天，bless mm! 为什么现在自闭的孩子这么多啊，以前都没怎么听说过 Not that I am an expert, but lots of mental disorder in the past were either un-diagnosed or mis-disgnosed to be something else. There are also variation due to sociatal acceptance, screening efforts, eg. the prevalence of depression is way higher in the US than China.
For years, researchers have been trying to understand autism: what triggers the disorder, why are some children more affected than others, and is there a real increase in the prevalence of the disease or just an increased awareness of the problem? Two new government studies seek to shed some light on that last question. The studies found that as many as one in 100 children have autism spectrum disorder. That would be a 50 percent increase in just over two years, and a much higher number than the current widely accepted estimate of one in 150 children. These findings raise lots of questions. And for answers, we turn to Dr. Susan E. Levy. She's the director of the Regional Autism Center at Children's Hospital of Philadelphia, and she joins us now. Dr. Levy, welcome to the program. Dr. SUSAN E. LEVY (Director of Regional Autism Center, Children's Hospital of Philadelphia): Thank you. NORRIS: Now, were you surprised by these numbers? Dr. LEVY: No, I'm not surprised. I think that there are a number of factors that account for the increased reports of prevalence. One factor is that we're getting much better at identifying children earlier, so they are adding to the count. Also, over time, the criteria have gotten much broader. So, in that way, we are accounting for a larger number of children. NORRIS: So, there's still this baseline question: Do we know whether autism is actually more common than it used to be or just recognized more frequently? Dr. LEVY: We don't exactly know, but I think we're starting to know a little bit better. There was a very interesting study that was published in Great Britain where they did a census, or they did a count of adults with autism spectrum disorder. So that at least would give us a few different periods or points of time so that we could say, is it increasing or not? And the count in Great Britain was very similar. So, it leads me to believe that it's not increasing as sharply. We're just getting better at identifying. NORRIS: One of these studies - these two studies has not yet been published. The other was published in the current issue of Pediatrics. And it's based on a national phone survey where parents reported incidents of autism among their own children. NORRIS: Are there limitations in a study that relies on parents to say whether or not a child is on the autism spectrum? Dr. LEVY: Yes. While it's a wonderful tool, because there's no way we can go door-to-door to every family and test their children, it's one means of trying to get an estimate of how many children are affected with an autism spectrum disorder. On the other hand, there are difficulties that you would encounter and including, there's no confirmation, there's no external validation that a child has an autism spectrum disorder. But it's a good strategy to try to get a handle and try to confirm from a different vantage point what the prevalence is. NORRIS: It seems like there could be a lot of confusion surrounding autism spectrum disorders because you could be talking about Asperger's, you could be talking about, you know, what some would call a capital A autism. You could be talking about pervasive developmental disorder. Dr. LEVY: Yes, there is a lot of confusion. And in reality, as the individual gets older, someone who has autism - capital A autism, as you mentioned - who has been lucky enough to have a spurt in language and development of certain skills and progresses, when they're an adolescent or an adult, they may be indistinguishable from someone who has Asperger's syndrome. The categories are, in a sense, artificially designated by lists of different behavioral developmental characteristics. It's not like we have a biological measure that can say, oh, you have autism, capital A, and you have PDD-NOS because you have this substance in your blood or on your skin that helps us know for sure what category it is. It's all by observation and comparing to standards of the behavioral evaluation. NORRIS: Dr. Levy, thank you very much for your time. Dr. LEVY: My pleasure. NORRIS: Dr. Susan Levy is a developmental pediatrician and she's the medical director of the Regional Autism Center at Children's Hospital of Philadelphia.
JUST WANT TO LET OTHER MMs KNOW: IT IS NOT REQUIRED FOR DAYCARE! My son goes to daycare and is almost 22 months and has not got MMR yet. If daycare says it is required, then tell them, your religion prohibits you to do this (this is one of my american friends taught me to say). Then you can decide whenever you want your kids to get the MMR.
有一点啊，父母千万不要label孩子，even if there's sign of autism spectrum, 就像我们小子，虽然说话完，也不爱和人交流， 但他心里可是明白着那，父母千万不要push和责怪，也不要表现出来沮丧担心， 多鼓励，不停的告诉他，他是最可爱最sweet的，有什么进步一定要鼓励。
autism spectrum 和内向也是一样的， 美国是个很注重社交的社会， 但是强迫每个人都social会抹杀一些孩子的个性， kids should be kids, they should play, they should be loved, they should not been trained like dogs...
autism spectrum 和内向也是一样的，这个我有异议. 美国是个很注重社交的社会， 但是强迫每个人都social会抹杀一些孩子的个性， kids should be kids, they should play, they should be loved, they should not been trained like dogs... 我不知道是整个PROGRAM是如此设计的, 还是去你家的那个人技术有问题.我女儿接受SPEECH THEAROPY 来的人很会因材施教.
autism spectrum 和内向也是一样的， 美国是个很注重社交的社会， 但是强迫每个人都social会抹杀一些孩子的个性， kids should be kids, they should play, they should be loved, they should not been trained like dogs...
now... I am not sure, I think he is fine, but he is still quite reserved compare to our younger one, and he just start saying sentence, but he do have a lot of imagination! 他会告诉我， too early, sun go down, moon up, wash face :D
This is a hard decision. If you don't take the vaccine, you will have chance to get the diseases. The consequece might be even worse... [此贴子已经被作者于2009-10-7 12:12:49编辑过]
now... I am not sure, I think he is fine, but he is still quite reserved compare to our younger one, and he just start saying sentence, but he do have a lot of imagination! 他会告诉我， too early, sun go down, moon up, wash face :D
autism spectrum 和内向也是一样的， 美国是个很注重社交的社会， 但是强迫每个人都social会抹杀一些孩子的个性， kids should be kids, they should play, they should be loved, they should not been trained like dogs...
By 3 months Early diagnosis of autism can make a dramatic difference. Here are some signs that may indicate your baby should have a developmental evaluation, according to the Centers for Disease Control and Prevention:
She doesn't respond to loud noises. She doesn't follow moving objects with her eyes. She doesn't grasp and hold objects. She doesn't smile at people. She doesn't babble. She doesn't pay attention to new faces
By 7 Months
She doesn't turn her head to locate where sounds are coming from. She shows no affection for you. She doesn't laugh or make squealing sounds. She doesn't reach for objects. She doesn't smile on her own. She doesn't try to attract attention through actions. She doesn't have any interest in games such as peekaboo
By 12 Months
She doesn't crawl. She doesn't say single words. She doesn't use gestures such as waving or shaking her head. She doesn't point to objects or pictures. She can't stand when supported.
By 24 Months
She can't walk. She doesn't speak more than 15 words. She doesn't use two-word sentences. She doesn't seem to know the function of common household objects, such as a telephone, fork, and spoon. She doesn't imitate your actions or words. She can't push a wheeled toy. She doesn't follow simple instructions source: http://www.parents.com/baby/health/autism/autism-month-by-month-guide/?page=1 [此贴子已经被作者于2009/12/21 13:42:50编辑过]
2岁左右的检查，主要就是基于observation，其实是有点主观的。有些时候，医生也不能确定，毕竟孩子还小，但保险起见，医生都倾向于make a call，这样你家宝宝就有机会得到训练，改善目前的delay。从positive的角度来看，你的宝贝发现的早，经过early intervention，是有可能慢慢outgrow的。我听说过有一个例子，小朋友在2岁被诊断，到3岁诊断又被撤掉了
MM讲得很好,和我读过的一本书的观点很相近.而且我觉得宝宝和你都很幸运.你因为有好的医生引导,没有走弯路,很快找到问题的根本;而宝宝有你这样的妈妈,平安地度过了一生中最艰难的一段,虽然他自己并没有意识到. Healing the New Childhood Epidemics (Autism, ADHD, Asthma, and Allergies) Kenneth Bock and Cameron Stauth
This was a piece of news yesterday on Washington Post. The Dr. who first published the article saying there was a link between autism and vaccine was banned in his own country (UK). It is said that his study was unethical. here is the link: http://www.3news.co.nz/Anti-MMR-vaccine-doctor-banned-from-practicing-in-UK/tabid/423/articleID/157720/Default.aspx
By 3 months Early diagnosis of autism can make a dramatic difference. Here are some signs that may indicate your baby should have a developmental evaluation, according to the Centers for Disease Control and Prevention:
She doesn't respond to loud noises. She doesn't follow moving objects with her eyes. She doesn't grasp and hold objects. She doesn't smile at people. She doesn't babble. She doesn't pay attention to new faces
By 7 Months
She doesn't turn her head to locate where sounds are coming from. She shows no affection for you. She doesn't laugh or make squealing sounds. She doesn't reach for objects. She doesn't smile on her own. She doesn't try to attract attention through actions. She doesn't have any interest in games such as peekaboo
By 12 Months
She doesn't crawl. She doesn't say single words. She doesn't use gestures such as waving or shaking her head. She doesn't point to objects or pictures. She can't stand when supported.
By 24 Months
She can't walk. She doesn't speak more than 15 words. She doesn't use two-word sentences. She doesn't seem to know the function of common household objects, such as a telephone, fork, and spoon. She doesn't imitate your actions or words. She can't push a wheeled toy. She doesn't follow simple instructions source: http://www.parents.com/baby/health/autism/autism-month-by-month-guide/?page=1 [此贴子已经被作者于2009/12/21 13:42:50编辑过] 越看越慌，肚子里的是个男娃呢
为什么现在自闭的孩子这么多啊，以前都没怎么听说过
天，bless mm!
为什么现在自闭的孩子这么多啊，以前都没怎么听说过
Not that I am an expert, but lots of mental disorder in the past were either un-diagnosed or mis-disgnosed to be something else. There are also variation due to sociatal acceptance, screening efforts, eg. the prevalence of depression is way higher in the US than China.
想问一下，哪些疫苗是可以拖的亚，哪些疫苗是可以不打得呢，而且怎样才能知道这种疫苗孩子需不需要打呢？
bless
想问一下，哪些疫苗是可以拖的亚，哪些疫苗是可以不打得呢，而且怎样才能知道这种疫苗孩子需不需要打呢？
乙肝，卡介苗是不能拖的吧，其他不知道了
国内自闭症比例比美国低 这三针是分着打或者不打的 总之国内一次只打抗一种病的预防针
其他预防针可以要求ped分着打 多去几次 但是这个是一针 好像不能要求分着打...
Studies Suggest Higher Autism Rates
For years, researchers have been trying to understand autism: what
triggers the disorder, why are some children more affected than others,
and is there a real increase in the prevalence of the disease or just
an increased awareness of the problem? Two new government studies seek
to shed some light on that last question. The studies found
that as many as one in 100 children have autism spectrum disorder. That
would be a 50 percent increase in just over two years, and a much
higher number than the current widely accepted estimate of one in 150
children. These findings raise lots of questions. And for
answers, we turn to Dr. Susan E. Levy. She's the director of the
Regional Autism Center at Children's Hospital of Philadelphia, and she
joins us now. Dr. Levy, welcome to the program. Dr. SUSAN E. LEVY (Director of Regional Autism Center, Children's Hospital of Philadelphia): Thank you. NORRIS: Now, were you surprised by these numbers? Dr.
LEVY: No, I'm not surprised. I think that there are a number of factors
that account for the increased reports of prevalence. One factor is
that we're getting much better at identifying children earlier, so they
are adding to the count. Also, over time, the criteria have gotten much
broader. So, in that way, we are accounting for a larger number of
children. NORRIS: So, there's still this baseline question: Do
we know whether autism is actually more common than it used to be or
just recognized more frequently? Dr. LEVY: We don't exactly
know, but I think we're starting to know a little bit better. There was
a very interesting study that was published in Great Britain where they
did a census, or they did a count of adults with autism spectrum
disorder. So that at least would give us a few different periods or
points of time so that we could say, is it increasing or not? And the
count in Great Britain was very similar. So, it leads me to believe
that it's not increasing as sharply. We're just getting better at
identifying. NORRIS: One of these studies - these two studies
has not yet been published. The other was published in the current
issue of Pediatrics. And it's based on a national phone survey where
parents reported incidents of autism among their own children. NORRIS: Are there limitations in a study that relies on parents to say whether or not a child is on the autism spectrum? Dr.
LEVY: Yes. While it's a wonderful tool, because there's no way we can
go door-to-door to every family and test their children, it's one means
of trying to get an estimate of how many children are affected with an
autism spectrum disorder. On the other hand, there are
difficulties that you would encounter and including, there's no
confirmation, there's no external validation that a child has an autism
spectrum disorder. But it's a good strategy to try to get a handle and
try to confirm from a different vantage point what the prevalence is. NORRIS:
It seems like there could be a lot of confusion surrounding autism
spectrum disorders because you could be talking about Asperger's, you
could be talking about, you know, what some would call a capital A
autism. You could be talking about pervasive developmental disorder. Dr.
LEVY: Yes, there is a lot of confusion. And in reality, as the
individual gets older, someone who has autism - capital A autism, as
you mentioned - who has been lucky enough to have a spurt in language
and development of certain skills and progresses, when they're an
adolescent or an adult, they may be indistinguishable from someone who
has Asperger's syndrome. The categories are, in a sense,
artificially designated by lists of different behavioral developmental
characteristics. It's not like we have a biological measure that can
say, oh, you have autism, capital A, and you have PDD-NOS because you
have this substance in your blood or on your skin that helps us know
for sure what category it is. It's all by observation and comparing to
standards of the behavioral evaluation. NORRIS: Dr. Levy, thank you very much for your time. Dr. LEVY: My pleasure. NORRIS:
Dr. Susan Levy is a developmental pediatrician and she's the medical
director of the Regional Autism Center at Children's Hospital of
Philadelphia.
我儿子22个月了,刚刚被查出autism(自闭症),真是让我五雷轰顶---我那可爱快乐的宝宝,怎么会得上这个毛病.
最近疯狂查资料,翻看宝宝日记,发现很多症状如不反应别人叫他名字,爱转圈,玩**,很少eye contact等,都是打完MMR之后出现的.
而且最近很多研究证明疫苗接种,特别是MMR和带Mercury的,都是容易导致autism的原因.
宝宝那可恨的Ped,一再强调疫苗的重要,还说不打Daycare不会接受,奶奶的!!!
希望妈妈们吸取教训吧. 还有希望孩子有autism的妈妈们合起来盖作楼,共同战胜病魔!!
[此贴子已经被作者于2009-10-6 14:36:55编辑过]
没有爬楼. 建议 MM 找律师. 前一阵不是有个家庭获得赔偿了么? 美国有专门的疫苗基金, 赔偿由于打疫苗引起的损伤的.
BLESS!
看得我也怕怕。我们家的都是一岁多打的MMR，其他的疫苗经常几个一起打。看来以后得小心点了
JUST WANT TO LET OTHER MMs KNOW: IT IS NOT REQUIRED FOR DAYCARE!
My son goes to daycare and is almost 22 months and has not got MMR yet. If daycare says it is required, then tell them, your religion prohibits you to do this (this is one of my american friends taught me to say). Then you can decide whenever you want your kids to get the MMR.
Bless!
我们也不肯学说话，到现在爸爸妈妈都不肯叫，
让他看书，也不要看。
SAME HERE
happyface mm 真nice，说了这么多。
RE!
就像我们小子，虽然说话完，也不爱和人交流，
但他心里可是明白着那，父母千万不要push和责怪，也不要表现出来沮丧担心，
多鼓励，不停的告诉他，他是最可爱最sweet的，有什么进步一定要鼓励。
我记得我们儿子开始的时候虽然不喜欢人抱，不主动要人抱，不看人，摔跤不哭，不指东西。
但是我每次强迫的抱他，他有时会不看人的偷偷乐。
我就知道他心里是喜欢的，只是不知道如何表达而已。
我就一天到晚的抱他，和他说话，
我们请过老师，但是我个人认为老师的教法不适合我们家，
他们就是像训练小狗一样训练孩子，重复多次后期望得到结果，
但我们家小子很倔，他需要的是爱护鼓励，不是重复无聊。
当然，现在这小子是完全变了个人，看到我是一天到晚的要亲，
kiss cheek, kiss face, kiss 嘴巴。
把他老爸嫉妒的。。。
还要重重感谢happyface mm,mm心这么好,一定有回报的
mm真是太nice了! 不好意思我昨天今天都在疯狂research autism,学习ABA therapy,没有上来回复.
还要重重感谢happyface mm,mm心这么好,一定有回报的
楼主来了! 抱一下!
我儿子这么大的时候, 我也怀疑过. 能理解一点点你的不容易. 你一定要休息好啊!
另外, 孩子爸一般进入角色比较慢. 如果你家也是这样, 给他多一点时间,慢慢参与进来.
西湖mm说的那篇文章我昨天在报纸上也看到了，为什么发病率这么高呢，57个男孩中就有一个啊，太高了。
我觉得现在的诊断很多false positive,
而且 autism spectrum 是个很大的范围，
再有，内向的孩子未必就有问题，
打个比方，我小时候爱笑，大笑，然后从小就被教育要笑不露齿，
但是那样就违反了我的本性了，
强扭了适合了社会但并不适合自己。
autism spectrum 和内向也是一样的，
美国是个很注重社交的社会，
但是强迫每个人都social会抹杀一些孩子的个性，
kids should be kids,
they should play, they should be loved,
they should not been trained like dogs...
我觉得现在的诊断很多false positive,
而且 autism spectrum 是个很大的范围，
鉴于这个DISORDER越早干预效果越好,MISS了以后损失会很大,我个人还是支持"宁多勿漏"的方针.
再有，内向的孩子未必就有问题，
内向的娃肯定没问题啊.我是在美国学习到的'内向的娃是警惕性高,善于观察...'要尊重孩子,不要PUSH.
打个比方，我小时候爱笑，大笑，然后从小就被教育要笑不露齿，
但是那样就违反了我的本性了，
强扭了适合了社会但并不适合自己。
autism spectrum 和内向也是一样的，这个我有异议.
美国是个很注重社交的社会，
但是强迫每个人都social会抹杀一些孩子的个性，
kids should be kids,
they should play, they should be loved,
they should not been trained like dogs...
我不知道是整个PROGRAM是如此设计的, 还是去你家的那个人技术有问题.我女儿接受SPEECH THEAROPY
来的人很会因材施教.
感觉同样被诊断为AUTISM的小孩子, 彼此之间会有很大不同. 有的大脑有问题, MRI就能看出来. 有很多就不是.
有的小孩是没有办法在众多信号中区分主次, 所以不喜欢EYE CONTACT, 因为人的面部表情有丰富的信号.
我觉得现在的诊断很多false positive,
而且 autism spectrum 是个很大的范围，
再有，内向的孩子未必就有问题，
我不知道是整个PROGRAM是如此设计的, 还是去你家的那个人技术有问题.我女儿接受SPEECH THEAROPY
speech therapist和ABA teacher是不一样的。。。
speech therapist和ABA teacher是不一样的。。。
谢谢指正.
也看了你前面的回贴. 妈妈是孩子最好的老师, 在你身上再次得到证明! 早几年看到就好了. 我儿子小时候也不让我抱, 我就任他随便了. 少抱了多少次啊!
如果我的宝宝有这方面的问题，我不怕给她这个label，因为更重要的是，给她将来的人生打好基础，让她有条件成功。
谢谢mm热心的回复,请问你们家宝宝什么时候开始"变了个人"呢? 我现在是尽最大努力,然后等奇迹出现...
以下是引用xcyd在2009-10-7 10:27:00的发言：
有一点啊，父母千万不要label孩子，even if there's sign of autism spectrum,
就像我们小子，虽然说话完，也不爱和人交流，
但他心里可是明白着那，父母千万不要push和责怪，也不要表现出来沮丧担心，
多鼓励，不停的告诉他，他是最可爱最sweet的，有什么进步一定要鼓励。
我记得我们儿子开始的时候虽然不喜欢人抱，不主动要人抱，不看人，摔跤不哭，不指东西。
但是我每次强迫的抱他，他有时会不看人的偷偷乐。
我就知道他心里是喜欢的，只是不知道如何表达而已。
我就一天到晚的抱他，和他说话，
我们请过老师，但是我个人认为老师的教法不适合我们家，
他们就是像训练小狗一样训练孩子，重复多次后期望得到结果，
但我们家小子很倔，他需要的是爱护鼓励，不是重复无聊。
当然，现在这小子是完全变了个人，看到我是一天到晚的要亲，
kiss cheek, kiss face, kiss 嘴巴。
把他老爸嫉妒的。。。
我觉得现在的诊断很多false positive,
而且 autism spectrum 是个很大的范围，
再有，内向的孩子未必就有问题，
打个比方，我小时候爱笑，大笑，然后从小就被教育要笑不露齿，
但是那样就违反了我的本性了，
强扭了适合了社会但并不适合自己。
autism spectrum 和内向也是一样的，
美国是个很注重社交的社会，
但是强迫每个人都social会抹杀一些孩子的个性，
kids should be kids,
they should play, they should be loved,
they should not been trained like dogs...
顶。
谢谢mm热心的回复,请问你们家宝宝什么时候开始"变了个人"呢? 我现在是尽最大努力,然后等奇迹出现...
是慢慢变的，不过他上幼儿园好像很有好处，
不过上幼儿园也可能是反作用的。。。
我们的朋友邻居以前是不说，
但是最近他们都说啊，狗狗现在比以前好多了!
以前谁见了狗狗都是“啊，这孩子好酷啊" ...
18月early intervention 是autism spetrum, 每个项目都delay 10个月左右
2岁半early intervention 是speech delay，就speech delay, others are fine.
now... I am not sure, I think he is fine, but he is still quite reserved compare to our younger one,
and he just start saying sentence,
but he do have a lot of imagination!
他会告诉我，
too early, sun go down, moon up, wash face :D
Mon Mar 17 11:49:41 2008
发现小子这两天进步是突飞猛进啊.
从智力上,前两天给他翻出了许久不玩的lego sorter,
那个sorter上面写着是给6~18m的baby玩的,
但是我们狗狗从来没有真的会放进去过,
结果上星期我们把他翻出来给小子,
小家伙可喜欢了,
每放进去一个,他就高兴的拍手看着你,
你和他一起拍手他最兴奋了.
开始几天他还不清楚哪个洞放哪个,需要大人指导一下,
没几天就很清楚哪是哪了,方形和花形的特别清楚,
椭圆和三角还有点糊涂.
我觉得他是开始喜欢大人的赞许了,
所以就学东西特别快,做到了什么,得到赞许特别快乐.
从社交上,周六去朋友家玩,有4岁大的哥哥,
两岁多的姐姐,13月的妹妹.
虽然一进门小子还是照例忽略其他孩子的存在,
去玩玩具,但吃饭的时候坐在high chair上,
我坐在两个high chair中间,结果两小家伙居然
越过我在那里咿咿啊啊的对话呢.
忙把两个小人搬到一起,
结果狗狗高兴的把手里的玩具都放到小妹妹的high chair台上,
真是让妈妈大吃一惊...
不过后来小子发现东西回不来了以后又居然委屈的留了好几滴眼泪,
那才叫我跌破眼镜呢.
居然这个楞头小子也会这么哭啊.
朋友赶忙有拿了一堆玩具来分给两个孩子,小子才不哭了.
到走的时候,小子尤其的乖,给每个哥哥姐姐妹妹都wave byebye,
还给大家飞吻,飞的标准之极,而且还把手按到最漂亮的阿姨嘴上...
今天我上班他还给wave byebye和飞吻呢,
这对老妈也算是第一次了.
看来要楞头小子进步关键是要打通小子的傻脑筋,
用拥抱,亲吻,小子发现了爱是那么的舒服,
他就会以努力接受instruction,来回报,
希望能让妈妈高兴.
这是第一次飞跃的记录：
Mon Mar 17 11:49:41 2008
看了真感动！
谢谢MM,你让我看到了希望！
[此贴子已经被作者于2009-10-7 12:12:49编辑过]
是慢慢变的，不过他上幼儿园好像很有好处，
不过上幼儿园也可能是反作用的。。。
我们的朋友邻居以前是不说，
但是最近他们都说啊，狗狗现在比以前好多了!
以前谁见了狗狗都是“啊，这孩子好酷啊" ...
18月early intervention 是autism spetrum, 每个项目都delay 10个月左右
2岁半early intervention 是speech delay，就speech delay, others are fine.
now... I am not sure, I think he is fine, but he is still quite reserved compare to our younger one,
and he just start saying sentence,
but he do have a lot of imagination!
他会告诉我，
too early, sun go down, moon up, wash face :D
在认真的学习中。我们在两岁半上daycare之前没发现我儿子有什么明显的不同，现在上了daycare半年多了，问题越来越多。我就是觉得他就有可能是daycare起了反作用的那种。首先，他说话没人听得懂，他两岁半的时候说得已经很好了，如果每次说话都没有反馈，会不会他就觉得别人不理他是应该的，然后就慢慢的习惯了自己跟自己说话。然后玩也是一样的，以前在家的时候都一定要我们陪着玩，去了不可能有人陪他玩，他做好了什么事情，别人也可能没有机会看到来表扬他，然后他就习惯自己玩，自己欣赏，自己看着乐。
每天在监控里看着他就一个人在那里走来走去，或者就自己坐在那里画画写字。有时候看起来他很开心的一个人在那里又唱又跳的，虽然他看上去是开心的，可是我的心里就说不出的难受。
我觉得现在的诊断很多false positive,
而且 autism spectrum 是个很大的范围，
再有，内向的孩子未必就有问题，
打个比方，我小时候爱笑，大笑，然后从小就被教育要笑不露齿，
但是那样就违反了我的本性了，
强扭了适合了社会但并不适合自己。
autism spectrum 和内向也是一样的，
美国是个很注重社交的社会，
但是强迫每个人都social会抹杀一些孩子的个性，
kids should be kids,
they should play, they should be loved,
they should not been trained like dogs...
我也这样认为，就像看见国内的广告说，90%的人群都缺钙，缺这个缺那个的，从医学统计学来说就是错误的，一个样本里，中间那90是被定义为正常的，下面和上面的5%才是异常的啊。
乙肝，卡介苗是不能拖的吧，其他不知道了
美国这里不打卡介苗的
即使真的Autism也没有什么了不起
况且孩子的个体差异很大
楼主妈妈可以关注一下华德福的教育体系
Waldorf Education
这个体系有很好的治疗和修复效果
而且该体系本来就是反对给婴幼儿注射疫苗的
所以不存在什么拒绝入学的问题
现在没人敢说疫苗没有副作用
任何疫苗都存在一个risk/benefit比
问题是现在只能看到疫苗的短期副作用
长期方面，目前还看不到
可能科学上永远也看不到
现在最有意思的是
疫苗的有效性也越来越多的遭到质疑
目前沮丧的结论是无法证明疫苗有效，也没法证明是无效的
可能需要更多的调查
不过调查需要钱
钱是从疫苗公司等生物企业出的
他们不会给这笔钱的
我搜集了一下关于疫苗的讨论，见这里
http://www.waldorfhome.cn/uch/space.php?uid=129&do=blog&id=338
只是自闭一般在孩子12－24个月期间会表现出来。18个月的时候就可以观察到的。所以很多人认为自闭和mmr相关。
孩子在12月以前是没有什么social skill的。 所以也不会有自闭相关的表象。一岁以后开始语言学习，自闭的表象就出来了。
但是第二类错误无法估计
随着反疫苗运动的风起云涌
不注射疫苗的小孩增加
可以更好的做分析
疫苗是否会降低感染率
已经对身体的长期影响
只是需要时间
所以，我比较倾向赞同前面一mm说的，还是weak genetic+trigger enviroment...
MMR是麻疹,流行性腮腺炎和风疹3连针 我姐姐(在国内 是医生)说觉得这可能会造成一些孩子自闭症是因为它是3种病的预防针合成一针 把三种病even inactive的病毒打到身体里谁知道会产生什么副作用呢
国内自闭症比例比美国低 这三针是分着打或者不打的 总之国内一次只打抗一种病的预防针
其他预防针可以要求ped分着打 多去几次 但是这个是一针 好像不能要求分着打...
这个在我儿子上也不成立，我们一岁以后换了儿医，不知上一个医生怎么回事，很多疫苗都delay了，所以1岁，15个月checkup都补打了不少疫苗，都是4针。。。
我儿子22个月了,刚刚被查出autism(自闭症),真是让我五雷轰顶---我那可爱快乐的宝宝,怎么会得上这个毛病.
最近疯狂查资料,翻看宝宝日记,发现很多症状如不反应别人叫他名字,爱转圈,玩**,很少eye contact等,都是打完MMR之后出现的.
而且最近很多研究证明疫苗接种,特别是MMR和带Mercury的,都是容易导致autism的原因.
宝宝那可恨的Ped,一再强调疫苗的重要,还说不打Daycare不会接受,奶奶的!!!
希望妈妈们吸取教训吧. 还有希望孩子有autism的妈妈们合起来盖作楼,共同战胜病魔!!
[此贴子已经被作者于2009-10-7 11:44:21编辑过]
什么是“玩**”？我们家虽然有eye contact，但很爱转圈圈，说话还说不了几个音。着急死了。LZMM是自己找儿医说的吗？还是他先提出的？
什么是“玩**”？我们家虽然有eye contact，但很爱转圈圈，说话还说不了几个音。着急死了。LZMM是自己找儿医说的吗？还是他先提出的？
我家大宝小时候有一段时间也喜欢转个圈。其实大家不要说风就是雨，瞎想。小孩为了好玩转圈和那种不正常的转圈，我想应该能分辨出来。大宝转了一段时间，哦，转圈是这样的啊，他学会了或者说玩够了，就不再转了。
他也喜欢玩汽车的**。他喜欢把汽车反过来，转**。过一段时间，他明白了，就不转了。
所以，看一个孩子正常不正常，不要通过一两个行为去看，要整体地来看。
恩, 我儿子12个月的时候准时打了mmr，打完没有不良反应。他有严重的食物过敏和湿疹，现在20个月了还是对鸡蛋牛奶非常过敏，小时候因为我们对他的过敏认识不足，导致他9-12个月发育迟缓，体重身高都长得很少。过了一岁才非常严格地控制了他的饮食。就是这样，也没有出现自闭症状，从小就很开郎，不怕生，爱扎堆儿，讲话早，现在都能说句子背唐诗了。
所以，我比较倾向赞同前面一mm说的，还是weak genetic+trigger enviroment...
原来湿疹影响体重的。我家女儿从4个月爆发，到7个月查出过敏源开始限制饮食种类，期间一直没长体重，个头倒是没耽误长，一直是95%。
看来生女儿好处多。
我女儿3岁前坚决不送daycare。
这栋楼是在讨论自闭症.
你怎么得出如此古怪的结论. 逻辑不太通顺啊.
女孩子有女孩子的疾病, 宫颈癌, 乳隙癌
男孩子有男孩子的病, 前列隙癌.
要是我们家的大黄狗看到这栋楼,
依你的逻辑,一定会说:
"生小黄狗好处多.没有宫颈癌, 乳隙癌, 前列隙癌"
打MMR后得austine的事实千真万确！！！ 这方面的文章和录像有很多很多，一直是public health里的热门话题。google一下就知道了。
只是，究竟是什么机制怎样引起的，目前仍在争论中。
只是，并非每一个austine都是打MMR引起的，也并非所有孩子大了MMR后都会得austine。 所以，打还是不打，仍有很多争论 －－利弊靠自己权衡。
[此贴子已经被作者于2009-10-6 11:23:45编辑过]
re，这个问题争议还是很大的
By 3 months
Early diagnosis of autism can make a dramatic difference. Here are some signs that may indicate your baby should have a developmental evaluation, according to the Centers for Disease Control and Prevention:
She doesn't respond to loud noises.
She doesn't follow moving objects with her eyes.
She doesn't grasp and hold objects.
She doesn't smile at people.
She doesn't babble.
She doesn't pay attention to new faces
By 7 Months
She doesn't turn her head to locate where sounds are coming from.
She shows no affection for you.
She doesn't laugh or make squealing sounds.
She doesn't reach for objects.
She doesn't smile on her own.
She doesn't try to attract attention through actions.
She doesn't have any interest in games such as peekaboo
By 12 Months
She doesn't crawl.
She doesn't say single words.
She doesn't use gestures such as waving or shaking her head.
She doesn't point to objects or pictures.
She can't stand when supported.
By 24 Months
She can't walk.
She doesn't speak more than 15 words.
She doesn't use two-word sentences.
She doesn't seem to know the function of common household objects, such as a telephone, fork, and spoon.
She doesn't imitate your actions or words.
She can't push a wheeled toy.
She doesn't follow simple instructions
source: http://www.parents.com/baby/health/autism/autism-month-by-month-guide/?page=1
[此贴子已经被作者于2009/12/21 13:42:50编辑过]
其实autism在5岁半左右的诊断是confidence比较高的，因为到了5岁多，小孩子的情况还没有明显改善，那么基本可以确定就是autism了
2岁左右的检查，主要就是基于observation，其实是有点主观的。有些时候，医生也不能确定，毕竟孩子还小，但保险起见，医生都倾向于make a call，这样你家宝宝就有机会得到训练，改善目前的delay。从positive的角度来看，你的宝贝发现的早，经过early intervention，是有可能慢慢outgrow的。我听说过有一个例子，小朋友在2岁被诊断，到3岁诊断又被撤掉了
另外，像有些mm说过的，不要被诊断吓倒，你的孩子还是那么的可爱，这点不会，也不应该被一个诊断所改变。努力帮着宝宝度过难关是最重要的，他的每一个进步都会让你惊喜
只捡不会引起人反感的说吧
不知道国内现在要求怎么样，反正我小时候MMR是必须要打的，或者我那个地区是要求打的（北京）
但是我后面还是得过腮腺炎（大于3岁的时候），得过风疹（小学6年级），当然其他病就数不胜数了，要说我小时候体质那叫一个差啊，还好有后遗症的几种病倒是没得过，不然...
出国前不是要填那个免疫表嘛，我就发现我是打过MMR的，为什么后来还得了
我老妈当时说你要是没打，估计发病的时候可就没那么容易撑过去了
我才想起免疫课上的内容，疫苗的基本理念就是因为二次接触病原的时候机体产生的抗体远远大于第一次接触。。。
Bless!
Private Practice里就一集就是说一个妈妈坚持不让小儿子打疫苗，因为大儿子打了以后就自闭了。
难道真是事出有因？
private practice ?是什么？
不过，LZ妈妈自己先冷静，不要自己吓自己，你的态度也许会影响到小朋友。也许有的小孩仅仅是相对内向。你把他当病人，他可能就把自己当病人了，不要再环境上给他压力。
我以前有学生的弟弟，不和外人讲话，自己喜欢画画，对动物，树木讲话，只和自己姐姐讲话，生人基本视而不见。但国内也不是太重视，他妈妈都认为他正常，就像对待平常小孩一样，后来念小学也正常。
Hope your baby can recover! Bless.
很同情mm。我儿子很晚才开始讲话，虽然不是autism，但我经历了很多，这方面的信息看了很多，儿子做了很多therapy。首先autism一般 要到两岁才发现，很多人相信疫苗，汞是原因之一，不过谁也没有确切证明。但以后的疫苗你可以拒绝打，学校是不会拒绝接受你儿子的。 第一要医生写一个证明，说你儿子打疫苗后有“reverse allergy reaction”，给学校。另外可以要 儿科医生给儿子做“blood tittle”， 测血液里一些疫苗的浓度，可能有很多疫苗他体内浓度够高，根本不用打。 我儿子属于development disorder，语言和社交严重delay。但 4岁以后语言社交个方面突非猛进，记忆和阅读能力都超过同龄小孩。所以mm要有信心，何况autism有轻也有重。 1 你肯定已经开始early intervention，但如果还要另外找speech，physical，or ocupational therapy， 保险都报的。 很重要的是找ABA therapist。 ABA目前是最对autism最有效的。ABA大部分保险都不包的。你自己可以查一下。 2。如果不在好学区，可以搬到附近学区最好的地方去。好的学区会给你儿子很多免费therapy，差的学区会耽搁你儿子的（请mm三思，等你将来有机会意识到这点的时候，可能已经有点晚）。 3。我猜你已经带儿子看了developmental specialist。 但尽量多打听找个最好的，好的医生会给你很多建议，推荐很多therapist或课给你。 4。 很重要的一点，找一个 DAN doctor。这种医生大部过分保险都不报。（可能bluecross报的）。但很值得去看。／／ 医生会查小孩血液，大便，尿液。看小孩对那些食物是“sensitive”。 譬如大部分autism小孩gluten（面精）和casine（奶制品） sensitive。 我甚至建议你现在就可以停止奶制品，改喝豆奶。特别是如果他只爱喝奶或睡觉不好。我儿子就对奶制品sensitive， 没任何反映，但血液不能过滤率其中大分子，然后集中在大脑。 ／／我儿子还查出体内酶和细菌不太够，还有一些坏的细菌在体内。 这种会造成有的小孩toe walking。医生会开很多supplement去改善 ／／还一个我非常感激的是医生查出我儿子不能吸收folic acid，这对交流非常重要，我儿子必须口服另一种类似的药。大部分autism小孩都严重缺folic acid／B12，维生素D，还有锌，镁等。 我一个朋友的儿子是autism， 90％我们吃的东西，他儿子都查出来不能吃。她说食物限制很有用。有时不小心吃了， 她儿子的眼光交流就差多了。（另外前面提到的疫苗过敏证明，儿科医生不愿写的话，DAN医生会写的） 我儿子不知是因为大了，语言发育跟上了，还是停止奶制品或吃各种supplement有用，反正最近一年进步非常块，和正常小孩一样了。能想到的就这些。希望对mm有用。
Mark. Thanks for sharing!
MM讲得很好,和我读过的一本书的观点很相近.而且我觉得宝宝和你都很幸运.你因为有好的医生引导,没有走弯路,很快找到问题的根本;而宝宝有你这样的妈妈,平安地度过了一生中最艰难的一段,虽然他自己并没有意识到.
Healing the New Childhood Epidemics (Autism, ADHD, Asthma, and Allergies)
Kenneth Bock and Cameron Stauth
我是看了这个贴子才去看的书.我很认同书中的观点,相信食物限制对4A治疗的作用.建议楼主MM也读一读,换一个角度看这个问题和解决方法,会对你的宝宝和自己有意想不到的帮助.
http://web.wenxuecity.com/BBSView.php?SubID=kids&MsgID=1200013
关于疫苗,每个宝宝个体对不同的疫苗的反应完全不同,所以打好还是不打好不可以一概而论.我家宝宝20月大,我的原则是能不打就不打,能拖就拖.即使打,也一定避免在宝宝身体状况不佳的情况下打--在这点上,希望每个妈妈都要注意.
祝福楼主MM和宝宝!!!
mark
here is the link:
http://www.3news.co.nz/Anti-MMR-vaccine-doctor-banned-from-practicing-in-UK/tabid/423/articleID/157720/Default.aspx
sign that you need to watch out for autism:
By 3 months
Early diagnosis of autism can make a dramatic difference. Here are some signs that may indicate your baby should have a developmental evaluation, according to the Centers for Disease Control and Prevention:
She doesn't respond to loud noises.
She doesn't follow moving objects with her eyes.
She doesn't grasp and hold objects.
She doesn't smile at people.
She doesn't babble.
She doesn't pay attention to new faces
By 7 Months
She doesn't turn her head to locate where sounds are coming from.
She shows no affection for you.
She doesn't laugh or make squealing sounds.
She doesn't reach for objects.
She doesn't smile on her own.
She doesn't try to attract attention through actions.
She doesn't have any interest in games such as peekaboo
By 12 Months
She doesn't crawl.
She doesn't say single words.
She doesn't use gestures such as waving or shaking her head.
She doesn't point to objects or pictures.
She can't stand when supported.
By 24 Months
She can't walk.
She doesn't speak more than 15 words.
She doesn't use two-word sentences.
She doesn't seem to know the function of common household objects, such as a telephone, fork, and spoon.
She doesn't imitate your actions or words.
She can't push a wheeled toy.
She doesn't follow simple instructions
source: http://www.parents.com/baby/health/autism/autism-month-by-month-guide/?page=1
[此贴子已经被作者于2009/12/21 13:42:50编辑过] 越看越慌，肚子里的是个男娃呢