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smartshanshan
楼主 (北美华人网)
 唉,真是烦死了国内那些乱七八糟的小报,昨天我妈在一个小报上面看到所谓“转载自人民日报”的文章,说是脐带血不能治疗自己的病,只能治疗别人的病,让家长掏钱存,只是商业行为。

我本来都打算要存脐带血了,结果被她说了半天,说没用,我真是气死了。

我就想非常乌鸦嘴的问一句,如果真的有病,那脐带血带到底能不能治自己的病啊?

唉,tnnd,恨死那些为了骗稿费乱写的国内报纸杂志了,自从怀孕以来我已经听了无数关于“健康”方面的建议,全是我妈从各类小报、ccav等等地方看的,唉唉唉
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ease
2 楼
据我所知,好像是不适合自己用,因为很多血液病和基因有关,自己的血是同样的基因所以可能有同样的问题。
有可能将来给兄弟姐妹用。
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jntl
3 楼
我也听说是不能给自己用的,可以给兄弟姐妹用。
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superball
4 楼
  unfortunatly, I think it is ture. Basically, cord blood can not be used for self.
 
  I tried to explain in other post, but nobody care.
 
  The reason:   1. if cord blood is saved and the child is sick at very young age (hope not), the stem cells saved most posiblely was alrreaday has defect. So the cells from cord blood is ill already and can not be used for therapy.
 
                     2. If when the child grow up and sick (hope not), the amount of stem cells saved from the new born cord blood (even with culture) will not be enough to used in therapy for an adult (here we assume the cord cells were healthy when collected, there is still possible the cells may not be healthy).
 
                     3. The only cases i have heard of is the cells from cordblood cells of one child was used to treat the sibling when the sibling is little and sick.
 
                      So I thinik it is ture that the cells from the cord blood can not be used by self, maybe can be used by the sibling when the sibling is still a child. or can be used by other child that somehow matches.
 
 
                 Hopefully, I explain it clear. But here is only my opinion based on my knowledge learned from multiple researchers and noncologists. you still need to make your own desition and nobodyelse can be responsible for your dicision.
 
                Please don't 恨死国内报纸杂志 by default, sometime they are telling the truth.
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superball
5 楼
   In addtion, if the cells from cordblood of one child are used by a sibling. Then the child can donate the stem cells the sibling anytime when the cells is needed. So, in my opinion, there is no need to save cord blood cells at all.
 
 
   especially, the facility saving blood cord cells is not good. there are cases about very low cell count samples(unqulified samples) and comtaminations. Some people found out they were cheated by the facility and they are trying to sue the facility.
 
  Again, here is my own opinion and you make your own dicision and i am not responsible for your decitions.
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singerbell
6 楼
 
捐了不就行了,万一可以用再去取。
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cauchy
7 楼
如果是遗传的基因病,有可能对自己帮助不大
但是如果是非遗传的严重疾病,比如急性白血病或者需要骨髓移植transplant什么的,脐带血就可以发挥很大的作用
 
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cauchy
8 楼
以下是引用superball在2009-4-24 11:12:00的发言:

 
 
                     2. If when the child grow up and sick (hope not), the amount of stem cells saved from the new born cord blood (even with culture) will not be enough to used in therapy for an adult (here we assume the cord cells were healthy when collected, there is still possible the cells may not be healthy).
 
                    
That is not true 我咨询过ob还有其他的医生
他们说现在的技术成熟,可以amplify干细胞提供成人所需,而且几十年后的科技发展速度不是现在可以预想的
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lilymoo
9 楼
Not all the diseases are caused by genetics.  Some are caused by infection, virus...so yes stem cells can be used on oneself.  Also even if it can not cure it can buy time, I don't consider that a waste of money.  Last, technology is advancing fast, in time there will be more use for them.
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smartshanshan
10 楼
 呜呜呜,我本来想当亲妈的,难道现在改后妈?
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superball
11 楼
以下是引用cauchy在2009-4-24 11:29:00的发言:

That is not true 我咨询过ob还有其他的医生
他们说现在的技术成熟,可以amplify干细胞提供成人所需,而且几十年后的科技发展速度不是现在可以预想的
  Are they absolutely sure about this or they just want to encourage you to do this? Ask them again, Is there any single successful case to use cord blood cells to treat an adult at all? It is very difficult to amplify stem cells and prevent them from differentiation to use them in therapy in reality.
 
  All the cases I knew is to use blood cells to young child. let me know if there are actually a case for adult therapy.  I am using frozen cells myself, yiou will have some loss of cell counts even during the retriving step. And actually, If you are in the research field, you can totally 预想几十年后的科技发展速度.
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longnine
12 楼
该用户帖子内容已被管理员屏蔽
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superball
13 楼
以下是引用longnine在2009-4-24 12:28:00的发言:
I discussed this with three OBs and they all recommended saving it.
  Did you ask for the reason? I discussed with more than 3 oncologist, none of them recommended it.
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reflect
14 楼
 my ob doesn't recommended it. Besides, I read the article that because Obama is "promoting" stem cell research, it is possible that pretty soon we don't need biblical blood, just stem cell from regular blood to do the same thing -- I am not doctor and don't understand everything but I didn't save it.
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superball
15 楼
以下是引用reflect在2009-4-24 12:34:00的发言:
 my ob doesn't recommended it. Besides, I read the article that because Obama is "promoting" stem cell research, it is possible that pretty soon we don't need biblical blood, just stem cell from regular blood to do the same thing -- I am not doctor and don't understand everything but I didn't save it.

  I agree with you.
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aroamer
16 楼
以下是引用superball在2009-4-24 12:26:00的发言:

  Are they absolutely sure about this or they just want to encourage you to do this? Ask them again, Is there any single successful case to use cord blood cells to treat an adult at all? It is very difficult to amplify stem cells and prevent them from differentiation to use them in therapy in reality.
 
  All the cases I knew is to use blood cells to young child. let me know if there are actually a case for adult therapy.  I am using frozen cells myself, yiou will have some loss of cell counts even during the retriving step. And actually, If you are in the research field, you can totally 预想几十年后的科技发展速度.
Agree with this. Have thought about this for my not yet born baby too. I am in clinical medicine and my husband is doing stem cell research. We personally think there won't be much use, even if technology advances in the future. The newest research is to develop regenerated tissue out of already differentiated cells, e.g. skin cells, not stem cells. There are just too few clinical cases to make the argument for cord blood use convincing. But--you know--when it comes to your own children, you always think twice and twice and again. We haven't decided yet, but likely will not save it.
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lilymoo
17 楼
以下是引用superball在2009-4-24 12:33:00的发言:

  Did you ask for the reason? I discussed with more than 3 oncologist, none of them recommended it.
I asked my oncologist friends too (whom are saving cord blood for their own children) so it doesn't really mean anything.  I guess it is a personal choice, no one banks cord blood hoping to use it one day, at least not me, i hope i don't have to use it at all, but at least i know that if one day I need it, at least it will be available.  So, if people have the money and wants to do it, why not?
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cauchy
18 楼
以下是引用lilymoo在2009-4-24 14:20:00的发言:

I asked my oncologist friends too (whom are saving cord blood for their own children) so it doesn't really mean anything.  I guess it is a personal choice, no one banks cord blood hoping to use it one day, at least not me, i hope i don't have to use it at all, but at least i know that if one day I need it, at least it will be available.  So, if people have the money and wants to do it, why not?
right, 迄今为止我知道选择不做得,很多还是因为经济因素的考虑。如果它花费很少,相信很多家庭都会选择储存cord blood。
如果经济上负担的起,就当买一个保险好了,没有人希望有一天用上它,但是也不用完全否定它的作用。
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superball
19 楼
以下是引用lilymoo在2009-4-24 14:20:00的发言:

I asked my oncologist friends too (whom are saving cord blood for their own children) so it doesn't really mean anything.  I guess it is a personal choice, no one banks cord blood hoping to use it one day, at least not me, i hope i don't have to use it at all, but at least i know that if one day I need it, at least it will be available.  So, if people have the money and wants to do it, why not?
  Thank you for the comment. The problem is that when needed one day, it will not be useful or available for real use because of the reason I discuss in previous replies, also look aroamer and her husband'opinnion at floor 16. They are in stem cell research field. Some People who choose not to save it is because of money issue, but a lot of others don't do it because they understand it will be useless cause they have some knowledge of the technology. Some OB suggest it because they don't really know about the stem cells research today.
 
   However, I agree it is really a personal choice. Everybody should make a decision of his own. Here we just discuss and share some information.
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lilymoo
20 楼
以下是引用superball在2009-4-24 15:13:00的发言:

  Thank you for the comment. The problem is that when needed one day, it will not be useful or available for real use because of the reason I discuss in previous replies, also look aroamer and her husband'opinnion at floor 16. They are in stem cell research field. Some People who choose not to save it is because of money issue, but a lot of others don't do it because they understand it will be useless cause they have some knowledge of the technology. Some OB suggest it because they don't really know about the stem cells research today.
 
   However, I agree it is really a personal choice. Everybody should make a decision of his own. Here we just discuss and share some information.
well, that's still personal opinion, like i said other professionals in the field may very well disagree.  who knows what's exactly gonna happen in 10, or 20 years.  At the end of the day, the people who can afford it and wants to bank will still bank, the people who can't afford it or don't believe in it still won't bank, no one can convince anyone else.  however, i don't think the decision to bank cord blood stems from lack of understanding.  I know plenty of people also in the research field/medical field who deals with stem cell hands on and still choose to bank.  But thanks for providing all the info. you know, i am sure it is helpful to some people in making their decision.
 
 
[此贴子已经被作者于2009-4-24 15:46:20编辑过]
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bingxuecongming
21 楼
看了以后好纠结!要不要存呢?
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lilymoo
22 楼
以下是引用bingxuecongming在2009-4-24 16:12:00的发言:
看了以后好纠结!要不要存呢?
对你来说有没有经济负担? 不便宜啊。
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cake1993
23 楼
以下是引用cauchy在2009-4-24 11:28:00的发言:

如果是遗传的基因病,有可能对自己帮助不大
但是如果是非遗传的严重疾病,比如急性白血病或者需要骨髓移植transplant什么的,脐带血就可以发挥很大的作用
 
re zhe ge!
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cake1993
24 楼
以下是引用cauchy在2009-4-24 14:58:00的发言:

right, 迄今为止我知道选择不做得,很多还是因为经济因素的考虑。如果它花费很少,相信很多家庭都会选择储存cord blood。
如果经济上负担的起,就当买一个保险好了,没有人希望有一天用上它,但是也不用完全否定它的作用。
agree! Just in case...(knock knock wood)
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littleflyingpig
25 楼
i made the decision : NO..
 
my OB said it depends on my own desicion, she wont' give me any suggestion.
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celia5006
26 楼
皇上啊,如果经济上不算很大负担的话,就存吧...总比某天后悔为什么没有存来的好..........
清风闲云
27 楼
就跟life insurance一样,有人坚决不买,有人一定要买,但买的人也一定不想用. 对我来说每年$125也就是全家出去多吃两顿饭,为了将来不后悔,想都不想就买了.就算没用,不也就少吃两顿饭吗?没啥好可惜的.
飘飘
28 楼
以下是引用清风闲云在2009-4-25 16:07:00的发言:

就跟life insurance一样,有人坚决不买,有人一定要买,但买的人也一定不想用. 对我来说每年$125也就是全家出去多吃两顿饭,为了将来不后悔,想都不想就买了.就算没用,不也就少吃两顿饭吗?没啥好可惜的.
是啊,又不是需要砸锅卖铁才存得起的,就算有人告诉我,这个东东只有千万分之一的用途,为了我自己的娃娃,我也会存的。。。而且我确实看到了用CORD BLOOD治疗brain damage的宝宝的报道,在baby center上面,NBC新闻,不能是忽悠人的吧。。。
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smartshanshan
29 楼
以下是引用celia5006在2009-4-25 0:45:00的发言:

    
    皇上啊,如果经济上不算很大负担的话,就存吧...总比某天后悔为什么没有存来的好..........
    

玛雅,你穿越了啊
蓝色精灵
30 楼
 
 
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