辛苦。
每个人家里情况不一样,请大家不要judge别人对自己孩子做的决定。
刚确诊的时候我挺depress的,因为我最不靠谱的俩同事都有ADHD,我特别知道大家是怎么不愿意跟他们共事的。但是后来发现我们最受欢迎的一个同事也有ADHD。区别在于是不是认真的对待。
我觉得最近板上ADHD的家长和2E的家长越来越多,我们应该自己搞个在美华人neurodiversity kids‘ parents facebook group,有的时候家长们是需要互相扶持,互相吐槽的。
你真烦 lz就是心疼孩子不能成为孩子想成为的样子啊 或者心疼孩子在成长学习社交过程中会遇到比普通孩子更多的困难啊,父母的心情,你不能体会就不要随便comment比较好。
太难了,好想哭
谢谢MM, 你说的非常有用,如果有这样的群也请告知。
有的孩子吃了第二天人是晕的
请问早期有什么症状吗?
“娃是从小就觉得不对劲”
举双手赞成搞个Facebook group!太需要互相交流经验了。 我家老大(儿子)9年级了,小学三年级时确诊的。一直没有吃药。成绩也还好。 到了高中感觉有点压力, 老师布置的作业如果不是post在Googleclassroom的话他就经常忘记。 平时丢三拉四的事情就更多了。 睡眠主要是入睡难, 他每天自己放些whitenoise才可以在一个小时内入睡。 平时有游泳和跑步。我们现在有点考虑是不是该尝试一下药物。
不善社交怎么做business?
好难啊。
太不容易了。pat pat
好心疼啊
我家孩子试了4-5种药都没有任何效果,副作用倒是很明显,所以现在也没有吃药了。确实需要有个群交流一下经验,我身边都没有类似情况的家长。
一样的孩子。小的时候不懂为什么怎么也教不会,太崩溃了。幼儿园的时候很开朗的,自从上学后越来越没有自信,焦虑症也出来了。真是全家痛苦
你给孩子找的adolescent psychiatrist 吗? 我觉得他们开药挺谨慎的
能不能试试不同的药?每个药的效果副作用都不太一样。我家的吃Adderall效果不错
请问MM, 吃了药后,还会有时脾气不好吗?谢谢。
大部分时间都还好。但是周末停药的时候,如果又没睡好,情绪问题就会爆发。但是至少平时吃药期间情绪很稳定,我已经非常感恩知足了。
作为两个孩子都是ADHD的家长,我建议你降低期望。ADHD的人很多需要长时间专注的工作没办法完成,不能抵抗外界的诱惑,精细动作不协调,体育运动能力差,以后离婚率也是普通人的三倍。大脑多巴胺分泌不足,导致容易抑郁,对什么事情都没有精神,也没有社交。其他人给你强调ADHD娃多么成功,我以前也希望有奇迹,但是基本上俩娃以后的人生就这样走下去了。 另外,你自己是不是ADHD?你不是你配偶是不是?
ADHD一般人不会outgrow. 但是年经大些会学会自己manage. ADHD在中学是最困难的因为有各门学科,课处活动和同学之间的social 要manage. 工作之后会好一些因为只需要focus 在自己喜欢的事物上了。
如果孩子有行为问题,情形管理问题, 强烈推荐Ross Greene的CPS approach. 他写了四本书,里面沟通对话的具体例子非常多,家长容易学习,实践。还有网站,视频。
这篇对比了Ross Greene vs. Russell Barkley(ADHD expert)的做法。 Ross Greene的书和比另一位的容易阅读,掌握多了。
https://www.sharonselby.com/uncategorized/conflict-resolution-vs-melt-downs-ross-greene-basket-approach
抱抱,攒钱将来给孩子上好的私立大学吧。有的特殊私立学校有专门的特殊教育老师帮助学习跟不上的孩子提供学习帮助就业培训的,还帮忙找工作。有的公立学校也有相关服务。不过我估计没有私立的上心。
医生改了 另一种药 Vyvanse 40 mg, 周二开始吃试试,周一不上课。她前一阵子做数学真是做到凌晨两点,数学选的比正常孩子简单,一遍遍重复讲不能理解,要吃药,我不让晚上吃药,讲时我要随时挥手或拍手让她mind come back, 告诉她只能上学前1小时吃,晚上不能吃。这么每天学到凌晨,数学考了40分
孩子太可怜了,为什么还要走读书的路呢?多少地方需要做体力活的。