My co-worker's daughter was diagnosed in her late 20s. She is 37 now and gave birth to a healthy baby girl last year. I've met her a couple times and had lunch once. Overall she functions like normal people. She has to have monthly infusions which is very expensive, but covered by insurance. She doesn't work, and only recently found a seriously relationship. Maybe she has Obama care or medicaid? Her MS was in remission during her pregnancy and returns after the child birth. She only feels bad if her infusion is overdue.
MS does not necessarily progress fast. In her case, it doesn't seem to affect her every day life that much. She has lots of friends and can still travel or camping. However, it is a disease with no cure and it is important to have the monthly infusion treatment. If you have good insurance and job security, it may not affect your life that much. Healthy care cost seems to be the top priority for your family to make future plan as MS will be long term and expensive without insurance.
Check out Dr. Wahl. She also had ms and was able to heal through diet. Not sure if it'll work for everyone but definitely check her out. She also has a FB group advocating for healthy diet.
听起来你先生是个很好的人。希望一切朝好的方向发展
BIG BLESS
妹妹 千万不要送他回国治疗。听网友的。这边无论治疗 生存质量 和心理建设都要比国内好。我同事女儿20岁 去年诊断 发展进程非常快的那种, 现在在走干细胞移植的治疗。医生是 Dr. Richard Burt。当然你老公未必到那一步。祝你们好运。
为什么?
准备建立家庭?
不是已经结婚了吗?
这个病我认识的人二十多年前就得了,现在好着呢,国内大学教授
建立家庭的意思是要生孩子
pat pat
家人的反应其实也算正常
有没有结婚和有没有孩子,这个是两道坎,要是还没结婚,估计好多人就撤了或者暂缓结婚计划了。家里人这么想也是不希望自己孩子以后受委屈日子过的辛苦。要是我自己女儿,这种情况不会同意嫁,当然女儿不听或者结婚以后再发生这样的事情,我也只能多攒点钱多帮忙做她后盾,同时心疼女儿命苦了。我和女婿不可能有和女儿这么深的感情 ---发自Huaren 官方 iOS APP
把自己的压力化作查资料,积极为他治疗的动力。按照结婚誓言来做吧!
Bless!
还没有确诊就这么忙着通知双方父母,满城风雨,然后开始想后路?
如果是误诊的话,你老公那边不寒心吗?
另外已经成家了,有困难难道不是首先想到互相扶持,之后一段时间再考虑其它的?
谁能一辈子没病没灾,生活工作如意顺利?
可能不中听,但是结婚成家以后可不就是这样吗?即使只是同林鸟也要观望一段在各自飞吧!
No no no. 结婚都兴个结婚誓言,难不成那只是对男生有效,而对女生无效的?人有时候不能太自私了。
一切会好的。
Bless!!!!
回国啥呀,国内这方面差得要命。
MM, add oil!
My co-worker's daughter was diagnosed in her late 20s. She is 37 now and gave birth to a healthy baby girl last year. I've met her a couple times and had lunch once. Overall she functions like normal people. She has to have monthly infusions which is very expensive, but covered by insurance. She doesn't work, and only recently found a seriously relationship. Maybe she has Obama care or medicaid? Her MS was in remission during her pregnancy and returns after the child birth. She only feels bad if her infusion is overdue.
MS does not necessarily progress fast. In her case, it doesn't seem to affect her every day life that much. She has lots of friends and can still travel or camping. However, it is a disease with no cure and it is important to have the monthly infusion treatment. If you have good insurance and job security, it may not affect your life that much. Healthy care cost seems to be the top priority for your family to make future plan as MS will be long term and expensive without insurance.
Good luck!
另外,美国的治疗手段比国内先进,很多新药都是在美国先用,还可以参加临床试验(在传统药无效的情况下),而且美国保险很好,所以你人在美国得这个病比在国内要幸运很多,千万别回国,国内那些药你长期负担不起。
因为很多 Sub type. 其实主要是pathoohysiology不明确,其实也不是太明白。也许最后会发现其实ms不是一种而是很多种病。
我也觉得啊 LZ如果这时候离了婚 如此寡情 再找难道就有人要吗?
就算真的得了这个病,楼主这时候想撤也太让人寒心了。不过自己的人生自己做主,如果真心想撤别人也说不到啥。如果换位思考楼主觉得如果自己和老公换位一下也能理解老公想撤的心理,那就撤吧。幸好没孩子,否则孩子可怜。
希望科学昌明,他的病缓慢进展,不影响生活质量,你们经历过之后也许更加相濡以沫。
这个处理很简单啊,他仁你就义,好好陪他度过难关,孩子先别要了也不现实。他要不仁你就不义,乘机一拍两散,让那些一心想着发财海归小三的猥琐男见见什么叫现实报
我也不会这么劝孩子,我如果丢弃了家人,这辈子都不好过,也不会开心的 ---发自Huaren 官方 iOS APP
我一个女同事诊断有这个,打针治疗,和正常人没什么区别,经常旅游,发展很缓慢,而且还会有新药出来,MM不要灰心。最好在美国治疗吧。
如果我是男的,女的怎么做,我都不会有怨言。
应该留下美国治疗,美国一直有新药新的研发,而且医疗服务好很多。