A mother has shared a heartbreaking photo highlighting the devastating impact cancer has on families. Ally Parker's five-year-old daughter is fighting a losing battle against an aggressive form of brain cancer, while her father is terminally-ill with a motor neuron disease. The mother from Florida now faces the grim prospect of having to bury both her daughter and father within weeks of each other. So she uploaded a gut-wrenching photo to Facebook on Sunday showing her father, Sean Peterson, wailing by his granddaughter's hospital bed.
The sheer expression of agony on his face conveys a pain the whole family is forced to endure.
On December 6, Braylynn Lawhon was diagnosed with Diffuse Intrinsic Pontine Glioma - the most deadly form of brain cancer which has no cure and no survival rate, according to The Daily Advertiser.
And her condition has deteriorated as doctors battle to treat her illness. Parker posted about the little girl's plight in a bid to raise awareness. 'We all thought that they would outlive the rest of us...and we certainly never thought that my precious little Braylynn would be the first to go,' Parker wrote in her Facebook post. 'Last year was hard for us, but I can't even begin to explain how difficult this year will be and has already been. 'In a few days I will have to bury this beautiful little girl. Months, maybe even weeks, later, I will have to bury my father.' 'Both of my heroes, gone, within the same year,' she continues. 'How could this happen to us? What did any of us do to deserve THIS? 'Why do they have to leave us? What are we supposed to do? I refuse to believe that there is a reason for this. This world is a terrible place.' The Pensacola family was given a glimmer of hope after hearing about revolutionary experimental treatment in Mexico.
Ally Parker's five-year-old daughter is fighting a losing battle against an aggressive form of brain cancer, while her father is terminally-ill with a motor neuron disease.
The mother from Florida now faces the grim prospect of having to bury both her daughter and father within weeks of each other.
So she uploaded a gut-wrenching photo to Facebook on Sunday showing her father, Sean Peterson, wailing by his granddaughter's hospital bed.
The sheer expression of agony on his face conveys a pain the whole family is forced to endure.
On December 6, Braylynn Lawhon was diagnosed with Diffuse Intrinsic Pontine Glioma - the most deadly form of brain cancer which has no cure and no survival rate, according to The Daily Advertiser.
And her condition has deteriorated as doctors battle to treat her illness.
Parker posted about the little girl's plight in a bid to raise awareness.
'We all thought that they would outlive the rest of us...and we certainly never thought that my precious little Braylynn would be the first to go,' Parker wrote in her Facebook post.
'Last year was hard for us, but I can't even begin to explain how difficult this year will be and has already been.
'In a few days I will have to bury this beautiful little girl. Months, maybe even weeks, later, I will have to bury my father.'
'Both of my heroes, gone, within the same year,' she continues. 'How could this happen to us? What did any of us do to deserve THIS?
'Why do they have to leave us? What are we supposed to do? I refuse to believe that there is a reason for this. This world is a terrible place.'
The Pensacola family was given a glimmer of hope after hearing about revolutionary experimental treatment in Mexico.
因为所谓的罕见，政府根本没有funding搞研究，都是靠失去孩子的家庭募捐资助少数几个实验室。我一直想，如果有一天我能够不担心funding,自由选择研究项目，我一定选择研究DIPG.
唉。对母亲来说最痛苦的不是需要埋葬自己的孩子是living everyday afterwards.
RE，孩子的父母该多么伤痛，而且终身难愈。
这个mexico的怎么听上去不太可靠啊，什么叫不肯说给的什么药，怎么听上去像神医啊。
太可怜了。。 真希望每个小朋友都能健康平安地长大。。
太残酷
☆ 发自 iPhone 华人一网 1.12.04
- 登月的宇航员Neil Armstrong的女儿
- 大学生篮球运动员 Lauren Hill: https://en.wikipedia.org/wiki/Lauren_Hill_(basketball).
- Univ. of Michigan橄榄球hall of fame教练的孙子 Chad Carr. http://www.chadtough.org/about/chad-carr/
- 一个叫Elena的小女孩，在她去世后，家人在家里各个角落发现她生前留下的小纸条，写着她有多么爱他们。这些纸条出版成了畅销书（https://en.wikipedia.org/wiki/Notes_Left_Behind)。女孩父母成立了the cure starts now foundation。(https://www.thecurestartsnow.org/).
- Michael Mosier, 父母成立了Michael Mosier Defeat DIPG Foundation. (https://www.defeatdipg.org/).
前面看到有好心的mm愿意捐助，这里提到的三个foundation规模最大，每年都直接给研究机构提供research funding，专门针对DIPG。象American Cancer Foundation之类的组织，钱是不会花到Childhood Cancer上的。
看哭了，当妈后就见不得孩子受罪。感谢MM的信息，捐款links很有用，一定出分力，聚沙成塔
---发自Huaren 官方 iOS APP
我一直捐st jude，希望有更多孩子能救回来
辛辛那提建了DIPG registry，就是为了这个。美国一年大约300个孩子新确诊，越来越多医院开始做biopsy，这些都register了，还是够研究的。
谢谢提供信息捐了一点钱，希望小朋友们都能平安喜乐健健康康的
病因呢？遗传还是后天的