Benj的湿疹3个月时开始严重，从脸上发展到全身。期间换了三个儿医，三个皮肤专科医生，一个过敏专科。药物无非是不同种类的激素，反反复复，总不见好。5个月时，由于自己的疏误，用药不当，导致湿疹加重，从moderate severe 升级到severe，让我这个做妈妈的恨不得撞墙。现在Benj 8个月了，经过长时间的实验尝试，总结出一些适合Benj的保湿、治疗方法。目前宝宝的湿疹还是全身都发，但皮肤明显好转，不用激素可以控制。这4个多月来，我在网上疯狂搜索湿疹的治疗方法，听取湿疹宝宝论坛里妈妈们的意见。感谢这些妈妈的经验，今天我开这个帖子，也是答谢。
一句话，小婴儿身体还没长好就出来了，不适应我们的环境。医生的意见一致：用激素控制，耐心等宝宝outgrow。刚开始我不相信，总想找到“根治”的方法，换了7个医生，终于明白了，任何要“根治”的想法不仅徒劳，而且危险。很简单，瓜没长熟，用外力催熟的瓜就不是那个味道了。 我知道做父母的不可能看着宝宝难受，自己什么也不做安心等他grow out of it. 大多数父母在等待宝宝发育完全以前做的一件事就是：寻找过敏原。 [此贴子已经被作者于2010/4/15 17:58:30编辑过]
my baby also has eczema. he started @2mons and much better after he turned 10mons. he used to be all over the body and face, and now is mainly a bit on the face. we tried aveeno baby soothing bath treatment (used perhaps 2 to 3 boxes). don't know whether it helps or baby outgrows, the eczema on his body are almost gone after that.
Thank you so much for taking the time to write all these valuable info. Just out of curiosity, Nutramigen did not help your child at all. As for us, nutramigen and alimentum helped quite a bit.
After reading you two's posts, I did what I can to my daughter. Her situation is not getting worse, but is not getting better either. She still has 红色斑点 all around her bodies. I have to apply some 1% hydrocortisone to her every night.
We are gonna see both pediatric dermatologist and Allergist in the following week.
After reading you two's posts, I did what I can to my daughter. Her situation is not getting worse, but is not getting better either. She still has 红色斑点 all around her bodies. I have to apply some 1% hydrocortisone to her every night.
We are gonna see both pediatric dermatologist and Allergist in the following week.
How are your babies?
Benj is better now. I say "better" because his eczema has cycles now. Sometimes, there are still 红色斑点 all around his bodies due to weather change or food allergy or just nothing. One or two days later, most of the 红色斑点s will gone without steroid. His sleep is not good. I still have to sit on the couch all night holding him by arms to give him better sleeps at night. 1% hydrocortisone is safe to use consecutively till baby's eczema is gone according to my peditrian and dermatologist. If your baby's eczema can be controlled by 1% hydrocortisone, you need not worry about it too much. Summar is coming soon and baby will be better then.
You are such a perfect Mom. When Benj grows up, he will know how much you love him, how much you did for him.
I can not imagine you have to hold him all night long every night. You did everything you can, he will be better and better everyday.
Eczema baby is 靠天吃饭，when it is cool and humid, they are doing well. I pray for rain everyday now. Like what you said, summer is coming soon, they will be better.
After reading you two's posts, I did what I can to my daughter. Her situation is not getting worse, but is not getting better either. She still has 红色斑点 all around her bodies. I have to apply some 1% hydrocortisone to her every night.
We are gonna see both pediatric dermatologist and Allergist in the following week.
阿莱妈, Benj妈: First thank both of you for your eczema articles. They are super super strong.
1)You mentioned it will be better for eczema babies when the summer comes. I have one question regarding how to dress eczema baby in the summer. If you dress the baby in short one-piece, his arms and legs will be exposed for his scratch. But if you dress him in footed one-piece, he may sweat and his eczema gets severe. In your experience, what should we do?
2) Bleach bath: what brand and what concentration bleach did you buy? If I use a baby bath tub, how much bleach do you think I can use?
Thanks a lot 阿莱妈, Benj妈 for your updates. It is great that both of babies are doing better.
About Mango79's question on bleach bath, we had bad experience about that on my daughter. We followed instructions on concentration ( approx 0.5 cup per full adult size tub) and used clorox. However, the night after the bath, my daughter becomes super itchy, much more itchy than other days. My mom and I have to take turns to hold her hands to prevent her from scratching like a monkey. Probably it is one time thing, but we are not dare to try again.
My theory is that bleach bath will be good for eczema which involved certain degree of bacteria infection, for example, if you see water sweating out the skin, which indicates infection, bleach bath can help by killing the bacteria. However, if there are no bacteria involving, bleach will irritate the skin more. Since that accident, we even switch to Chlorine-free diaper, which did not do much to my daughter, but they are more expensive, I would like think it did something
Thanks a lot 阿莱妈, Benj妈 for your updates. It is great that both of babies are doing better.
About Mango79's question on bleach bath, we had bad experience about that on my daughter. We followed instructions on concentration ( approx 0.5 cup per full adult size tub) and used clorox. However, the night after the bath, my daughter becomes super itchy, much more itchy than other days. My mom and I have to take turns to hold her hands to prevent her from scratching like a monkey. Probably it is one time thing, but we are not dare to try again.
My theory is that bleach bath will be good for eczema which involved certain degree of bacteria infection, for example, if you see water sweating out the skin, which indicates infection, bleach bath can help by killing the bacteria. However, if there are no bacteria involving, bleach will irritate the skin more. Since that accident, we even switch to Chlorine-free diaper, which did not do much to my daughter, but they are more expensive, I would like think it did something Thank you very much for sharing your experience. I dare not to give it a try now. My in-laws and my husband are all against bleach bath. If my baby will be like your daughter after the bath, I will be killed by them...
After reading you two's posts, I did what I can to my daughter. Her situation is not getting worse, but is not getting better either. She still has 红色斑点 all around her bodies. I have to apply some 1% hydrocortisone to her every night.
We are gonna see both pediatric dermatologist and Allergist in the following week.
How are your babies?
Rosepathhome, pediatric dermatologist and Allergist 有什么收获，记得回来update一下。谢谢。
阿莱妈, Benj妈: First thank both of you for your eczema articles. They are super super strong.
1)You mentioned it will be better for eczema babies when the summer comes. I have one question regarding how to dress eczema baby in the summer. If you dress the baby in short one-piece, his arms and legs will be exposed for his scratch. But if you dress him in footed one-piece, he may sweat and his eczema gets severe. In your experience, what should we do?
2) Bleach bath: what brand and what concentration bleach did you buy? If I use a baby bath tub, how much bleach do you think I can use?
Thank you very much. 我个人觉得我会用银子把温度用空调降下来，再用银子保持湿度。出门穿短的。不过这个我没经验，只能这样设想。
bleach bath 还是慎重，rosemm看法我觉得很有道理。。。。。。 [此贴子已经被作者于2010/5/16 3:29:04编辑过] Thank you so much for your response. One more quesiton. so so sorry to bother you:
We have been using the 2.5% hydro-cortisone on my baby’s FACE for about 3 weeks (only stopped twice, each one day). The doctor asked us to use it until the eczema is clear. However, there was not a single day that I can say it is totally cleared on his face, sometimes better, sometimes worse.
Last night I decided to use Westcort hydro-cortisone ointment 0.2% (Grade 4, pretty potent), which was prescribed by the dermatologist. I expected it can completely clear my son’s face overnight. This morning, I see a little improvement, but far worse than I expected.
What should I do now? Continue using Westcort, or, go back to 2.5%? I am really afraid the side-effect of steroid has already occurred to my little son. Why it is his face that has the most severe eczema? Any other area I would not feel so tortured...
Benj妈, so happy you reply to me. yes, 是渗水蛮严重那种.I remember you said Benj took 口服 steroid once. Not sure which one is more evil if you compare 口服 steroid and Elidel. I have been thinking of Elidel too..I will take your advice and call the doctor.
No, Benj hasn't taken oral steroid. But I ever asked my doctors the same question:" oral steroid or Elidel, which is less evil." Both the peditrician and the dermotologist said:"if were my baby, I'd give him Elidel." The peditrician prescribed Elidel for Benj but he did not use it because his eczema was under control then. One of my co-workers applied Elidel to her son on and off for over a year. Her son is 5 now. She said many babies used Elidel and doctors believed Elidel were safe before FDA released the warning,
Thank you so much for your response. One more quesiton. so so sorry to bother you:
We have been using the 2.5% hydro-cortisone on my baby’s FACE for about 3 weeks (only stopped twice, each one day). The doctor asked us to use it until the eczema is clear. However, there was not a single day that I can say it is totally cleared on his face, sometimes better, sometimes worse.
Last night I decided to use Westcort hydro-cortisone ointment 0.2% (Grade 4, pretty potent), which was prescribed by the dermatologist. I expected it can completely clear my son’s face overnight. This morning, I see a little improvement, but far worse than I expected.
What should I do now? Continue using Westcort, or, go back to 2.5%? I am really afraid the side-effect of steroid has already occurred to my little son. Why it is his face that has the most severe eczema? Any other area I would not feel so tortured... mm 不好意思看到晚了。如果用了那么久还不能清除，那么说明2。5%可的松对你家宝宝已经太弱了，要换强激素。要想一个晚上就清除，只能再提高激素强度。不过别担心，等后来湿疹控制住了，就可以回到弱激素。
以下是引用Mango79在5/17/2010 12:41:00 PM的发言： Benj妈, so happy you reply to me. yes, 是渗水蛮严重那种.I remember you said Benj took 口服 steroid once. Not sure which one is more evil if you compare 口服 steroid and Elidel. I have been thinking of Elidel too..I will take your advice and call the doctor. 渗水的我建议上尿布膏试试，渗水的地方别用保湿，不出水快好了再上保湿。 [此贴子已经被作者于2010/5/21 2:04:08编辑过]
我唐一句。保湿加强加强再加强。不要命不怕花钱的上保湿霜。 [此贴子已经被作者于2010/5/21 2:02:23编辑过] 阿莱妈. Thank you, I couldn't get any appointment with dermitologist. Two of my friends mentioned Cutivate lotion/cream (grade 5) are very useful to their babies. So I tried that. In three days, eczema on my son's face is controlled although there are still a little pink area. I am really afraid it will come back in one or two days. I always look at my baby's picture taken when he was 2 months old. Really wish his 脸就又能白白嫩嫩了.I agree with 保湿加强加强再加强. but my in-laws, who watch my son while I am at work, do not use moisturizer as much as I do. No matter what I say, they still think the way I use is a waste. Sigh!
My son't face is oozing again, the whole face, including eye lid. I am collapsed. I am afraid he needs oral antibiotic.
For the open area on face, my first dermitologist asked me only use Bactroban for 2 weeks. My second dermitologist asked me use hydrocortisone and Bactroban together on the open area. This time I only use bactroban. I gotta to see a third doctor cause I am consufed now.
If there is no open area, first doc says using steriod three days a week. The second one says to use it until it is clear. To show what is clear, he pointed at my son's forehead, which was 白白嫩嫩 at that time. I think both are not practical. I made an appointment for a pediatric dermertologist for June 8th. Will update you by then. I will ask about oral steroid and Elidel. My peditrician dares not to give me any opinion.
Just saw the post, my daughter's appointment with pediatric dermatologist is tomorrow, but her situation has already improved in the past couple of weeks. I think 阿莱妈 is right, after 7 months, the situation will improve.
For Mango79 MM, did you try to get rid of detergent from your house, we think that helped my daughter's situation. But again, she never had skin breakout or water oozing.
nice mom, bless your baby can everntually outgrow the eczema and not suffer from it anymore.
Just one note from what I see in my babies. I have twin boys, now they are over 13 months old. The older one had eczema since he was very little. But now it seems that he does not has it anymore. However, my little one started some strange eczema a few weeks ago (after he turned 1 year old), it was on his head and behind his ears the most. We had to see a doctor and get some prescription med. So be careful. Even after the baby turns one year old, there might still be some eczema happening. Taking care of babies is an on-going process.
Just saw the post, my daughter's appointment with pediatric dermatologist is tomorrow, but her situation has already improved in the past couple of weeks. I think 阿莱妈 is right, after 7 months, the situation will improve.
For Mango79 MM, did you try to get rid of detergent from your house, we think that helped my daughter's situation. But again, she never had skin breakout or water oozing.
[此贴子已经被作者于2010/5/24 10:45:07编辑过] I am using All cear detergent (dye free, perfume free) for washing clothes of everybody. Do you mean I need to get rid of dish detergent as well? thanks.
I am using All cear detergent (dye free, perfume free) for washing clothes of everybody. Do you mean I need to get rid of dish detergent as well? thanks.
UCjade recommended www.solveeczema.com. The site owner did terrific job on explaining and updating information.
I followed the suggestion and changed everything in my household. Basically, you need to use soap to replace all "detergent", anything contains sodium laurdyl sulfate or SDS.
Did you ever use Neosalus cream/foam? I feel it is something similar to Atopiclair. Yesterday the dermitologist precribed this for my son. My pharmacy says my insurance does not pay it at all.
To update this doctor's opinion on how to use steroid. He was talking about Locoid cream (grade 5): you can use it on face continuously for 2 weeks; on body for 4 weeks. To summarize my findings: each new doctor I see would prescribe a new steriod and antibiotic, which is different from the preious doctor. I feel that although Locoid and Cutivate cream are in the same grade in potency chart, Cutivate works better on my son. Maybe Locoid has less side effect than Cutivate since it is hydrocortisone series? Does anyone happen to know this?
UCjade recommended www.solveeczema.com. The site owner did terrific job on explaining and updating information.
I followed the suggestion and changed everything in my household. Basically, you need to use soap to replace all "detergent", anything contains sodium laurdyl sulfate or SDS.
Did you ever use Neosalus cream/foam? I feel it is something similar to Atopiclair. Yesterday the dermitologist precribed this for my son. My pharmacy says my insurance does not pay it at all.
To update this doctor's opinion on how to use steroid. He was talking about Locoid cream (grade 5): you can use it on face continuously for 2 weeks; on body for 4 weeks. To summarize my findings: each new doctor I see would prescribe a new steriod and antibiotic, which is different from the preious doctor. I feel that although Locoid and Cutivate cream are in the same grade in potency chart, Cutivate works better on my son. Maybe Locoid has less side effect than Cutivate since it is hydrocortisone series? Does anyone happen to know this? never heard of Neosalus cream. But you can have a try. (and many these new medicines offer rebate. ask your doctor or pharmacy.) My insurance did not cover atopiclair at first. So the first tube I paid cash. It cost about $120/100g. Later I argued with them and got covered by one tube per month. and the two steroid, never used. But chose the one work best for your son.
Your baby is 100% mother's milk, right? Have your doctor ever suggested amino-acid based formula? I know mother's milk is the best for babies. The possiblity of baby's allergy to mother's milk is very very little. I hesitate to make this suggestion. But if I were you, I still want to have a try for a couple of weeks, and keep pumping, just in case.
My son't face is oozing again, the whole face, including eye lid. I am collapsed. I am afraid he needs oral antibiotic.
For the open area on face, my first dermitologist asked me only use Bactroban for 2 weeks. My second dermitologist asked me use hydrocortisone and Bactroban together on the open area. This time I only use bactroban. I gotta to see a third doctor cause I am consufed now.
If there is no open area, first doc says using steriod three days a week. The second one says to use it until it is clear. To show what is clear, he pointed at my son's forehead, which was 白白嫩嫩 at that time. I think both are not practical. I made an appointment for a pediatric dermertologist for June 8th. Will update you by then. I will ask about oral steroid and Elidel. My peditrician dares not to give me any opinion. Sorry, I have little experience in weepy eczema. I hope the oozy area is under control now. Eczema is not something big in doctor's eyes. They always have solutions. But mothers always worry about the side effects. The only way we can do is to use steroid to keep eczema under control, while working hard to eliminate allergen, from food and environment.
Sorry, I have little experience in weepy eczema. I hope the oozy area is under control now. Eczema is not something big in doctor's eyes. They always have solutions. But mothers always worry about the side effects. The only way we can do is to use steroid to keep eczema under control, while working hard to eliminate allergen, from food and environment. Thanks for asking. The oozy face mostly dried out today after using antibiotic. Now he has a yellowish crusty face instead. Poor baby.
Thanks the reminder from rosepathhome, I just read "www.solveeczema.com'. The information about detergent is shocking. Although I really want to give it a try, it seems the project is huge...Esp. when I knew this did not help with Benj's case, I am hesitating to move forward. rosepathhome, did removing detergent help with you baby?
Just saw the post, my daughter's appointment with pediatric dermatologist is tomorrow, but her situation has already improved in the past couple of weeks. I think 阿莱妈 is right, after 7 months, the situation will improve.
For Mango79 MM, did you try to get rid of detergent from your house, we think that helped my daughter's situation. But again, she never had skin breakout or water oozing.
[此贴子已经被作者于2010/5/24 10:45:07编辑过] Benj mother and Rosepathhome: Did you do the washing test (suggested by the http://www.solveeczema.com/) before you swiching from detergent to soap? Did you use Cal Ben or any other brand? I am thinking to order a sample first to do a test. Totalling swiching the household is way too big a project.
Benj mother and Rosepathhome: Did you do the washing test (suggested by the http://www.solveeczema.com/) before you swiching from detergent to soap? Did you use Cal Ben or any other brand? I am thinking to order a sample first to do a test. Totalling swiching the household is way too big a project.
We did not do the test, just went ahead and did the change. The reason is my daughter's situation was pretty bad at that time, it would be impossible for us to do any skin test, she just kept scratching everywhere restlessly. It was so heartbreaking to see her like that. I think using soap is a good idea since less irritation will help eczema baby anyway. We used a line called Dr. Bronner from whole food, it has liquid form of soap and recommended by the website too. You may think it is a huge project, but actually it is quite doable. Dr. Bronner's soap can be used everywhere, I wash my hair, dish and clothing all with it. It is good stuff.
A quick update from today's visit with pediatric dermatologist. We visited John Hopkins Children's hospital pediatric dermatology specialist. The name is pretty impressive, but I am not impressed by the doctor. Basically, only two things, moisturizer and steroid ointment. I will bla bla this part later in more details, but really nothing we do not know. The only interesting part is she does not recommend us to see an allergist. She told us only 5% eczema was caused by food allergy. Since my daughter's situation has been improved by cream and steroid, she thinks it will be very unlikely related to food. I do not know how to think about this, so many babies's eczema was improved by switching formula or eliminating some food resources, but she does not consider that is a big deal....... John Hopkins Children's hospital is very new and organized, I am trembling now how much it will cost us.........
以下是引用Rosepathhome在5/25/2010 10:06:00 PM的发言： A quick update from today's visit with pediatric dermatologist. We visited John Hopkins Children's hospital pediatric dermatology specialist. The name is pretty impressive, but I am not impressed by the doctor. Basically, only two things, moisturizer and steroid ointment. I will bla bla this part later in more details, but really nothing we do not know. The only interesting part is she does not recommend us to see an allergist. She told us only 5% eczema was caused by food allergy. Since my daughter's situation has been improved by cream and steroid, she thinks it will be very unlikely related to food. I do not know how to think about this, so many babies's eczema was improved by switching formula or eliminating some food resources, but she does not consider that is a big deal....... John Hopkins Children's hospital is very new and organized, I am trembling now how much it will cost us......... Rosepathhome, thanks for your update. My allergist says only 1/3 of baby's eczema is caused by food. The others' causes are unknown ...
handshake ... We spent a lot of money on the third dermotologist we visited, a university based research-type clinic. Her bills are always very high. I didn't realized unitl recently that she charged us by minutes, every 15 minutes! That's part of the reason she answered my question patiently. But I did not count the minutes. I don't know if we are overcharged. Somethimes, we have to wait in the room during or after her check-up. Not sure how the visit time were calculated. But when Benj's eczema was severe, I almost went crazy. I cared nothing but him. I would pay any price only if his eczema were put under control. [此贴子已经被作者于2010/5/26 12:26:58编辑过]
Benj mother and Rosepathhome: Did you do the washing test (suggested by the http://www.solveeczema.com/) before you swiching from detergent to soap? Did you use Cal Ben or any other brand? I am thinking to order a sample first to do a test. Totalling swiching the household is way too big a project.
no, I did not do the test. Benj's eczema was pretty bad then. Any small mistake would cause his condition deteriorate very fast. I just did what I could do. Soap is mild, will not stimulate his skin even if it does not help his eczema. I use Cal Ben and Trader Joe's.
Benj's Mom, you always impressed me by how much you are willing to do for your son. He is very lucky to have you as his Mom. One of my coworker is complaining to me that her daughter-in-law would not bother to put moisturizer multiple times a day on her baby, I guess it is too much work. Her son's eczema is not improving at all and only under control by steroid cream. In the case of taking care of eczema baby, I would think daily maintenance work is so important that will make a whole world difference.
I am on the same boat with you on spending money on my daughter, I will sell my pants if that can make her more healthy and happy.
以下是引用Rosepathhome在5/26/2010 12:47:00 PM的发言： Benj's Mom, you always impressed me by how much you are willing to do for your son. He is very lucky to have you as his Mom. One of my coworker is complaining to me that her daughter-in-law would not bother to put moisturizer multiple times a day on her baby, I guess it is too much work. Her son's eczema is not improving at all and only under control by steroid cream. In the case of taking care of eczema baby, I would think daily maintenance work is so important that will make a whole world difference.
I am on the same boat with you on spending money on my daughter, I will sell my pants if that can make her more healthy and happy.
My husband criticized me that I almost lost my mind when Benj needed me the most. As a mother, I should be cool-headed. Yeah ... he is right. Be cool-headed.
Thank you for replying me about detergent-free project. It is a huge project to me because it has to involve my in-laws (a lot of explanantion and pursuading work) and my older son (4 year old, you can imagine..). It only takes a small thing that they do behind me to ruin whatever I do beforehand.
One question: what do you use to wash baby's face and body since Cetaphil cleanser is not an option any more? is the soap from Cal ben or Dr. Bronner OK for this use?
Thank you for replying me about detergent-free project. It is a huge project to me because it has to involve my in-laws (a lot of explanantion and pursuading work) and my older son (4 year old, you can imagine..). It only takes a small thing that they do behind me to ruin whatever I do beforehand.
One question: what do you use to wash baby's face and body since Cetaphil cleanser is not an option any more? is the soap from Cal ben or Dr. Bronner OK for this use?
Thanks a lot. detergent-free project for me is just "something good to have". I'm not sure if it helps or how much it helps Benj's eczema. I used Free and Clear shampoo. For the last 3 months, I gave Benj two baths per day. No shampoo or cleanser at all.
Dr. Bronner has one product for baby, in whole foods, you can find in baby section. It has both liquid and bar soap. I used both on my daughter, it is better than California baby ( the only one I used on my daughter since she was born). It will be useless if you only use soap for the baby, but detergent for everything else. The website made it very clear, even if you get rid of 95% of detergent in the house, the leftover 5% will screw you over. My parents gave me enormous support on this after I explained to them. At first, they are very skeptical, but after they saw the improvement, they stick with it. Really, it is not that hard, just buy lots of soap, hide all detergent, they will use it.
以下是引用miaozi在5/31/2010 10:58:00 PM的发言： 前一阵决定断过母乳，但是研究下来决定还是坚持到十个月，我不相信自己的母乳会让宝宝这么痛苦。难道错了？ Pat pat..I just read your article. Totally understand how you feel. "觉得非常疲惫和茫然", which is how I feel most of the time. unlike your son, the most severe part of my son is on face. Since 3 months old, his face has been always in the cycle: oozing, crusty, heals(for one day), oozing again...I have not seen his original terder skin for about three months. In half a month he will be six months old. I originally hope he will grow out or at least improve a little big by 6 months old. But your article didn't give me the hope. I am currently changing detergent to soap. Hope it will help to some degree. Did you already try this?
YOu may want to keep on using the hypoallergetic milk for one more week. I remember somebody said you will see the effect in two weeks. Good luck.
以下是引用Rosepathhome在5/28/2010 9:25:00 PM的发言： Dr. Bronner has one product for baby, in whole foods, you can find in baby section. It has both liquid and bar soap. I used both on my daughter, it is better than California baby ( the only one I used on my daughter since she was born). It will be useless if you only use soap for the baby, but detergent for everything else. The website made it very clear, even if you get rid of 95% of detergent in the house, the leftover 5% will screw you over. My parents gave me enormous support on this after I explained to them. At first, they are very skeptical, but after they saw the improvement, they stick with it. Really, it is not that hard, just buy lots of soap, hide all detergent, they will use it.
I already put an order from Cal Ben. I also bought Dr. Bronner’s all in one magic soap from whole foods since I want to use soap immediately. I checked Dr. Bronner’s website, it suggested mixing one part of soap with 40 parts of water for light cleaning. So I diluted the soap when I use it as hand soap. I just added some water without accurately measuring it. Do you dilute the soap when you use it? Thanks.
我记得有个护士鼓励我母乳喂养as long as possible,说这是我一生能给他的最好礼物,我也很激动,还很得意地瞅了lg一眼;经历了这前几个月的养育的心得,我觉得能不断的学习思考和探索,在他还没有能力自己选择的时候,为他做最好的选择,才tnnd是我能给他的最好礼物吧(当然那个护士说的时候我家还没有湿疹问题呢,我对她的鼓励很感激,只是对这边盲目地推崇母乳喂养有意见)
I already put an order from Cal Ben. I also bought Dr. Bronner’s all in one magic soap from whole foods since I want to use soap immediately. I checked Dr. Bronner’s website, it suggested mixing one part of soap with 40 parts of water for light cleaning. So I diluted the soap when I use it as hand soap. I just added some water without accurately measuring it. Do you dilute the soap when you use it? Thanks.
I did not dilute it. I use bar soap for hand wash, liquid soap for clothing and hair. I don't think you need to be precisely 1:40 dilute it. Just feel about it, dilute more if u feel too soapy. There are couple of occasions, I use liquid to wash my hand directly, it is fine, not harsh at all.
一． 湿疹的成因
Google “湿疹”或者 “eczema”, 会看到精确的医学解释和分类，有兴趣的自己搜索，我就不重复了，只讲讲我的理解。
湿疹是身体的过敏反应在皮肤上表现出来。为什么小婴儿容易过敏呢？我看过的医生各有一套自己的理论，总结如下：
1） 消化系统没有发育完全，一些食物不能完全分解吸收，例如蛋白质不耐受，被免疫系统认为是异质，发生过敏；
2） 皮肤的保护层(skin barrier)没有发育完全，皮肤水分流失，同时外界异质容易入侵，引起过敏；
3） 免疫系统not smart enough，把体内正常的物质当成异质，产生过敏反应。我的儿医还举了个例子，给小宝宝注射疫苗，每两个月一次，就是因为免疫系统容易“忘记”，需要反复提醒。宝宝长到一岁以后，免疫系统就比较聪明了。
一句话，小婴儿身体还没长好就出来了，不适应我们的环境。医生的意见一致：用激素控制，耐心等宝宝outgrow。刚开始我不相信，总想找到“根治”的方法，换了7个医生，终于明白了，任何要“根治”的想法不仅徒劳，而且危险。很简单，瓜没长熟，用外力催熟的瓜就不是那个味道了。
我知道做父母的不可能看着宝宝难受，自己什么也不做安心等他grow out of it. 大多数父母在等待宝宝发育完全以前做的一件事就是：寻找过敏原。
[此贴子已经被作者于2010/4/15 17:58:30编辑过]
一． 湿疹的过敏原
食物
大多数医生首先排查的就是食物。小婴儿的食物就是奶-母乳或奶粉。奶粉的一般怀疑是牛奶蛋白过敏；母乳的是母亲食用的易过敏食物，通过乳汁进入宝宝体内。
这个时候一般母乳喂养的要忌口，网上搜索一下最容易过敏和最不容易过敏食物。这里有一份英文的：
Most-Allergenic Foods
Least-Allergenic Foods
都怪我，昨天给她洗了bleach bath,我觉得你说的很有道理，这湿疹宝宝的皮肤是不能随便刺激的。bleach bath可以杀菌，但是太刺激了。
我今天也立下誓言，如果宝宝的湿疹有所好转，我也来家小还愿，就看到你的贴子。
再说一遍，太感谢了。今天第一次宝宝出生后出差，飞机上，眼泪汪汪，就是因为宝宝的湿疹。
当妈妈的，看到宝宝受罪，太痛苦了。
顺便请问一句，如果流水了应该怎么护理呢？需要立刻看医生吗？多谢
我家娃也有湿疹,七个多月,好一阵坏一阵,现在跟你们情况很像,下巴,脖子上有,再就是腿上很厉害
MM的一字一句,我都深有体会,这几个月真的是比较难熬
我也是天天在盼啊盼,盼着我娃快到一岁,自己能好些
希望楼主宝宝和我家宝宝都快快好起来
我家也是湿疹宝，我已经忌口好久了。
每天就是鸡肉＋米饭＋蔬菜，sigh！
如果大面积渗水或者皮损较严重，尽快看医生。医生可能会开口服的抗生素和较强的激素。
如果只是小面积，个别地方渗水，是湿疹的常见现象。
我用的是处方的外用抗生素药膏：2% Mupirocin ，涂在破口处，收住以后保湿。
有一种非处方的外用抗生素药膏，Bacitracin ointment。cvs, rite aid都有卖，功效一样。
也有极少极少对外用抗生素过敏的case。先试用一个地方。（我现在是草木皆兵了。）
MM找找这个版上阿莱妈的帖子，介绍的经验，用destini尿布疹膏，那个含氧化锌40%。我试过，也有效。
[此贴子已经被作者于2010/4/16 0:22:43编辑过]
另外推荐一个cerave，也是湿疹宝宝妈妈说儿医推荐的。很好用。
夏天就要来了。宝宝们的湿疹会好的。
my baby also has eczema. he started @2mons and much better after he turned 10mons. he used to be all over the body and face, and now is mainly a bit on the face. we tried aveeno baby soothing bath treatment (used perhaps 2 to 3 boxes). don't know whether it helps or baby outgrows, the eczema on his body are almost gone after that.
看到是HEPA的就买了，挺有用。
收藏了
宝宝2岁的时候我们回国，北京，海南（以为气候条件对他好一些），到现在在姥姥家，辗转了好几个地方，经过这半年多，好了很多。也许是宝宝年龄大了，刚回北京时还很厉害，到海南后好一些，现在很少了，我最近已经2个月没给上药了。
生了老二后，才真正摸到了什么是婴儿的光滑皮肤。而且跟哥哥比起来，妹妹真的是快乐很多，每天都是乐滋滋的，想当初，哥哥可真是遭罪呀。
我这次回国，看到一个熟人的儿子，都8岁了，还是有湿疹，他妈妈掀起衣服让我看，身上留的全是伤疤。妈妈说，真受不了啊。他儿子说，我才受不了。
MM现在看出来宝宝对什么过敏吗？
写完了。我可真能唐啊。希望对妈妈们有用，也不枉我劳作一天。
处方和非处方护肤品及药物图片传不上，有心的妈妈需要时按名称，自己Google吧。
[此贴子已经被作者于2010/4/16 0:27:13编辑过]
天 我们就用了那个t开头的药……还用了两管子了……
和你比起来 我真是太后妈太不负责任了……
遵医嘱就没关系。
已经十天了，宝宝的湿疹还是没好。虽然没恶化，但是因为我们频繁的给她擦油，她非常地烦躁。本来是个特别快乐的小baby，现在心情越来越不好。我真有点顶不住了。可是还是要自己给自己加油，天大的事，妈顶着。
我也不断检讨，还有哪里做得不够好，还应该做点什么。
当妈的，咱们一起努力！
[此贴子已经被作者于2010/5/13 6:14:15编辑过]
太感谢了!真的非常非常感谢.宝宝2个月10天,打完疫苗2天,脸上和下巴也出现了红色斑点,手感粗糙.儿医说啥都ｎｏｒｍａｌ我自己真担心呢，正好看到了ｍｍ的帖子。好好的学习了一把。不过我还不确定我家娃是不是湿疹。不知道能不能发给ｍｍ帮忙看一下。不胜感激！
不管是不是，保湿都可以上。mm发张图大家看看
so much details.
宝宝近来怎么样？有经验给介绍点吗？
太感谢了!真的非常非常感谢.宝宝2个月10天,打完疫苗2天,脸上和下巴也出现了红色斑点,手感粗糙.儿医说啥都ｎｏｒｍａｌ我自己真担心呢，正好看到了ｍｍ的帖子。好好的学习了一把。不过我还不确定我家娃是不是湿疹。不知道能不能发给ｍｍ帮忙看一下。不胜感激！
宝宝现在还不是很严重，你可以先保湿看看，是否会消下去。
要相信大多数宝宝自然而然就会消失，不会发展成严重的湿疹，所以不要太着急。
润肤、全棉衣服、不要刺激皮肤、温度湿度适宜。
Please update your babies' situations now.
After reading you two's posts, I did what I can to my daughter. Her situation is not getting worse, but is not getting better either. She still has 红色斑点 all around her bodies. I have to apply some 1% hydrocortisone to her every night.
We are gonna see both pediatric dermatologist and Allergist in the following week.
How are your babies?
阿莱妈, Benj妈,
Please update your babies' situations now.
After reading you two's posts, I did what I can to my daughter. Her situation is not getting worse, but is not getting better either. She still has 红色斑点 all around her bodies. I have to apply some 1% hydrocortisone to her every night.
We are gonna see both pediatric dermatologist and Allergist in the following week.
How are your babies?
Benj is better now. I say "better" because his eczema has cycles now. Sometimes, there are still 红色斑点 all around his bodies due to weather change or food allergy or just nothing. One or two days later, most of the 红色斑点s will gone without steroid. His sleep is not good. I still have to sit on the couch all night holding him by arms to give him better sleeps at night.
1% hydrocortisone is safe to use consecutively till baby's eczema is gone according to my peditrian and dermatologist. If your baby's eczema can be controlled by 1% hydrocortisone, you need not worry about it too much. Summar is coming soon and baby will be better then.
I can not imagine you have to hold him all night long every night. You did everything you can, he will be better and better everyday.
Eczema baby is 靠天吃饭，when it is cool and humid, they are doing well. I pray for rain everyday now. Like what you said, summer is coming soon, they will be better.
呵呵，阿莱妈妈，你回来了。
宝宝近来怎么样？有经验给介绍点吗？
稍微好点，我们现在在国内，南方天天下雨，潮湿度很高，保湿就没做的那么多了。我妈抱阿莱去看我门这边的医生开了个酮康唑，用了几次，感觉还是里面的激素起作用，好在现在阿莱用激素不会反扑了。
阿莱妈, Benj妈,
Please update your babies' situations now.
After reading you two's posts, I did what I can to my daughter. Her situation is not getting worse, but is not getting better either. She still has 红色斑点 all around her bodies. I have to apply some 1% hydrocortisone to her every night.
We are gonna see both pediatric dermatologist and Allergist in the following week.
How are your babies?
我们阿莱又比我发帖子的时候又好一点了。现在脸上主要是两腮处湿疹来了又去，其他地方都是零零星星的红点，身上只剩关节窝那里偶尔会发作。7个月回国后，我取消bleach洗澡，还因为家里比较潮湿，保湿没有原来上的勤快。治疗我妈用酮康唑，不过我会偷偷换成2。5%可的松，一般4天就会下去。但是1%可的松还是控制不住阿莱的湿疹。就象犇犇妈说的，如果能用1%控制住，那就不要太担心。只要不要一直连着用，1%还是很安全的。
我个人感觉随着宝宝长大，湿疹总会慢慢好起来，阿莱现在8个月，我的方案基本没变，但明显感觉湿疹可控了。不忌口用激素不会反扑了。妹妹坚持。
[此贴子已经被作者于2010/5/14 7:52:10编辑过]
First thank both of you for your eczema articles. They are super super strong.
1)You mentioned it will be better for eczema babies when the summer comes. I have one question regarding how to dress eczema baby in the summer. If you dress the baby in short one-piece, his arms and legs will be exposed for his scratch. But if you dress him in footed one-piece, he may sweat and his eczema gets severe. In your experience, what should we do?
2) Bleach bath: what brand and what concentration bleach did you buy? If I use a baby bath tub, how much bleach do you think I can use?
Thank you very much.
babies are doing better.
About Mango79's question on bleach bath, we had bad experience about
that on my daughter. We followed instructions on concentration ( approx
0.5 cup per full adult size tub) and used clorox. However, the night
after the bath, my daughter becomes super itchy, much more itchy than other days. My mom and I have to take turns to hold her hands
to prevent her from scratching like a monkey. Probably it is one time
thing, but we are not dare to try again.
My theory is that bleach bath will be good for eczema which involved
certain degree of bacteria infection, for example, if you see water
sweating out the skin, which indicates infection, bleach bath can help
by killing the bacteria. However, if there are no bacteria involving,
bleach will irritate the skin more. Since that accident, we even switch
to Chlorine-free diaper, which did not do much to my daughter, but they
are more expensive, I would like think it did something
Our way is to dress the baby in long but thin pants, it covers over the ankle, but not her entire foot to leave some port for cooling.
The other way is to cool the house down, a good way to burn money fast
Thanks a lot 阿莱妈, Benj妈 for your updates. It is great that both of babies are doing better.
About Mango79's question on bleach bath, we had bad experience about that on my daughter. We followed instructions on concentration ( approx 0.5 cup per full adult size tub) and used clorox. However, the night after the bath, my daughter becomes super itchy, much more itchy than other days. My mom and I have to take turns to hold her hands to prevent her from scratching like a monkey. Probably it is one time thing, but we are not dare to try again.
My theory is that bleach bath will be good for eczema which involved certain degree of bacteria infection, for example, if you see water sweating out the skin, which indicates infection, bleach bath can help by killing the bacteria. However, if there are no bacteria involving, bleach will irritate the skin more. Since that accident, we even switch to Chlorine-free diaper, which did not do much to my daughter, but they are more expensive, I would like think it did something
Thank you very much for sharing your experience. I dare not to give it a try now. My in-laws and my husband are all against bleach bath. If my baby will be like your daughter after the bath, I will be killed by them...
我们阿莱又比我发帖子的时候又好一点了。现在脸上主要是两腮处湿疹来了又去，其他地方都是零零星星的红点，身上只剩关节窝那里偶尔会发作。7个月回国后，我取消bleach洗澡，还因为家里比较潮湿，保湿没有原来上的勤快。治疗我妈用酮康唑，不过我会偷偷换成2。5%可的松，一般4天就会下去。但是1%可的松还是控制不住阿莱的湿疹。就象犇犇妈说的，如果能用1%控制住，那就不要太担心。只要不要一直连着用，1%还是很安全的。
我个人感觉随着宝宝长大，湿疹总会慢慢好起来，阿莱现在8个月，我的方案基本没变，但明显感觉湿疹可控了。不忌口用激素不会反扑了。妹妹坚持。
[此贴子已经被作者于2010/5/14 7:52:10编辑过]
看阿莱妈的帖子，我觉得我遇到的医生们都够狠，开的desonide（查资料是1% 氢化可的松的5倍强度）都说可以连续用，一直用到宝宝clear为止。
我不敢严格follow. 用一段时间，即使不clear，我能忍受就停下来了，或者换成氢化可的松。
[此贴子已经被作者于2010/5/14 14:16:35编辑过]
阿莱妈, Benj妈,
Please update your babies' situations now.
After reading you two's posts, I did what I can to my daughter. Her situation is not getting worse, but is not getting better either. She still has 红色斑点 all around her bodies. I have to apply some 1% hydrocortisone to her every night.
We are gonna see both pediatric dermatologist and Allergist in the following week.
How are your babies?
Rosepathhome, pediatric dermatologist and Allergist 有什么收获，记得回来update一下。谢谢。
Rosepathhome, pediatric dermatologist and Allergist 有什么收获，记得回来update一下。谢谢。
I will, we have already waited for over one month for both appointments. I don't know why it took so long. Anyway, I am gonna to see them.
阿莱妈, Benj妈:
First thank both of you for your eczema articles. They are super super strong.
1)You mentioned it will be better for eczema babies when the summer comes. I have one question regarding how to dress eczema baby in the summer. If you dress the baby in short one-piece, his arms and legs will be exposed for his scratch. But if you dress him in footed one-piece, he may sweat and his eczema gets severe. In your experience, what should we do?
2) Bleach bath: what brand and what concentration bleach did you buy? If I use a baby bath tub, how much bleach do you think I can use?
Thank you very much.
我个人觉得我会用银子把温度用空调降下来，再用银子保持湿度。出门穿短的。不过这个我没经验，只能这样设想。
有一个好消息是我曾经问过好多个有经验的妈妈，他们都说到了7月，宝宝的湿疹会好转。
bleach bath 还是慎重，rosemm看法我觉得很有道理。。。。。。
[此贴子已经被作者于2010/5/16 3:29:04编辑过]
看阿莱妈的帖子，我觉得我遇到的医生们都够狠，开的desonide（查资料是1% 氢化可的松的5倍强度）都说可以连续用，一直用到宝宝clear为止。
我不敢严格follow. 用一段时间，即使不clear，我能忍受就停下来了，或者换成氢化可的松。
[此贴子已经被作者于2010/5/14 14:16:35编辑过]
是啊，我当时都在想，原来美国医生也有狠的。
我个人觉得我会用银子把温度用空调降下来，再用银子保持湿度。出门穿短的。不过这个我没经验，只能这样设想。
有一个好消息是我曾经问过好多个有经验的妈妈，他们都说到了7月，宝宝的湿疹会好转。
bleach bath 还是慎重，rosemm看法我觉得很有道理。。。。。。
[此贴子已经被作者于2010/5/16 3:29:04编辑过]
Thank you so much for your response. One more quesiton. so so sorry to bother you:
We have been using the 2.5% hydro-cortisone on my baby’s FACE for about 3 weeks (only stopped twice, each one day). The doctor asked us to use it until the eczema is clear. However, there was not a single day that I can say it is totally cleared on his face, sometimes better, sometimes worse.
Last night I decided to use Westcort hydro-cortisone ointment 0.2% (Grade 4, pretty potent), which was prescribed by the dermatologist. I expected it can completely clear my son’s face overnight. This morning, I see a little improvement, but far worse than I expected.
What should I do now? Continue using Westcort, or, go back to 2.5%? I am really afraid the side-effect of steroid has already occurred to my little son. Why it is his face that has the most severe eczema? Any other area I would not feel so tortured...
脸上用到4算是很强了。我也不敢用得太久。你家脸上是不是渗水蛮严重那种？这种不管也不行。
跟医生聊聊Elidel, 只用在脸上，面积小，还是比较安全的，也没有激素对local皮肤的副作用。
The peditrician prescribed Elidel for Benj but he did not use it because his eczema was under control then. One of my co-workers applied Elidel to her son on and off for over a year. Her son is 5 now. She said many babies used Elidel and doctors believed Elidel were safe before FDA released the warning,
Thank you so much for your response. One more quesiton. so so sorry to bother you:
We have been using the 2.5% hydro-cortisone on my baby’s FACE for about 3 weeks (only stopped twice, each one day). The doctor asked us to use it until the eczema is clear. However, there was not a single day that I can say it is totally cleared on his face, sometimes better, sometimes worse.
Last night I decided to use Westcort hydro-cortisone ointment 0.2% (Grade 4, pretty potent), which was prescribed by the dermatologist. I expected it can completely clear my son’s face overnight. This morning, I see a little improvement, but far worse than I expected.
What should I do now? Continue using Westcort, or, go back to 2.5%? I am really afraid the side-effect of steroid has already occurred to my little son. Why it is his face that has the most severe eczema? Any other area I would not feel so tortured...
mm 不好意思看到晚了。如果用了那么久还不能清除，那么说明2。5%可的松对你家宝宝已经太弱了，要换强激素。要想一个晚上就清除，只能再提高激素强度。不过别担心，等后来湿疹控制住了，就可以回到弱激素。
根据我看的医生的意见，3周太长了（不过看benj妈妈看的医生的意见好象是没问题）。我断续（用三天歇息两天）用过1%可的松差不多一个月时间，结果医生把我骂了一顿，然后上口服可的松。说一定要把湿疹压下来。mm我的建议是赶紧看医生，把情况告诉医生，看是不是换一种强激素先压下来。短期用强激素也不要太担心的。
宝宝湿疹大多数都是发在脸上的。等湿疹好了，过几个月脸就又能白白嫩嫩了，不要担心留疤。
我唐一句。保湿加强加强再加强。不要命不怕花钱的上保湿霜。
[此贴子已经被作者于2010/5/21 2:02:23编辑过]
Benj妈, so happy you reply to me. yes, 是渗水蛮严重那种.I remember you said Benj took 口服 steroid once. Not sure which one is more evil if you compare 口服 steroid and Elidel. I have been thinking of Elidel too..I will take your advice and call the doctor.
渗水的我建议上尿布膏试试，渗水的地方别用保湿，不出水快好了再上保湿。
[此贴子已经被作者于2010/5/21 2:04:08编辑过]
mm 不好意思看到晚了。如果用了那么久还不能清除，那么说明2。5%可的松对你家宝宝已经太弱了，要换强激素。要想一个晚上就清除，只能再提高激素强度。不过别担心，等后来湿疹控制住了，就可以回到弱激素。
根据我看的医生的意见，3周太长了（不过看benj妈妈看的医生的意见好象是没问题）。我断续（用三天歇息两天）用过1%可的松差不多一个月时间，结果医生把我骂了一顿，然后上口服可的松。说一定要把湿疹压下来。mm我的建议是赶紧看医生，把情况告诉医生，看是不是换一种强激素先压下来。短期用强激素也不要太担心的。
宝宝湿疹大多数都是发在脸上的。等湿疹好了，过几个月脸就又能白白嫩嫩了，不要担心留疤。
我唐一句。保湿加强加强再加强。不要命不怕花钱的上保湿霜。
[此贴子已经被作者于2010/5/21 2:02:23编辑过]
阿莱妈. Thank you, I couldn't get any appointment with dermitologist. Two of my friends mentioned Cutivate lotion/cream (grade 5) are very useful to their babies. So I tried that. In three days, eczema on my son's face is controlled although there are still a little pink area. I am really afraid it will come back in one or two days. I always look at my baby's picture taken when he was 2 months old. Really wish his 脸就又能白白嫩嫩了.I agree with 保湿加强加强再加强. but my in-laws, who watch my son while I am at work, do not use moisturizer as much as I do. No matter what I say, they still think the way I use is a waste. Sigh!
Mango79 和 Rosepathhome, 不知道你们的儿医对激素的用法有什么意见, 能否讲一讲.
医生对激素的使用看法都不一样. 外用和口服,似乎也各有主张. 我的皮肤科医生外用激素很aggressive, 但始终不肯开口服. 我不知道她的做法是否正确. 我们外用中强激素那么长时间, 是否早已超过口服的强度.
Mango79 和 Rosepathhome, 不知道你们的儿医对激素的用法有什么意见, 能否讲一讲.
My son't face is oozing again, the whole face, including eye lid. I am collapsed. I am afraid he needs oral antibiotic.
For the open area on face, my first dermitologist asked me only use Bactroban for 2 weeks. My second dermitologist asked me use hydrocortisone and Bactroban together on the open area. This time I only use bactroban. I gotta to see a third doctor cause I am consufed now.
If there is no open area, first doc says using steriod three days a week. The second one says to use it until it is clear. To show what is clear, he pointed at my son's forehead, which was 白白嫩嫩 at that time. I think both are not practical. I made an appointment for a pediatric dermertologist for June 8th. Will update you by then. I will ask about oral steroid and Elidel. My peditrician dares not to give me any opinion.
For Mango79 MM, did you try to get rid of detergent from your house, we think that helped my daughter's situation. But again, she never had skin breakout or water oozing.
[此贴子已经被作者于2010/5/24 10:45:07编辑过]
Just one note from what I see in my babies. I have twin boys, now they are over 13 months old. The older one had eczema since he was very little. But now it seems that he does not has it anymore. However, my little one started some strange eczema a few weeks ago (after he turned 1 year old), it was on his head and behind his ears the most. We had to see a doctor and get some prescription med. So be careful. Even after the baby turns one year old, there might still be some eczema happening. Taking care of babies is an on-going process.
Just saw the post, my daughter's appointment with pediatric dermatologist is tomorrow, but her situation has already improved in the past couple of weeks. I think 阿莱妈 is right, after 7 months, the situation will improve.
For Mango79 MM, did you try to get rid of detergent from your house, we think that helped my daughter's situation. But again, she never had skin breakout or water oozing.
[此贴子已经被作者于2010/5/24 10:45:07编辑过]
I am using All cear detergent (dye free, perfume free) for washing clothes of everybody. Do you mean I need to get rid of dish detergent as well? thanks.
I am using All cear detergent (dye free, perfume free) for washing clothes of everybody. Do you mean I need to get rid of dish detergent as well? thanks.
UCjade recommended www.solveeczema.com. The site owner did terrific job on explaining and updating information.
I followed the suggestion and changed everything in my household. Basically, you need to use soap to replace all "detergent", anything contains sodium laurdyl sulfate or SDS.
Did you ever use Neosalus cream/foam? I feel it is something similar to Atopiclair. Yesterday the dermitologist precribed this for my son. My pharmacy says my insurance does not pay it at all.
To update this doctor's opinion on how to use steroid. He was talking about Locoid cream (grade 5): you can use it on face continuously for 2 weeks; on body for 4 weeks. To summarize my findings: each new doctor I see would prescribe a new steriod and antibiotic, which is different from the preious doctor. I feel that although Locoid and Cutivate cream are in the same grade in potency chart, Cutivate works better on my son. Maybe Locoid has less side effect than Cutivate since it is hydrocortisone series? Does anyone happen to know this?
UCjade recommended www.solveeczema.com. The site owner did terrific job on explaining and updating information.
I followed the suggestion and changed everything in my household. Basically, you need to use soap to replace all "detergent", anything contains sodium laurdyl sulfate or SDS.
Thanks a lot.
Benj's mother and other mothers:
Did you ever use Neosalus cream/foam? I feel it is something similar to Atopiclair. Yesterday the dermitologist precribed this for my son. My pharmacy says my insurance does not pay it at all.
To update this doctor's opinion on how to use steroid. He was talking about Locoid cream (grade 5): you can use it on face continuously for 2 weeks; on body for 4 weeks. To summarize my findings: each new doctor I see would prescribe a new steriod and antibiotic, which is different from the preious doctor. I feel that although Locoid and Cutivate cream are in the same grade in potency chart, Cutivate works better on my son. Maybe Locoid has less side effect than Cutivate since it is hydrocortisone series? Does anyone happen to know this?
never heard of Neosalus cream. But you can have a try. (and many these new medicines offer rebate. ask your doctor or pharmacy.)
My insurance did not cover atopiclair at first. So the first tube I paid cash. It cost about $120/100g. Later I argued with them and got covered by one tube per month.
and the two steroid, never used. But chose the one work best for your son.
Your baby is 100% mother's milk, right?
Have your doctor ever suggested amino-acid based formula?
I know mother's milk is the best for babies. The possiblity of baby's allergy to mother's milk is very very little.
I hesitate to make this suggestion. But if I were you, I still want to have a try for a couple of weeks, and keep pumping, just in case.
[此贴子已经被作者于2010/5/25 11:57:12编辑过]
My son't face is oozing again, the whole face, including eye lid. I am collapsed. I am afraid he needs oral antibiotic.
For the open area on face, my first dermitologist asked me only use Bactroban for 2 weeks. My second dermitologist asked me use hydrocortisone and Bactroban together on the open area. This time I only use bactroban. I gotta to see a third doctor cause I am consufed now.
If there is no open area, first doc says using steriod three days a week. The second one says to use it until it is clear. To show what is clear, he pointed at my son's forehead, which was 白白嫩嫩 at that time. I think both are not practical. I made an appointment for a pediatric dermertologist for June 8th. Will update you by then. I will ask about oral steroid and Elidel. My peditrician dares not to give me any opinion.
Sorry, I have little experience in weepy eczema. I hope the oozy area is under control now.
Eczema is not something big in doctor's eyes. They always have solutions. But mothers always worry about the side effects. The only way we can do is to use steroid to keep eczema under control, while working hard to eliminate allergen, from food and environment.
Sorry, I have little experience in weepy eczema. I hope the oozy area is under control now.
Eczema is not something big in doctor's eyes. They always have solutions. But mothers always worry about the side effects. The only way we can do is to use steroid to keep eczema under control, while working hard to eliminate allergen, from food and environment.
Thanks for asking. The oozy face mostly dried out today after using antibiotic. Now he has a yellowish crusty face instead. Poor baby.
Thanks the reminder from rosepathhome, I just read "www.solveeczema.com'. The information about detergent is shocking. Although I really want to give it a try, it seems the project is huge...Esp. when I knew this did not help with Benj's case, I am hesitating to move forward. rosepathhome, did removing detergent help with you baby?
Just saw the post, my daughter's appointment with pediatric dermatologist is tomorrow, but her situation has already improved in the past couple of weeks. I think 阿莱妈 is right, after 7 months, the situation will improve.
For Mango79 MM, did you try to get rid of detergent from your house, we think that helped my daughter's situation. But again, she never had skin breakout or water oozing.
[此贴子已经被作者于2010/5/24 10:45:07编辑过]
Benj mother and Rosepathhome:
Did you do the washing test (suggested by the http://www.solveeczema.com/) before you swiching from
detergent to soap? Did you use Cal Ben or any other brand? I am thinking to order a sample first to do a test. Totalling swiching the household is way too big a project.
Benj mother and Rosepathhome:
Did you do the washing test (suggested by the http://www.solveeczema.com/) before you swiching from
detergent to soap? Did you use Cal Ben or any other brand? I am thinking to order a sample first to do a test. Totalling swiching the household is way too big a project.
We did not do the test, just went ahead and did the change. The reason is my daughter's situation was pretty bad at that time, it would be impossible for us to do any skin test, she just kept scratching everywhere restlessly. It was so heartbreaking to see her like that.
I think using soap is a good idea since less irritation will help eczema baby anyway.
We used a line called Dr. Bronner from whole food, it has liquid form of soap and recommended by the website too.
You may think it is a huge project, but actually it is quite doable. Dr. Bronner's soap can be used everywhere, I wash my hair, dish and clothing all with it. It is good stuff.
We visited John Hopkins Children's hospital pediatric dermatology specialist. The name is pretty impressive, but I am not impressed by the doctor.
Basically, only two things, moisturizer and steroid ointment. I will bla bla this part later in more details, but really nothing we do not know.
The only interesting part is she does not recommend us to see an allergist. She told us only 5% eczema was caused by food allergy. Since my daughter's situation has been improved by cream and steroid, she thinks it will be very unlikely related to food.
I do not know how to think about this, so many babies's eczema was improved by switching formula or eliminating some food resources, but she does not consider that is a big deal.......
John Hopkins Children's hospital is very new and organized, I am trembling now how much it will cost us.........
A quick update from today's visit with pediatric dermatologist. We visited John Hopkins Children's hospital pediatric dermatology specialist. The name is pretty impressive, but I am not impressed by the doctor. Basically, only two things, moisturizer and steroid ointment. I will bla bla this part later in more details, but really nothing we do not know. The only interesting part is she does not recommend us to see an allergist. She told us only 5% eczema was caused by food allergy. Since my daughter's situation has been improved by cream and steroid, she thinks it will be very unlikely related to food. I do not know how to think about this, so many babies's eczema was improved by switching formula or eliminating some food resources, but she does not consider that is a big deal....... John Hopkins Children's hospital is very new and organized, I am trembling now how much it will cost us.........
Rosepathhome, thanks for your update.
My allergist says only 1/3 of baby's eczema is caused by food. The others' causes are unknown ...
handshake ...
We spent a lot of money on the third dermotologist we visited, a university based research-type clinic. Her bills are always very high. I didn't realized unitl recently that she charged us by minutes, every 15 minutes! That's part of the reason she answered my question patiently. But I did not count the minutes. I don't know if we are overcharged. Somethimes, we have to wait in the room during or after her check-up. Not sure how the visit time were calculated.
But when Benj's eczema was severe, I almost went crazy. I cared nothing but him. I would pay any price only if his eczema were put under control.
[此贴子已经被作者于2010/5/26 12:26:58编辑过]
Benj mother and Rosepathhome:
Did you do the washing test (suggested by the http://www.solveeczema.com/) before you swiching from
detergent to soap? Did you use Cal Ben or any other brand? I am thinking to order a sample first to do a test. Totalling swiching the household is way too big a project.
no, I did not do the test. Benj's eczema was pretty bad then. Any small mistake would cause his condition deteriorate very fast.
I just did what I could do. Soap is mild, will not stimulate his skin even if it does not help his eczema.
I use Cal Ben and Trader Joe's.
One of my coworker is complaining to me that her daughter-in-law would not bother to put moisturizer multiple times a day on her baby, I guess it is too much work. Her son's eczema is not improving at all and only under control by steroid cream.
In the case of taking care of eczema baby, I would think daily maintenance work is so important that will make a whole world difference.
I am on the same boat with you on spending money on my daughter, I will sell my pants if that can make her more healthy and happy.
Benj's Mom, you always impressed me by how much you are willing to do for your son. He is very lucky to have you as his Mom.
One of my coworker is complaining to me that her daughter-in-law would not bother to put moisturizer multiple times a day on her baby, I guess it is too much work. Her son's eczema is not improving at all and only under control by steroid cream.
In the case of taking care of eczema baby, I would think daily maintenance work is so important that will make a whole world difference.
I am on the same boat with you on spending money on my daughter, I will sell my pants if that can make her more healthy and happy.
My husband criticized me that I almost lost my mind when Benj needed me the most. As a mother, I should be cool-headed. Yeah ... he is right.
Be cool-headed.
Thank you for replying me about detergent-free project. It is a huge project to me because it has to involve my in-laws (a lot of explanantion and pursuading work) and my older son (4 year old, you can imagine..). It only takes a small thing that they do behind me to ruin whatever I do beforehand.
One question: what do you use to wash baby's face and body since Cetaphil cleanser is not an option any more? is the soap from Cal ben or Dr. Bronner OK for this use?
Thanks a lot.
Benj mother and Rosepathhome,
Thank you for replying me about detergent-free project. It is a huge project to me because it has to involve my in-laws (a lot of explanantion and pursuading work) and my older son (4 year old, you can imagine..). It only takes a small thing that they do behind me to ruin whatever I do beforehand.
One question: what do you use to wash baby's face and body since Cetaphil cleanser is not an option any more? is the soap from Cal ben or Dr. Bronner OK for this use?
Thanks a lot.
detergent-free project for me is just "something good to have". I'm not sure if it helps or how much it helps Benj's eczema.
I used Free and Clear shampoo. For the last 3 months, I gave Benj two baths per day. No shampoo or cleanser at all.
It will be useless if you only use soap for the baby, but detergent for everything else. The website made it very clear, even if you get rid of 95% of detergent in the house, the leftover 5% will screw you over. My parents gave me enormous support on this after I explained to them. At first, they are very skeptical, but after they saw the improvement, they stick with it. Really, it is not that hard, just buy lots of soap, hide all detergent, they will use it.
我老大没有湿疹，老二有，不过没那么严重，但是就是很担心。看得小孩挠心里难受
我家宝宝从一个多月有baby acne, 之后发展成为轻微的湿疹，皮肤比较干燥，湿疹一直好好停停，也没有大发过，也鲜有完全clear的日子。当时我们不知道这样的宝宝需要特别的加强保湿，只是在每天洗完澡后给全部抹上（大概当时错过了最佳的保养时期）。
四个多月的时候身上也开始长，不多，除了腿弯严重些，其他地方也就是些小红点。五个月的时候看到阿莱妈妈的帖子，非常佩服阿莱妈妈与湿疹斗争的勇气，立即收藏，也开始加强保湿，同时还庆幸自己的宝宝发展成遇到这样顽固的湿疹。
可是。。。五个多月，腿上开始大范围的发湿疹，除了严重的地方用了一点曲安奈德，其余的还是自己消下去了（庆幸）。脸上也是好好停停，腮帮到下巴常常泛红，耳边一小块绿豆大的地方常被挠破，其他地方没有破皮渗水。
六个月回国，脸上和身上都还可以，只有腿弯是顽疾，最终用了几天曲安奈德终于clear。六个月底的时候有一天比较暖和，身上又开始零散发疹子。保湿方面一直是阿莱妈的双重保湿，两周一罐cetaphil+一罐aquaphor。睡眠一直很好，仍然能睡整觉。
七个月到公婆家，某天不知什么因素（回想一下：我吃了鲫鱼？我喝了豆浆？当天特别热——最高30度？当天风大？）第二天发的一塌糊涂，连额头都红肿，脸上几乎没有好的地方了，浑身红肿，像只熟龙虾！因为这一趟我只计划在公婆家待一周，出发之前家人一再吩咐：只有一周，带孩子方面要迁就着点公婆，不要太坚持。所以原先坚持不吃的鲫鱼和豆浆我都吃了，省的他们老说我这也不吃那也不吃，也不知道是不是食物诱发的。
自那天开始，湿疹就开始猖狂，不可收拾。虽然后两天用药消下去一点，但是之后反反复复，一直非常严重。睡眠也开始一塌糊涂，半夜常常痒醒三四次，烦躁不安，喂抗组胺药也无济于事。我开始严格忌口，只吃猪骨头汤、鸡汤和常见的不容易致敏的几样蔬菜，连孕妇维生素都停了，因为里面含DHA有鱼油成分，最近开始吃普通孕妇维生素。保湿更加强，一周一罐cerave，十天一罐aquaphor. 十来天用掉一管曲安奈德，几乎是全身都抹，四肢多些，前胸后背少些。用的前两三天就基本clear了，之后逐渐有小红点冒出来，所以坚持了一周多，刚开始想逐渐停药把一天两次改成一天一次的时候，四肢的湿疹大反弹。崩溃。。。干脆停掉了。用激素的同时还给中药洗澡，医院的方子。
七个半月开始吃益生菌，多喂水。八个月差一周把从出生就吃的similac advance换成alimentum.(每天只是睡前吃2～4oz作为对母乳的补充，同时为了保持她喝奶瓶的习惯。之前一直没停是因为从出生开始就吃，起初并没有这么严重的过敏现象）。刚开始换alimentum的时候对它寄予了厚望，不知是心里作用还是什么，真的觉得那一两天有点好转的迹象（决定停激素也有一部分这个原因）。可是现在换奶粉一周了，停了激素仍然发成了龙虾腿，手臂也是。。。
八个月整了，没有好转的迹象。数次走在绝望的边缘，我已经精疲力竭了。。。
前一阵决定断过母乳，但是研究下来决定还是坚持到十个月，我不相信自己的母乳会让宝宝这么痛苦。难道错了？
Pat pat..I just read your article. Totally understand how you feel. "觉得非常疲惫和茫然", which is how I feel most of the time. unlike your son, the most severe part of my son is on face. Since 3 months old, his face has been always in the cycle: oozing, crusty, heals(for one day), oozing again...I have not seen his original terder skin for about three months. In half a month he will be six months old. I originally hope he will grow out or at least improve a little big by 6 months old. But your article didn't give me the hope. I am currently changing detergent to soap. Hope it will help to some degree. Did you already try this?
YOu may want to keep on using the hypoallergetic milk for one more week. I remember somebody said you will see the effect in two weeks. Good luck.
Dr. Bronner has one product for baby, in whole foods, you can find in baby section. It has both liquid and bar soap. I used both on my daughter, it is better than California baby ( the only one I used on my daughter since she was born). It will be useless if you only use soap for the baby, but detergent for everything else. The website made it very clear, even if you get rid of 95% of detergent in the house, the leftover 5% will screw you over. My parents gave me enormous support on this after I explained to them. At first, they are very skeptical, but after they saw the improvement, they stick with it. Really, it is not that hard, just buy lots of soap, hide all detergent, they will use it.
I already put an order from Cal Ben. I also bought Dr. Bronner’s all in one magic soap from whole foods since I want to use soap immediately. I checked Dr. Bronner’s website, it suggested mixing one part of soap with 40 parts of water for light cleaning. So I diluted the soap when I use it as hand soap. I just added some water without accurately measuring it. Do you dilute the soap when you use it? Thanks.
第n次仔细阅读这个帖子，受到鼓舞的同时，还是觉得非常疲惫和茫然——究竟怎样才能治好我自己宝宝的湿疹？
我家宝宝从一个多月有baby acne, 之后发展成为轻微的湿疹，皮肤比较干燥，湿疹一直好好停停，也没有大发过，也鲜有完全clear的日子。当时我们不知道这样的宝宝需要特别的加强保湿，只是在每天洗完澡后给全部抹上（大概当时错过了最佳的保养时期）。
四个多月的时候身上也开始长，不多，除了腿弯严重些，其他地方也就是些小红点。五个月的时候看到阿莱妈妈的帖子，非常佩服阿莱妈妈与湿疹斗争的勇气，立即收藏，也开始加强保湿，同时还庆幸自己的宝宝发展成遇到这样顽固的湿疹。
可是。。。五个多月，腿上开始大范围的发湿疹，除了严重的地方用了一点曲安奈德，其余的还是自己消下去了（庆幸）。脸上也是好好停停，腮帮到下巴常常泛红，耳边一小块绿豆大的地方常被挠破，其他地方没有破皮渗水。
六个月回国，脸上和身上都还可以，只有腿弯是顽疾，最终用了几天曲安奈德终于clear。六个月底的时候有一天比较暖和，身上又开始零散发疹子。保湿方面一直是阿莱妈的双重保湿，两周一罐cetaphil+一罐aquaphor。睡眠一直很好，仍然能睡整觉。
七个月到公婆家，某天不知什么因素（回想一下：我吃了鲫鱼？我喝了豆浆？当天特别热——最高30度？当天风大？）第二天发的一塌糊涂，连额头都红肿，脸上几乎没有好的地方了，浑身红肿，像只熟龙虾！因为这一趟我只计划在公婆家待一周，出发之前家人一再吩咐：只有一周，带孩子方面要迁就着点公婆，不要太坚持。所以原先坚持不吃的鲫鱼和豆浆我都吃了，省的他们老说我这也不吃那也不吃，也不知道是不是食物诱发的。
自那天开始，湿疹就开始猖狂，不可收拾。虽然后两天用药消下去一点，但是之后反反复复，一直非常严重。睡眠也开始一塌糊涂，半夜常常痒醒三四次，烦躁不安，喂抗组胺药也无济于事。我开始严格忌口，只吃猪骨头汤、鸡汤和常见的不容易致敏的几样蔬菜，连孕妇维生素都停了，因为里面含DHA有鱼油成分，最近开始吃普通孕妇维生素。保湿更加强，一周一罐cerave，十天一罐aquaphor. 十来天用掉一管曲安奈德，几乎是全身都抹，四肢多些，前胸后背少些。用的前两三天就基本clear了，之后逐渐有小红点冒出来，所以坚持了一周多，刚开始想逐渐停药把一天两次改成一天一次的时候，四肢的湿疹大反弹。崩溃。。。干脆停掉了。用激素的同时还给中药洗澡，医院的方子。
七个半月开始吃益生菌，多喂水。八个月差一周把从出生就吃的similac advance换成alimentum.(每天只是睡前吃2～4oz作为对母乳的补充，同时为了保持她喝奶瓶的习惯。之前一直没停是因为从出生开始就吃，起初并没有这么严重的过敏现象）。刚开始换alimentum的时候对它寄予了厚望，不知是心里作用还是什么，真的觉得那一两天有点好转的迹象（决定停激素也有一部分这个原因）。可是现在换奶粉一周了，停了激素仍然发成了龙虾腿，手臂也是。。。
八个月整了，没有好转的迹象。数次走在绝望的边缘，我已经精疲力竭了。。。
miaozi, 严重反复发作的湿疹是很麻烦，每个经历过或者经历着的妈妈都和你有同感。
alimentum 是低敏奶粉，不是无敏奶粉。只是把蛋白分子break down 到更易于吸收的程度，只能降低过敏的概率。提倡母乳，就是因为母乳里面的蛋白分子小于奶粉，宝宝不易过敏。
虽然母乳过敏的概率极小极小，但如果不难做的话，可以进一步试试 Neocate or Nutramigen AA。同时keep pump, keep 母乳。有效的话，一周就能看出效果。
前一阵决定断过母乳，但是研究下来决定还是坚持到十个月，我不相信自己的母乳会让宝宝这么痛苦。难道错了？
恕我直言
mm为什么不全alimentum两个星期试试呢
lzmm试过没有用才开始考虑通过皮肤的过敏原
皮肤再娇弱也不如吃下去的厉害,先exclude的吃的可能性吧
我家的情况就是混合喂养,奶粉是nutramigen的时候只是湿疹有所好转而已,后来全部nutramigen之后湿疹就全好了,宝宝也开心很多,精神头都不一样,对周围事物更好奇,更有respond.而我家的湿疹也是在刚新生的时候没有,后面才开始的.
说母乳喂养这件事,我觉得也得分情况吧,也许对于多数不过敏的baby,母乳喂养可以降低将来obese的概率什么的是个更好的选择
我记得有个护士鼓励我母乳喂养as long as possible,说这是我一生能给他的最好礼物,我也很激动,还很得意地瞅了lg一眼;经历了这前几个月的养育的心得,我觉得能不断的学习思考和探索,在他还没有能力自己选择的时候,为他做最好的选择,才tnnd是我能给他的最好礼物吧(当然那个护士说的时候我家还没有湿疹问题呢,我对她的鼓励很感激,只是对这边盲目地推崇母乳喂养有意见)
I already put an order from Cal Ben. I also bought Dr. Bronner’s all in one magic soap from whole foods since I want to use soap immediately. I checked Dr. Bronner’s website, it suggested mixing one part of soap with 40 parts of water for light cleaning. So I diluted the soap when I use it as hand soap. I just added some water without accurately measuring it. Do you dilute the soap when you use it? Thanks.
I did not dilute it. I use bar soap for hand wash, liquid soap for clothing and hair. I don't think you need to be precisely 1:40 dilute it. Just feel about it, dilute more if u feel too soapy. There are couple of occasions, I use liquid to wash my hand directly, it is fine, not harsh at all.